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I can't tell you 100% it will get better after transplant. Everyone has different outcomes but the majority of the post transplant stories I have read about are successful. I'm Facebook friends with several adults who have had amazing lives after transplant. Myself included. Keep your head up...
There is a fairly new enzyme cartridge available for those with g-tubes. It connects straight onto your tubing. I've been using it for about 2 weeks now and I love it! No more taking oral enzymes before and after tube feedings. Relizorb has made me feel less full in the morning. Hardly any...
If you're sick, not feeling 100% or stuck in the hospital the church I've been attending offers online live streaming at several different times on Sunday. This is a nondenominational church. Younger people love it but all ages attend. Great music and sermons. It's Crossroads church in...
Wow, very interesting diet facts! The first thing that came to mind when I saw this article on Facebook was "well of course because OUR insurances and healthcare system is a mess!!"
Thanks for sharing.
Hugs,
Yes, I've had to deal with this the past 5 years or so. ENT has prescribed daily sinus rinses, saline spray & Flonase. As well as daily Zyrtec. I've also had recurring nasal polyps which need to be removed every 1-2 years. I've never had rejection because of this.
Wow, Thank you for your kind words Stephen!
Jeanne- The forums kept me going during those difficult times. I loved the chat room. Thank you for your support all these years.
jricci- I'm glad I could lift your spirits up in some small way today. Keep your head up. You got this!
Hugs,
This is something I posted on my personal Facebook page earlier today. I realize not everyone has Facebook so I decided to share it here as well.
Dear Friends & Family,
Today as I sit here typing this I can think of two words to describe my life. Thankful & Blessed. The feelings I have right...
LittleLab you reminded me of something an attending Dr. said to me while I was in the hospital last year. I payed little attention to her opinion since she wasn't MY dr. I remember she had mentioned something about Reglan being dangerous because of how it affected facial nerves in *some* people...
My personal regimen is: 2-3 capfuls of Miralax everyday, Stool Softener gel cap twice a day and Reglan because of slow emptying. I also take Maalox as needed. Have you been tested to see how fast your stomach is digesting? If your food is taking too long to digest it will cause a back up...
Definitely ask or research online what their survival success rates are if you haven't yet. That will tell you a lot.
I found this.https://www.dignityhealth.org/stjosephs/services/lung-disease/services-and-programs/lung-transplant-program Hopefully it's the correct website. It looks like they...
I'm unable to help you with these specific questions as my transplant center was only 5 hours away. It was from my understanding at the time that any center FURTHER than 5 hours it was necessary to move permanently for quite some time. Luckily my center (Pittsburgh) was one of the best centers...
Electric blanket or heating pad but don't use those if you're wearing oxygen obviously. Tylenol-Acetaminophen may help some if you are unable to take NSAIDS.
Hugs,
If they are unable to grant your needs as aboveallislove mentioned definitely a mask and gloves too! Maybe change into different clothes when you arrive home from work? I hope you can find a workable solution!
Hugs,
Very glad to hear she was excepted elsewhere! I auditioned to attend a performing art's school here in America when I was 10 years old but I was rejected. While the reasoning was not explained I'm 100% percent sure they turned me down because of my sickness. Not everyone will see past the talent...
I can only imagine your frustration. Hopefully a few of the other active mom's on here will chime in. From my knowledge the Gold Standard for CF screening is a sweat test. Are you seeing Dr.'s at an accredited CF center? If you're not I highly suggest looking into a hospital with CF credentials...
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