Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. beautifulsoul

    Toe Nail Fungus

    Where can I find those socks?? My feet sweat a lot too! I've always wondered why. Not only when it's hot but even at room temp they still seem to be soaked. I caught fungus a while back and the Dr. prescribed the clear nail polish with medicine in it. Took a long time to get rid of it! Thanks...
  2. beautifulsoul

    Reese got a lung transplant

    FANTASTIC News!! :) I had my transplant when I was 15. I'm not so sure it's a mutation issue. Everyone has transplants at all ages who have different mutations.
  3. beautifulsoul

    Wisdom teeth extraction

    I had all 4 wisdom teeth taken out under general anathesia recommended by the oral surgeon pulling them out. I was 19. He wouldn't have direct assistance at his office if something were to happen there. It was a precaution issue. I was fine with it.
  4. beautifulsoul

    sweating in the night

    Possible Causes: Antibiotic reaction, Infection, Low blood sugar, sudden weather changes.
  5. beautifulsoul

    High Calorie weight gain snack

    I will have to look for those! I'm near target a lot. I'll stop in next time and try to find it! Sounds like something I might like :) Thanks for the suggestion.
  6. beautifulsoul

    A new way to fix constipation/ staying regular

    Thanks for further info LittleLab. I'm currently taking 2 caps of Miralax per day plus stool softener 2x a day and Reglan. GI and CF Dr's insist it's the best solution currently available. Will not suggest anything else.
  7. beautifulsoul

    High Calorie weight gain snack

    I just discovered Nutella a few months ago. It's loaded with Calories! It goes well with several foods. My favorite is dipping pretzels in it. You can also try crackers and fruit (strawberries!) If you make any recipes with chocolate use the Nutella instead.
  8. beautifulsoul

    Postcards that make you happy

    What a wonderful idea. I'll check it out!:) Thank you for sharing.
  9. beautifulsoul

    Doctors save woman's life by removing her lungs

    I saw this story going around on Facebook. I can't imagine how incredibly scary it was to be in that situation. If patients get to that point it's definitely a do or die moment. Might as well go for it!
  10. beautifulsoul

    Need ideas

    Well, CF interaction at any age is never a good idea. Dangerous really. You can still raise money without the direct involvement of adults with CF. My mom organized a Golf Outing once a year a few times for my personal transplant expenses through COTA. Not going to lie, It's A LOT of work to...
  11. beautifulsoul

    nasal polyps and deviated septum

    Treasure- Thank you for the useful information you provided and words of encouragement! I sure do hope it gets easier sooner rather than later. I'm not sure exactly how many CF patients my ENT works with but he definitely isn't "new" to treating those with CF. He definitely has knowledge of all...
  12. beautifulsoul

    nasal polyps and deviated septum

    Thank you for your encouragement Stefanie. That's great that you haven't had any recent issues! I really hope my dr. knows what he's doing! I'll be devastated if my nose gets worse. It's already somewhat deformed from my cleft palette. I've seen several episodes of Botched and there are so many...
  13. beautifulsoul

    nasal polyps and deviated septum

    NMW - I researched a little on google and everyone seems to be mentioning how uncomfortable it is afterwards and how it was worse than they thought it was gonna be. Thanks for your input! Dank - that is some interesting information. May bring that up to my Dr.! Jet - I do use Flonase but not...
  14. beautifulsoul

    Double Transplant for CF?

    Oboe and LittleLab are on point with this. I have nothing to add but just wanted to say Good Luck! Hopefully you can hold off on the transplant for as long as possible! Smart idea listing now in case things take a drop too quickly. I've heard great things about Cleveland Clinic. I know serval...
  15. beautifulsoul

    nasal polyps and deviated septum

    I just went to the ENT Dr. on Monday because I've been having obvious signs of polyps. I can't breathe from my nose at all. It sounds like I have a cold because the polyps are blocking my airway. I've had polyps removed at least 3 or 4 times in the past 6 years. Dr. has mentioned they will...
  16. beautifulsoul

    A New Home for CysticFibrosis.com!

    So excited to finally see the official announcement! Happy Holidays! I'm very thankful to have this supportive community :)
  17. beautifulsoul

    I'm 36!

    Happy Belated Birthday! Those numbers are amazing! We are grateful to have you a part of our community :)
  18. beautifulsoul

    Depression & anxiety (a new way to cope)

    Hey everyone :) Hope you all are having a good if not decent week. I can't believe it's November already! Feels great here in Cincinnati today. Unseasonably warm at 73 degrees. Wish it would stay that way. Anyway, We get a lot of posts asking about how to deal with depression & anxiety so I...
  19. beautifulsoul

    What is your dream hospital?

    Wow, lucky to those who have fridges! As far as luxury items I would like to see bigger flat screen t.v.'s. In patient rooms. Also a more comfortable pull out chair for my family member to sleep on since I alwyas have someone with me. As Bill said definitely better food! I'm a creative person...
  20. beautifulsoul

    Thankful Thursday 10/22

    Thank you Jeanne! I'm thankful to God for giving me artistic talent. Hugs,
Top