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Im going to try some vitamin D. I have been having a craving for cheese a lot often. I also lost weight due to lowing my carb intake because of the pre diabetes. I also don't eat as often because I don't have the money and had to cut down on groceries. I was slightly over weight before and now I...

I woke up with my joint pain yesterday. Just a little pain in my knee. I did my exercising anyways and was a tiny short of breath when running. I went to work that night and joint pain was getting a lot worse. It was now in all my major joints. While at work, I developed a different kind of sore...

I have Mac also. I noticed it was starting to make my lung function decline. I was coughing up blood in cups. Its was crazy. I recently started running out side for 40,mins 3 times a week. I feel amazing. I was having problems talking to customers at work. I would get out of breath from the...

I was having problems reciting the dessert menu at my work because I am a food server. Its a long menu and reciting everyone quickly put me out of breath. I started running outside again because I couldn't handle feeling out of breath at work. One time running, the dessert menu was easy to...

With the aspergillus in your nose, did you smell a weird smell in your nose? The smell gets stronger in the shower. I swear its the smell of bacteria or something. Its for sure in my nose because I always smell it. I just had polyps removed, smell went away, then back again.

I didn't, but yesterday it was a lot better. Today it seems to be gone, thank goodness! Im ready for CF to throw its next battle at me :\ hopefully the ddf508 drug hurries because Im getting tired. And I hope it helps, Ill take any kind of help lol

xylitol is in many natural nose sprays. It is supposed to "kill" bacteria. I am not sure if kill is the right word. Its worth a try! Ive had 11 polyp surgeries so Ill try anything. The nasal spray that I am using has it in it. I do like it so far. I mixed my own once and got a nose bleed. Just...

Fever and night sweats happen to me often now. I believe it means my body is fighting something. I had two nights of fever followed by a night sweat the following night. Soaked the bed completely. I am starting to get use to it :\

Hello Jaimers, I don't think its an allergy because im not sensitive to that kinda stuff at all. I was doing some research, and I think its an autoimmune thing. I think because I had no sleep and then I drank alcohol. This isn't a first time for me not having sleep and drinking alcohol but it...

Hello, so I went to NY for a family's wedding. I took the red eye out and got no sleep all night. I had a fever the next couple nights. I was freezing and put a ton of blankets on me. The day of the wedding, I had a couple beers with everyone. By the end of the night, my ankles were so swollen...

Hello Julie, I am not on Iv or neb anti, I am having sputum cultures every 3 months at the CF. I have staph, MAC, and aspergillus. I have had 11 sinus surgeries that are CF related to get rid of nasal polyps. 2 surgeries were from kidney stones which I believe is CF related. I have been...

This stuff works! I tried it after Angelo wrote on my post about coughing up blood. I have not had any bleeding since. Probably the change in elevation when you were doing the leg exercise. I had mine when I went to sit down in my car. I have only seen little blood clots in my mucus lately. I...

I called social security today. I found out that I have 37 credits towards disability and the woman said that is enough. She said I would make 1100 which is a little low. Im gonna talk to the social worker at my cf clinic and then talk to some law offices. The woman at social security said that...

I work part time as a food server. Do they look down on being in school also? I looked over the different forums, what 3 CF requirements is everyone talking about? What are the 3 things cfers need to qualify? I didn't understand what everyone was talking about. Thank you!

Forgot to add that I have staph, MAC, and aspargellis

Forgot to add that I have staph, MAC, and aspargellis

I wanted to get some info about going on disability. Here is a general background of me. I am low income, food server and in school full time. I have very little family, only my mother who lives in the same state as me but can not afford to help me financially. I am single, not married, and I...

I just got finished with my 11th nasal polyp removal and my 13th surgery overall. The other 2 were for kidney stones. I have had really bad hemoptysis a couple months ago. Do you think its possible that the all anesthesia could be breaking down my lungs allowing so much blood to come out. I...

I have cystic fibrosis and I am doing a PowerPoint presentation tomorrow in my anatomy class in order to spread awareness. I am handing out straws as a demonstration so they can see what it is like to breath with cystic fibrosis. Would it be correct to say that someone on the transplant list...

Thank you, I get the concept a lot better now. I'm going to get my records and look into this further. I do not believe I have any enlargement. The cardiac doctor just said to have another echo in a year. This disease surprises me more and more everyday with how evil it is.