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Why do people with cystic fibrosis get night sweats and what does it mean? I am healthy right now with a clear cough and I am still getting the night sweats. I wake up and my legs and lower body are all wet along with my pillow. Any advice on getting it to stop? Its starting to drive me nuts! I...
I live in CA and I feel like my employer is not giving the reasonable accommodations, and maybe even discriminating against my disease (CF). A year and a half ago I was hired as a fine dining food server. I had been working at the company a little less then a year and because the employees never...
I had orientation for my new job last Monday. Out of 25 people, of course my seat was right net to the sick girl. I sat down and she was coughing like crazy. She turned me to me and said " this is the end of my illness, don't worry you wont get sick." I was thinking "yeah right, I know a cough...
I just had a couple questions about the drug coming out for ddf508 to treat the underlying cause of CF. Where is at in the process? I know the drug is going to be expensive. Right now I have medi-cal insurance through the state of CA. How much is it going to cost and how are we going to go about...
Is there any CFers out there who are nurses? I know there are certain directions I can take as a nurse that would be ok with CF. Just wondering if you all could help me out with those directions. I am almost 28 years old, I am for the most part healthy. It is a personal goal of mine to get into...
On Thursday night I started coming down with an illness after I got off work. For me, I can not afford to miss work or take any time off. If I take time off, my bills do not get paid, and that is a huge problem. I do not have family that support me financially, so I am unable to get sick and...
I am almost done with my associates degree (went back to school later) and I need to figure out which direction to take for a career. I was thinking about going into medical sonographer (ultrasound tech) or getting a bachelors in human resource management. I live in CA and well if you don't have...
Hello, Ive been looking into why I have fertility problems lately. Not fully ready to have a baby but getting there. I was looking up some stuff online and I found this product called Fertile CM. CM stands for cervical mucus. This is my back story..... I am a 27 year old woman, never been on...
Hello, I am pre diabetic and I was wondering if anyone else has feet problems. I have what looks like athletes foot and I have tried everything to make it go away. Some times it goes away for 3 days and then comes right back. It is itchy and horribly annoying. Ive tried every natural and over...
Hello everyone, I was wondering if charting really makes a difference in getting pregnant. I have been in a long term relationship for 5 years now and never have been on birth control. We are engaged now and getting things in line to later have a baby. I went to have my (3rd day period test)...
Have any of you had luck with applying for the scholarships for cystic fibrosis? Any recommendations on which ones to apply for? They are very time consuming and I really don't have much time with working part time and school full time. I am behind in my studies, went to school later in life, so...
When it comes to deodorant it is hard for me to find something that works. Im not sure if it has something to do with the CF or not. Ive been having to use the store brands of clinical protection. These are really bad for you but I felt like I had no choice since the store natural brands didn't...
I am very much for all natural remedies and against pill form medicine unless it is completely necessary. I love tea tree oil, I use it for everything that I want to disinfect. It really works wonders. Next time I am sick I am going to try a tea tree steam in my lungs like in the article. If you...
I just wanted to tell all my fellow cfers about the Nutribullet. It is the blender that you put fruits and veggies in, and it turns it into juice. This has helped me so much to keep my immunity up and not get sick. I put a combo of fruits, veggies, ginger, and a garlic clove in my blender. I try...
Hello everyone, I wanted to get some opinions on a matter that I need help with. I am 27 years old and have ddf508. I started a new job in April 2012 at a 4 diamond hotel in 2012. The hotel was just opening and I was part of the team who opened the hotel. I got hired at the restaurant as a...
My doctor never told me that us cfers can get kidney stones from cf. I just wanted to remind you all to drink lots of water to avoid what I am dealing with. I have a 1cm stone in my kidney, which is huge. I did the ultra sonic waves surgery 2 weeks ago and the stone didnt break up. They put me...
Hello, just wondering if any cfers out there get tonsil stones in their tonsils. It where the pockets in your tonsils fill with a white, hard, little stones? Whenever I am feeling slightly run down, I get them. Wondering if they are cf related. Also I know 30% of woman with cf are not fertile...
Hello, I found out about a month ago that I have a 9mm kidney stone that is still giving me some pain in my back. I have not seen a urlolgist yet but I have an appointment this monday. I have DD508 and am 26 years old. I really think this has something to do with the cf. I dont take medicine for...
Was wondering what life was like for you when you were around 26 years old. How is life like now? Any advice for the younger cfers to live as long as you have? Can you tell your story? Intrested to know......
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