Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. M

    Infection fighting benefits of exercise

    http://ntmnews.com/index.php/natural-compounds-and-therapies/exercise This is an inspiring article. It explains some ways in which exercise helps fight infection. Explains why my past yrs of heavy exercise have meant fewer exacerbations for me even through my FEV1 keeps dropping. (hey, you...
  2. M

    Does your electric steam sterilizer melt the following equipment?

    I've melted the mouthpiece of one nebulizer and my aerochamber (mouth portion only). Neither incidents were tragic, since the neb was cheap and the aerochamber still works. However, I've been thinking of thowing my acapella in the steam sterilizer, rather than soaking it in alcohol once a week...
  3. M

    Hypertonic saline (hts) & electronics

    My laptop bears the brunt of my nebulizing entertainment, and it holds up okay with me blowing salty air into it EXCEPT 1) when I leave it in front of an open window on a humid day or 2) when I bring it to my IL's beachhouse where the ambient humidity is super high. My husband says that in high...
  4. M

    Sterilizing nebs

    I'm trying to get with the program in terms sterilizing nebs--following more of a CF protocol rather than an asthma/COPD one. Yrs ago, I had neb'ed hts and albuterol while culturing non-CF stuff. Then I stopped nebs for a couple years due to the magic of exercise. Now I'm needing to neb again...
  5. M

    Mold inspection

    Long story short, we came very close to buying a home this past month, but after the regular inspection turned up a small amount of mold in the basement, we decided to bring in a specialist do air and tape samples from each floor of the house. The testing turned up extremely high levels of...
  6. M

    article about a case of pseudo transferred to non-CF parents

    http://thorax.bmj.com/content/57/6/559.full<br><br>I found this article that outlines a case of a person with pseudomonas infecting her parents w/o CF, one of whom had no bronchiectasis, the other did.<br><br>I mostly thought I'd share because it is interesting--not to scare people--this was a...
  7. M

    pseudomonas question

    So, despite searching on "pseudomonas" and "mucus color" in the forums and reading lots of past topics, and getting sad at seeing responses from people who have passed (but feeling grateful that their ideas and thoughts are still here), I still have a few questions. <br><br>Here's the...
  8. M

    Asymmetrical chest upon inhalation

    Was wondering if anyone else's ribs stick out more on one side. My left side sticks out an inch+ farther, making for a sharper cut in to my waist. Not a big deal...maybe because the heart is more on the left, but I was wondering it is because of the problems I have in lower left lobe ("air...
  9. M

    Why can I no longer eat beans w/o horrible gas?

    Beans are a staple of my diet. I eat them 2-3 times a week, and my kids eat them too. They are so great for you. But for a couple months now, I've been getting awful-smelling gas with them...and I mean AWFUL. I am using same the brand of canned beans as always-so that is not the problem...
  10. M

    NeilMed sinus rinse for kids

    I need advice on how to get my four-year-old to use sinus washes. I tried bribing him with candy. He is resistant even with that. I had pretty much given up and then realized that parents on this site may have some useful tips. My son does not have CF, but does have bad allergies and is on a...
  11. M

    My four-year-old's take on mucus

    So, my son is in a Jewish preschool and they recently hosted a preschool-Passsover. The kids all had little booklets they'd colored in with the story of the Exodus from Eqypt, and they were answering questions that the teachers asked as part of a presentation. Well, my son announced to the...
  12. M

    Endoscopy with Bravo

    Has anyone ever had this? I had one today and my right upper back has hurt since about 2 min after waking up from anesthesia. Eating is really painful, as in chew, swallow, wait three seconds, cringe and gasp in spasms of pain. Looked online and this doesn't seem like all that uncommon of a...
  13. M

    NYTimes article on CF Registry

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.nytimes.com/2009/12/22/health/22cyst.html?_r=1">http://www.nytimes.com/2009/12...ealth/22cyst.html?_r=1</a>
  14. M

    SUBEROYLANILIDE HYDROXAMIC ACID restores lung cell function in CF patients

    Scientists Restore Some Function to Cells from Cystic Fibrosis Patients ScienceDaily (Dec. 7, 2009) - In an encouraging new development, a team led by Scripps Research Institute scientists has restored partial function to lung cells collected from patients with cystic fibrosis. While there is...
  15. M

    Changes in ACT when patient is experiencing hemoptysis?

    We all need to contact our own drs when we have hemoptysis, but I am curious what changes in ACT do you recommend to your patients: when the bleeding is light, bright red mixed with mucus? when the bleeding is gulpfuls but very intermittant? when the bleeding has stopped for several...
  16. M

    Exercise

    I have always heard that cardio exercise "opens the small airways." Is this true? My lungs feel great after I exercise but maybe it is just the endorphins? Since exercising regularly, my endurance has gone way up though my FEV1 has declined a little.
  17. M

    Atelectasis starting at night

    I have always though my crazy lung pain was pleurisy (dry since there is never any fluid on x-rays), but this exacerbation has been different and I am thinking it has been atelectasis all along. Last Thurs, I started with extra green sputum and chills, plus lots of chest pain. Pretty typical...
  18. M

    Mixed news

    I went to a pulmo check-up today. The good news is that I am going to be evaluated for a 12 month Mannitol trial in people with bronchiectasis. I have been lusting for this stuff since I heard about it from Australians with bronchiectasis on Bronchiectasis R Us. (It is also known as...
  19. M

    dry powder inhaled Gentamycin

    The threat of bioterrorism may result in a new way to take gentamicin someday. Strange and interesting... <a target=_blank class=ftalternatingbarlinklarge href="http://www.azonano.com/news.asp?NewsID=5110 ">http://www.azonano.com/news.asp?NewsID=5110 </a> Nanotherapeutics, Inc., has announced...
  20. M

    C-Reactive Protein & Menstruation

    This seems to explain why our (the ladies) lungs often feel extra cruddy at predictable points in our menstrual cycles. CRP is a measure of inflammation. <i>Research Article C-reactive protein across the menstrual cycle Katherine Wander 1 *, Eleanor Brindle 2, Kathleen A. O'Connor 1 2...
Top