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Ok, so I was prescribed cayston for the first time and I just received everything....this is a pretty complex medication, and between my life and having to take pulmozyme and now being on 2 iv meds 3 times a day....this is way to much...... is this drug even worth it...has anyone here seen any...

I was born and raised in buffalo, NY And was seen by cf center at childrens and then the adult cf center. I moved to Orlando 6 years ago for better care. I want to know how the care is now... I know dr Cronin is gone but how is it with out him..... Anyone see any pulmonalogist's there instead...

My foundation first annual golf tournament and first major event is this saturday in Orlando, FL. Entry fee is just $100, includes golf and lunch. We will be having a live auction and amazing golf prizes such as, putting contest where person will win a 5 day carnival cruise for 2. Closest to the...

Hello please forward this to everyone you know, even if they themselves dont golf...we need signed in the next two week, sign up at The first annual Kevin A Przybyl Breahe Easy Foundation's golf tournament will be on the Aronld Palmer course. Individual golfers are $100 and $400 for...

I see tons of posts about the story abc news did about cf patients living longer. I am the featured Cf patient in the story. I was very disappointed in several aspects of that story. When ABC contacted me they had not decided which way the story would go...they asked me to share my story which I...

Hey Everyone I was just featured on ABCnews.com in a story about Cystic Fibrosis. Check it out <a target=_blank class=ftalternatingbarlinklarge...

Hey Everyone, I am proud to say our first fundraiser for the Kevin A Przybyl Breathe Easy Foundation at the Orlando Salt Room, was a huge success. We had nearly 100 people attend and could not have fit anymore in the building, and we are pleased to have raised over $2,100. This was a huge step...

We are 6 days away from our first Fundraising Event at the Salt Room in Orlando... <a target=_blank class=ftalternatingbarlinklarge href="http://www.saltroomorlando.com/ ">http://www.saltroomorlando.com/ </a> A Wine and Chocolate Affair with a Breath of Salt Air A fundraiser to benefit...

The Salt Room in Orlando will be hosting our first fundraiser for the Kevin A Przybyl Breathe Easy Foundation. "Wine and Chocolate Affair with a Breath of Salt Air" To benefit those with Cystic Fibrosis Where : The Salt Room 1804 North Mills Avenue, Orlando, Florida 32803 When: May 21...

Hey everyone, The website site for the Kevin A Przybyl Breathe Easy foundation is fully functioning!! Please check it out, spread the word, and register at the website !! www.breathe-easy.org

Hello all, It's finally complete...thats right the cf memorial boat wrap. It took alot longer than I thought it would but it truely looks awesome. All but a few names are on there but, they will be added very shortly...also there is plenty of room for more name. so if you want to be remembered...

Its been a long process, and a little more expensive than I thought but the boat wrap is done and on my boat...but there was a huge error with printing of the names I received. However, that will be correct on monday so if there is anyone else that would like to add their name to the boat...

Hey everyone...all of you that allowed to to put names of cf patients on my boat, the time has come . Tomorrow the boat will be completed and photo and video will also be photoed.I will. Email everyone directly over the next freew weeks....another big announcement will be made at that time as...

In the Florida there is agobernment program to financialy assist cf patients but they cut the funding severely. Are there other states that have similiar program. Not talking about Medicare or Medicaid. How much do you think should be given to you or how much would help make your finances a...

I am interested to learn how much you are spending in health care and groceries per year. I am looking for just estimates. I spend around 10k a year out of pocket with health insurance. Those that don't have insurance how much does it cost you?

He all, To all that know me or submited a name for my boat, I want you to know it is coming along nicely. The final draft is in the works and I should have some photos by the end of december or first week of January...all you who emailed me I will email you when its completed. Now to the...

My website/boat wrap memorial are taking shape. The vinyl graphics person has been picked, and the website pages are beginning to take shape. I just need the support of everyone here to make this work. Here is the link to my website to see what has been done today. If you are interested please...

Hello Everyone, Capt. Kevin Przybyl here;I am looking to take my fishing guide business (Orlando Trophy Bass )to the next level this coming year. Over the past 12 months my service has grown each month, and the word is getting out about my fishing guide business. I am looking to create a boat...

Well is you know my political position, I dislike the democratic party, especially President Obama. Especailly screwing people over who donate money to charities by making it taxable, however President Obama did something useful by lifting restrictions on funded embryonic stem cell research...

Hey everyone, I recently decided that I want to take my fishing guide service to the next level. I am looking to start a nonprofit bass fishing guide service to raise funds for education and research towards CF. I am in the process of writing the business plan and raising funds to file the...