Cystic Fibrosis Forum (EXP)

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  1. M

    Looking for ways to get higher ranks for my website

    so anyone know of any sites where i can trade website links or get some free advertising for my business? I am trying to get my name out there to get more fishing trips
  2. M

    need ideas on getting more energy

    Ok, so over the past few weeks I have had no energy. I thought it was my testosterone levels being low, but there not they are normal. I thought it was my diet but I have been sticking to a rather healthy diet and my feedings gain some weight over the last few months. The only other thing I...
  3. M

    eflow question

    Can this be used for hypertonic saline or pulmozyme. I dont use tobi, but this would be useful for my other meds.
  4. M

    LOOKING TO CONTACT A GIRL FROM DELAND

    I AM LOOKING TO SEE IF THERE IS A CYNTHIA FROM DELAND FLORIDA...SHE IS A CF PT WHO RECENTLY GRADUATED FROM HS AND HAD AN ARTICLE ABOUT HER IN THE ORLANDO SENTINAL...THE ONE THING SHE WANTED TO ACCOMPLISH IN LIFE WAS TO CATCH A BASS. I WANT TO BE THE ONE TO HELP HER WITH THAT...SO IF ANY KNOWS...
  5. M

    My new website

    Hey everyone, If you have the time please check out my all new website for my fishing guide business. The highlight is the Cystic Fibrosis section...i am looking for some more ideas for this section...i will be putting on a link to u-tube for cf videos in the link section in the next few...
  6. M

    update:my feeding tube sucks

    well this morning i was hard at work speaking with my cf doctor to straighten out this stupid tube. I will be going to a different hospital wed for my fitting of a button tube. The new hospital is very understanding and willing to change out the tube by thursday or friday. they were a little...
  7. M

    my feeeding tube sucks

    My new tube i had put in friday sucks. they replaced my owld peg with a long tube. i have to have it taped to keep from hanging down. it constantly gets caught in my shirt, it hurts, and i cant fish with it...so i got pissed this morning and called the doctor. i told him this thing is not...
  8. M

    fEEDING TUBE REPLACED

    YESTERDAY I HAD A ENDOSCOPY DONE TO REPLACE MY FEEDING TUBE. MY LAST ONE WAS IN FOR OVER 10 YEARS AND I HAD SEVERAL PROBLEMS BECAUSE OF THAT. SO THEY REPLACED IT WITH THIS HUGE LONG TUBE, MY LAST ONE WAS A BUTTON. I AM TOO ACTIVE TO HAVE THIS FOOT LONG ROPE IN MY STOMACH. I AM PISSED OFF BECAUSE...
  9. M

    LUCKY AGAIN

    SINCE I MOVED TO ORLANDO I HAVE LEARNED HOW LUCKY I AM TO STILL BE ALIVE. I HAVE HAD A FEW DOCTORS TELL ME THAT I AM LUCKY TO BE HERE SINCE PREVIOUS DOCTORS HAVE TAKEN A LESS ACTIVE APPROACH TO MY CARE. TODAY I WENT TO SEE I GI SPECIALIST BECAUSE I HAVE BEEN HAVING SEVERE PAIN WHERE MY FEEDING...
  10. M

    cAN YOU WORK PARTIME WHILE ON S.S. DISABILITY

    OK SO I WILL COLLECTING SS DISABILITY IN THE NEXT FEW MONTHS, MY QUESTION IS CAN YOU WORK STILL PARTIME IF YOUR ON IT. I HAVE HEARD SEVERAL THINGS, ONE THAT YOU CANT AT ALL...OR THAT YOU CAN BUT YOU CAN NOT MAKE MORE THAN WHAT THE DISABILITY CHECK IS PER MONTH. .. I HAVE CALLED SS DISBILITY BUT...
  11. M

    Need a slogan

    Ok so I posted this on my blog but I need some more help trying to pick out a slogan for my fishing guide business. Here is what I have so far... 1. "Guiding the way towards a Cure" 2. "Guiding Towards a Cure" 3 "Casting toward the Cure" 4 "Catching the Cure for CF" ( I like this but...
  12. M

    soreness around my feeding tube

    I have had soreness around my feeding tube. does anyone put any cream around it and if so what.
  13. M

    IS THEIR ANY OTHER CF PATIENTS THAT FISH BASS TOURNAMENTS

    HEY JUST LOOKING TO SEE IF ANYONE OUT THERE BESIDES ME FISH BASS TOURNAMENTS.
  14. M

    MY S.S. DISABILITY RESULTS

    JUST WANTED TO LET EVERYONE KNOW HOW MY APPLICATION PROCESS WENT WHEN I APPLIED FOR DISABILITY....IT WAS THE FASTEST THING EVER, IT TOOK LESS THAN 30 DAYS FOR THEM TO APPROVE ME FOR DISABILITY. I WILL BE RECEIVING MY FIRST CHECK IN JUNE, THIS WILL MAKE LIFE MUCH BETTER FOR ME. WHO WOULD OF...
  15. M

    NEED SOME PICK ME UP MESSAGES

    HELLO ALL, I HAVE BEEN FEELING A LITTLE DOWN THESE PAST FEW WEEKS. I JUST TURNED 28 AND THIS PAST YEAR I HAVE NOTICED A SIGNIFICANT CHANGE WITH MY CF. I GET TIRED EASILY, WINDED EASILY, AND I HAVE BEEN FEELING LIKE THE END IS GETTING CLOSER. I CONTINUE TO FIGHT HARD BY WORKING OUT, OWNING MY...
  16. M

    IS ANYONE ON DISABILITY?

    I have been faced with very recent health changes with the idea of going on disability. I need to dedicate more time to taking care of myself by working out and doing more treatments, but can't because I work 12 hour days. Has anyone here been on disability, and how difficult was it, what do...
  17. M

    BEING A PROFESSIONAL BASS ANGLER

    HI EVERYONE, LIKE EVERYONE HERE, I HAVE SPENT MY WHOLE LIFE FIGHTING THIS DISEASE. I AM ONE OF THE FORTUNATE ONES THAT CAN MAINTAIN MY HEALTH AND A LIFE. I HAVE DEDICATED MOST OF MY LIFE SAVING OTHERS AS A PARAMEDIC IN BUFFALO, NY. THREE YEARS AGO MY WIFE AND I MOVED TO ORLANDO FLORIDA FOR...
  18. M

    HELP SPREAD THE WORD

    HI EVERYONE, THOSE WHO HAVE HELPED ME WITH MY QUESTIONS, THANK YOU. I AM NEW TO THIS SITE, AND I LOVE IT. I HAVE HOPED ONE DAY THEIR WOULD BE A SITE DEDICATED TO THOSE WITH CF. I AM GLAD TO KNOW THAT I AM NOT THE ONLY 28 WITH CF. I NEED SOME HELP TO SPREAD THE WORD OF MY NEW BUSINESS, A...
  19. M

    HOW DO YOU GAIN WEIGHT

    Hello, I am 28 years old and only weight 100 lbs. I have a feeding tube, eat a little thoughout the day, just started working out more. I live a very active life being a emergency medical dispatcher, bass angler, and a paramedic student. I am marrie. My whole life I have been under weight, and...
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