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Last Spring, I got a HillRom Vest from a member of this board who was no longer using it (Jerry Cahill). I was battling Aetna for coverage of my Vest. I used Jerry's Vest for much of last year. Now, for several months, I have been doing well with running and manual CPT, so I wanted to offer...

So... I recently tested positive as a carrier for Alpha-1 Antitrypsin deficiency. This is an enzyme that repairs damage in your liver and your lungs. Homomzygous people tend to get emphysema or cirrhosis in their 40s without ever smoking. If they smoke, then much earlier. My gene combo means...

https://www.harvardpilgrim.org/pls/portal/docs/PAGE/PROVIDERS/MEDMGMT/STATEMENTS/HFCWC_VESTS.PDF

Has anyone had issues with their Bartholin's gland? It is an exocrine gland (two actually) just inside the v* (don't want to get people at work in trouble). It secretes mucus. I am asking because one of mine has caused me problems for decades (even a minor surgery). I am curious if CF'ers...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.lifestylepets.com/hypocat.html ">http://www.lifestylepets.com/hypocat.html </a> On a whim, I googled hypoallergenic cats, hoping to learn more about that unattractive hairless breed. I grew up with many cats. My allergies are...

I can't figure out how to send a PM, have only replied to them, so... Nightwriter and others who use n-acetylcistiene: Do you use PharmaNAC from BioAdvantex? I got my pulmonologists approval for it and have been using it for about six months (since reading about it on NoExcuses' blog). You...

I am wondering if anyone has had this before and might be able to tell me what it is. I have asked my pulmonologist, but he doesn't know. On at least three different occasions (always ending in pleurisy and bronchopneumonia), I have felt a popping or tapping-from-the-inside feeling in my chest...

Since I am always copying stuff from here and posting it in the bronchiectasis forum, I am pleased to offer this article I just read :-) <a target=_blank class=ftalternatingbarlinklarge href="http://www.nationaljewish.org/news/2008/new-test-for-cystic-fibrosis.aspx...

Since early May, I have been battling the same infection and trying to get a nice window to start exercising. Well, I stopped fooling around with the abs that barely worked (cefuroxime, clarythromycin, cefaclor) and started Avelox. I got my window! I have been doing some 5:30 AM walks after...

Someone on the bronchiectasis forum posted about this book. I figured I'd pass the info along and was wondering if anyone has read it. <b>Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties </b>Laurie Edwards. Walker, $14.99 paper (288p) ISBN 978-0-8027-1649-0 We...

Yesterday, I had the privilege of meeting Jerry. What a beautiful person and an inspiration. I am going to do some sit-ups and push-ups after posting this message :-) Jerry, I wanted to thank you again for passing your Vest to me. I am really grateful to be able to end my losing insurance...

Really?? Can I be considered for your Vest Giveaway? I just had my second round appeal for coverage of my Vest be rejected by Aetna. I got the letter yesterday--no joke. I was planning on returning it and trying again next year after my husband switches insurance for 2009. I have...