Cystic Fibrosis Forum (EXP)

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  1. beautifulsoul

    Psychologists??

    I agree with Jaimers. Some people find therapy helpful, others do not. I personally do not find it helpful based on my current needs. In my world a pill isn't going to magically make sadness go away. Again, just my personal experience. A good therapist is hard to find. I've been to at least 4-5...
  2. beautifulsoul

    Happy Birthday to JORDYSMOM

    Happy Birthday Stacey!! (^) (^) Thinking of you today. Much love and hugs (L) I'll see you over on Facebook lol
  3. beautifulsoul

    Weekly pill container

    Ditto! I'm really bad at remembering to refill meds. My pharmacy offers automatic refill options. I have that for most of my meds. Very rarely do I accidentally drop the weekly container on the floor and pills go flying every where. Such a pain to try and find them all. Has this happened to...
  4. beautifulsoul

    Travel question (a little wierd)

    They barely check your carry on!? They put our carry ons though an X-ray scanner in the US! They make us take off belts, jewelry and take out everything in our pockets to scan us. Such a pain but I know they are protecting our country.
  5. beautifulsoul

    Travel question (a little wierd)

    I don't see a problem with it. I would just say it is medically necessary if they ask about it. Pack it together with all of her other medical things and I don't think they will ask. They will assume it's just another medical need. I had some weird stuff in my medical bag a few months ago when...
  6. beautifulsoul

    Thankful Thursday

    Ratatosk- That is fantastic that he is so active! Anything to keep those lungs healthy! I have always been scared to try anything new. He sounds very excited to try new things. What a great quality to have. dmac - I'm so sorry to hear about your mother. It sounds like she lived life to the...
  7. beautifulsoul

    Weekly pill container

    My dad used to do that with the liquid meds, draw it up for me before he left for work Or he would take a sharpie and mark on the plastic vial/cup where I had to fill it up to. The different colored syringes is such a good idea with all the pink!! I don't think I would have thought of that. Very...
  8. beautifulsoul

    Useless things you learned in school.

    I love how they told us in second grade we would only write in cursive as an adult. They acted like printing was out of the picture. Well, now schools are not teaching it anymore and have replaced it with typing classes! I sign my name in cursive obviously but that's it. Whew, because my...
  9. beautifulsoul

    Weekly pill container

    That is great!! He will do well on his own :) CFers need to learn to be independent starting young.
  10. beautifulsoul

    Weekly pill container

    I got mine at my local grocery store pharmacy where I get my meds filled. This is what I have: http://www.amazon.com/Weekly-AM-Push-Button-Pill-Planner/dp/B001OK1YUA/ref=sr_1_1?ie=UTF8&qid=1438291327&sr=8-1&keywords=weekly+pill+organizer They even have ones for through out the entire day...
  11. beautifulsoul

    pickles anyone?

    LOL Every time I read this thread I go eat a pickle and chips!!
  12. beautifulsoul

    pickles anyone?

    I have high blood pressure. Take meds for it. Never heard of this being a CF related issue. Another food I love that is very salty are Bugels! The crunchy things that look like pointed fingers lol I used to eat them off my fingers as a kid. My husband hates when I eat those to. haha Will not...
  13. beautifulsoul

    Weekly pill container

    Nothing says it's the end of the week like an empty pill container! Is it just me or does time just fly by? It seems like I just filled my meds a few days ago. How many of you have weekly storage or do you just take them straight from the bottle? I never had a weekly container until after my...
  14. beautifulsoul

    Dating another CF person

    Great common sense thinking! That is reality to the tee.
  15. beautifulsoul

    Dating another CF person

    You are right about that. This sounds kinda stupid but when I was a kid/teen I would specifically distance myself from male CFers around my age because I didn't want to fall for one. (Example: Don't message/text everyday) It's fairly easy to avoid the situation to begin with. Set some...
  16. beautifulsoul

    Thankful Thursday

    Welcome to my newest blog! Please join this weekly blog post with me. Today I'm thankful for my husbands career. He is a Co-manager at a grocery store. He just received his yearly raise and it's the highest he's gotten so far! He is very dedicated and works hard. Just like any other job there...
  17. beautifulsoul

    so frustrated...major drop in lung function so fast

    I personally haven't experienced such a rapid decline. Mine was slowly over time and I never could bounce back with out the need of a transplant. The infection I had ultimately took over. Sorry my experience isn't helpful. I don't really have any advice but just wanted to send positive vibes...
  18. beautifulsoul

    Is there any fb pages for mom's

    ugh, I think I know which group you're talking about. I never post in it but I see what is said everyday. People can be so cruel. I understand this disease isn't all happiness & rainbows but people in that group need to find something else to occupy their time rather than to pick fights with...
  19. beautifulsoul

    Dating another CF person

    I know of a few people who have. There is a CF on couple on facebook that is married but I'm pretty sure they both ended up with transplants. I'm not sure how sick they were before they met each other. I would not recommend it because of cross infections. Can be deadly to both people. I Don't...
  20. beautifulsoul

    pickles anyone?

    I love pickles!!! I crave anything salty. Now I'm craving a pickle lol... My pain management Dr. Said a spoonful of pickle juice is good for muscle aches. Haven't really noticed a difference with as many pickles as I eat. My powerful salty breath is sometimes too much for my husband! :D
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