Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. K

    Who do you see when you can't get to clinic?

    This happened to me. Really bad pain by ribs in a specific area. I ended up coughing up a small amount of blood and pain was gone. I believe it was a mucus plug. Whenever I am bad enough, my doctor just says to go to the emergency room for basically anything. I try to treat myself and if that...
  2. K

    Pain in lung

    The pain ended up going away after I coughed up that blood. There was a small, about half the size of a pea, hard piece of something I felt in the blood. Im not a fan of calling the doctor because he will just tell me to go to the ER or prescribe antibiotics. I don't take antibiotics until I...
  3. K

    Drainage from nose

    The white things at the back of your throat are probably tonsil stones. I get them too and they totally suck. I get them when my immune system is down and I'm fighting something. The only thing I have found to get rid of them quick is to do my nutribullet with lots of fruits and veggies and a...
  4. K

    Pain in lung

    From what Im reading, Im starting to think its a mucus plug. Any advice on getting it out if it is? It does feel like a kidney stone in the lung
  5. K

    Pain in lung

    I started to get intense pain in that same area. I coughed up blood and then the pain went down. It is definitely something with my CF. Im guessing my lungs are inflamed. Never had this happen before. ugh :( I am coughing up blood now every 2-3 months.
  6. K

    Pain in lung

    It doesn't do it when I cough either. Its just shooting pain every min or two.
  7. K

    Pain in lung

    No its deeper and does not feel like muscle. I havnt done anything to pull a muscle. I don't feel it more with deep breaths, I jut feel it about every min. I swear, its always something with cf
  8. K

    Pain in lung

    I am having a pain in my lung under my armpit put closer towards my back. I don't feel it too much when Im sitting but when Im moving around, I feel it. I almost couldn't get through my work shift last night but I had no choice but to keep working. Is this caused by inflammation maybe? I feel...
  9. K

    Non Tuberculosis mycobacteria

    Can someone tell me what is the difference between MAC and mycobacterium abscessus or is it the same thing? Im confused. I know I have MAC
  10. K

    What things did CF Center tell you to do/not do re avoiding infections

    I wasn't DX til 15 so I did all the things listed not to do. I was dumped in manure, ponds, played in mud, leaves etc. I was exposed to every germ you can think of. I rode horses and competed in different horse shows around California. I had a flash back today when I use to have that inflatable...
  11. K

    How often?

    I am going to look into the essential oils. I wish I could figure out how to stop this coughing up blood. I believe I have lessoned the servarity with some natural stuff I have but its still happening :/ Its one thing that really worries me and I Dont fully understand why it is happening
  12. K

    Tricks of the trade!

    The coconut oil you can mix into everything. Coffee, oatmeal, shakes, or just by the spoon. I take it by the spoon. I saw on dr oz the other day about having a spoon full of olive oil a day to keep things regular. He suggested you even put it in your cerial lol. I'm weird and that sounded good...
  13. K

    Tricks of the trade!

    Mine are to always keep your feet warm and wear socks. I even bring socks to the movies during summer when I wear sandals. I will cough If they are not warm. Another tick for when you have that dry constant cough at night time is to get warm tea, fresh lemon, honey, and vitamin C powder and...
  14. K

    Tricks of the trade!

    I wanted to start this for tips to share with other CFers that you have found to work well for your body and CF. We have the disease, we know our bodies, why not share our secrets!
  15. K

    How often?

    How often do you all get your standard illness that normal people get. Sore throat, fever, cough, in bed? Its been almost a year since I have gotten sick, before that... it was 6 months. I am a food server and I had a table come in with all sick women, 8 of them, coughing all over the place...
  16. K

    Joint Pain

    Ive been getting more joint pain and still on no meds. I think its an autoimmune thing that I have developed. Low immune system and I get the joint pain. The body reacting to something with my immune system. A lot has to do with sleep, the immune system and joint pain. I also get night sweats...
  17. K

    how common is it to get kidney stones when you have CF.?

    Im DDF508 and I had a 1cm stone. One of the biggest the doctor had seen. It was removed when I was 27 or 28. Im 29 now.
  18. K

    blood

    I am interested to know how often you all cough up blood. I coughed up blood again after my work shift. I coughed it all up in my hand because it was coming up quick. I did make it to the bathroom where no one saw, I felt the gurgling. It seems to be ever 6 months I am doing this and it lasts...
  19. K

    Has anyone had his happen

    I think I am starting to get arthritis. I am going to ask my cf specialist to refer me to someone but what can they do for you? Has anything helped you?
  20. K

    Heat Rash? (variant, mild CF)

    I have a mild progression of CF. I have gotten an all over rash before but I assumed it was bad shrimp that I ate that day. I cant remember if I was out in the sun or not. I did get a shot in the butt and it went right away. I have been getting a small rash a lot lately around my joints along...
Top