Cystic Fibrosis Forum (EXP)

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  1. K

    sometimes you just need some rest

    I find it very difficult to have people understand me when they dont have cf and do not know much about it. I try to live a normal life and not let anything affect me too much but what most do not understand with this disease is that sometimes you just need to rest and sleep. My boyfriend is...
  2. K

    Just Wondering

    Well I am a firm believer that doctors help us out a lot but we have the disease and we know our body the best! I think this website is awesome because it helps us compare notes with each other. Just wondering if there is anyone else out there like me. Here is my story....... I am a 26 year old...
  3. K

    more energy

    Does anyone have any tips for getting more energy through the day. My lung function is in the 80s/3.0 and I run 3 miles about 3 times a week. That helps a little for some extra energy but most of the time its hard to make myself get up and do the things that need to get done. I get so lazy...
  4. K

    All natural!

    I wanted to start something where we can share our tips for helping stay well with cf. Im a all natural green freak and thought it would be a good idea if we share our little secrets on what keeps us well! I take fish oil and turmeric for anti inflammatory. When I have a bad cough at night I...
  5. K

    GHPP

    Hello, I have GHPP and im having some major problems with them. I got on the ghpp almost 2 years ago. I had an to go to urgent care once for a blocked colon. The bill was 10,000 and its been a year, they still havnt paid it. Its about to go to collections and I have no source of income to pay...
  6. K

    Just wondering

    Do people with CF have priority over people who smoked for a lung transplant. I have always wondered this and sorry if its a stupid question but I believe we should have first rights. If this is not true, I would think its totally unfair. When I see smokers smoke I think how disrespectful they...
  7. K

    Future child

    Hello, Im am 25 years old and am starting to thinking about starting a family in the next couple years. I have never been on birth control or protection since I had two very long term relationships with a partner. Its been 7 years and I have never gotten pregnant. I am starting to worry it may...
  8. K

    Having a baby

    Hello, Im am 25 years old and am starting to thinking about starting a family in the next couple years. I have never been on birth control or protection since I had two very long term relationships with a partner. Its been 7 years and I have never gotten pregnant. I am starting to worry it may...
  9. K

    ghpp is horrible

    I know I have posted a topic about this in the past. ghpp was good at first until I didnt know how to renew. I called many times and no one called me back. Just my luck i had to go to the ER for a blocked colon. I am now getting the bills because ghpp denied it. I was a month late to renew...
  10. K

    Adult CF and joint problems

    Hello just wondering if anyone else out there is having this problem. I am 24 years old and this is the second time I have had this happen. I woke up again with bad joint pain in my shoulders, elbows, wrist,knees and a small rash on my chest/neck. Looks like I pimples. I never break out on my...
  11. K

    having a baby someday

    Just wondering, Im 23 now and have never really been on birth control. Just wondering if I decide to have a baby what would be the first step? I know I cant get pregnant with just me and my man, I know I would have to see some kinda doctor. Im sure it will be some big bucks to do. My boyfriends...
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