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Vertex expected to do well in Europe this year: Vertex has given a downbeat sales forecast for 2017, saying negotiations with European health systems are dragging their heels on reimbursing its cystic fibrosis drugs. Nevertheless, analysts expect the company to be one of the top performing...

It's only a matter of time before drugs are administered via patches with painless microneedles instead of unpleasant injections. But designers need to balance the need for flexible, comfortable-to-wear material with effective microneedle penetration of the skin. Swedish researchers say they...

Teva Israel has signed a cooperation and marketing agreement with Israeli company Syqe Medical. Is the drug industry changing its approach to medical cannabis? This morning, Teva Pharmaceutical Industries Ltd. (NYSE: TEVA; TASE: TEVA)...

Here at CFTechnology.org/CysticFibrosis.com there are exciting things going on! I met Patrick Merle, PhD, in California at the Global Genes Summit. Patrick has developed an app with the CF patient in mind. A number of us have been piloting it, before we globally present it to you! There are...

Hi All: Please know that we are still working on restoring all the forum permissions to many of you! Jim Caldwell has spent many hours volunteering on this. Changing back to these forums...hasn't been an easy task. You can join back as new members in the mean time. For this, I am so sorry...

Link to Webinar from Cleveland Clinic

Here are 10 ways to help a friend during a difficult diagnosis: Helping

We are excited to share that you and your membership have the opportunity to help two exceptional students living with cystic fibrosis (CF) each win $24,000 scholarships to assist them in achieving their dreams of pursuing higher education. Earlier this year, AbbVie awarded 40 $3,000...

A successful gene therapy approach would have the advantages of treating all forms of CF regardless of the genetic mutation, and potentially the therapy could be given just once to effect a permanent treatment. Read more about the research...

This app comes from the EU.. http://www.mycyfapp.eu/en/

U.S. Food and Drug Administration Approves ORKAMBI® (lumacaftor/ivacaftor) for Use in Children with Cystic Fibrosis Ages 6 through 11 who have Two Copies of the F508del Mutation -Approximately 2,400 children ages 6 through 11...

http://cysticfibrosis.com/distinguishing-relapse-from-reinfection-in-mac/

I am arriving in LA California for the Rare Genes Summit put on later this week by Global Genes: http://cysticfibrosis.com/rare-patient-advocacy-summit/ What will I learn? I am asking as I think of our community. You are the gateway for personalized medicine. We have been together here at...

Smenle34: Just curious if anyone else has dated or is dating another person with CF? MSCali24: I know of a few people who have. There is a CF on couple on facebook that is married but I’m pretty sure they both ended up with transplants. I’m not sure how sick they were before they met each...

Cale Gilley: So I’ve been thinking about this a lot lately and I’m so sick of the pity I get when I tell people I have Cystic Fibrosis. I’m pretty outgoing and I go to bars and meet people all the time and people who smoke always ask if I want come join them outside while they smoke and I...

Jane: My son will be 26 in April so he will no longer be covered under my insurance. He already has Mass Health as a supplement, but I’ve heard it isn’t as good for primary insurance. Can anyone recommend an insurance group for him to look into? It’s all new to us! Thanks Printer: It is my...

S.R. Hi there, First of all, please forgive me if I’ll talk nonsense. It’s the first experience for me on such forums. In addition to that, English is not my first language. Is there any harm or hazard of having a slightly higher temperature for few days? Long story. My girlfriend has...

RebJane: Looking for input; my daughter has always been a good eater. Snacks alot! Her BMI is good but I noticed a decrease in her eating(much less snacking). Her last appointment she had lost 3 pounds; BMI still good. in fact she is perfect. But; I worry about making sure she understands...

Anjanetteopal: Two of my four children have CF-like symptoms that are mild enough that the doctor was hesitant to suggest CF. However, it runs in my family and my husband and I were getting genetic testing done for other things, so we check for CFTR mutations. I have 444delA, and he has...

SweetSammiJ So yesterday 8-24-2016 I had my first sinus surgery and I was wondering who else has had it and what it was like for them. How long afterward did the bleeding last? Is there anything that helped you with the bleeding and the random nose pains RubyRoseLee responded: Hi, I have...