Cystic Fibrosis Forum (EXP)

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  1. R

    Allergic reaction to Bactrim Please Help !!!

    I have taken Bactrim before and always had some side effects(shortness of breath, no appetite) , but always stuck it out because the bacteria I have was sensitive to it . But this time I took it almost a week 800 mg 3 x a day . By the 7th day I felt like I had pneumonia. My lungs were tight I...
  2. R

    Friends Don't Get It. Frustrating!

    My husband is supportive in some ways, but not in other ways . He has started planning things to do without me .I have good days and bad . I have been sick with this sinus drainage for about a month now . I am finally getting better. He took a trip to friends house over the weekend without me...
  3. R

    Hypertonic Saline tolerance test?

    My bleeding is in my throat not my lungs and I don't get that very often . I tolerate the HTS very well. I can handle a little throat irritation vs not being able to breathe.I don't have many options as far as antibiotics go . I have cenocepacia and B cepacia complex. I am allergic to...
  4. R

    Hypertonic saline burning your throat?

    When I first started using hypersal I didn't think I would ever get used to the burning in my throat , but it does get easier . For me it did. But like mamerth said when I get drainage or a cold I have to slack off because it just makes me cough till my throat is raw.
  5. R

    What is your FEV1 Score?

    My fev 1 was 44 on Friday
  6. R

    Will VX809/770 be effective in reducing mucous production?

    I have found as I get older I have more mucus . I'm not sure if it's because of the bugs I have or me getting older.
  7. R

    Will VX809/770 be effective in reducing mucous production?

    I have found as I get older I have more mucus . I'm not sure if it's because of the bugs I have or me getting older.
  8. R

    Shortness of breath with Bactrim

    Oh and I have good news!! My youngest daughter is having a baby girl in 2-3 weeks. And her husband was tested & he is not a carrier so that was a big relief.
  9. R

    Shortness of breath with Bactrim

    Oh and I have good news!! My youngest daughter is having a baby girl in 2-3 weeks. And her husband was tested & he is not a carrier so that was a big relief.
  10. R

    Shortness of breath with Bactrim

    I have been taking 800 mg of bactrim 3x a day for almost a week now. I have noticed that I have shortness of breath ( and heart is racing) that I didnt have before. It's not the same mucos stuck in there and i need to get it out . And does anyone else have reoccuring UTI . My PCP said it was...
  11. R

    Shortness of breath with Bactrim

    I have been taking 800 mg of bactrim 3x a day for almost a week now. I have noticed that I have shortness of breath ( and heart is racing) that I didnt have before. It's not the same mucos stuck in there and i need to get it out . And does anyone else have reoccuring UTI . My PCP said it was...
  12. R

    Cold medications

    I take Zyrtec( I actually break them in half) and use flonase nasal spray . If it's that bad you may need something stronger. The pharmacist told me Zyrtec doesn't have quite as much antihistamine as the others . The antihistamines dry up my nasal stuff but also dry my lungs out pretty bad...
  13. R

    Cold medications

    I take Zyrtec( I actually break them in half) and use flonase nasal spray . If it's that bad you may need something stronger. The pharmacist told me Zyrtec doesn't have quite as much antihistamine as the others . The antihistamines dry up my nasal stuff but also dry my lungs out pretty bad...
  14. R

    Cold medications

    I take Zyrtec( I actually break them in half) and use flonase nasal spray . If it's that bad you may need something stronger. The pharmacist told me Zyrtec doesn't have quite as much antihistamine as the others . The antihistamines dry up my nasal stuff but also dry my lungs out pretty bad...
  15. R

    who can contract cepacia from me

    I have ask my dr. about it but that was before i found out she has asthma. And the dr. that she went to had to look it up he didn't know anything about it. I read a couple of different articles on this also and 2 said asthma patients could get cepacia and 1 said no. Maybe now my husband and...
  16. R

    who can contract cepacia from me

    I have ask my dr. about it but that was before i found out she has asthma. And the dr. that she went to had to look it up he didn't know anything about it. I read a couple of different articles on this also and 2 said asthma patients could get cepacia and 1 said no. Maybe now my husband and...
  17. R

    who can contract cepacia from me

    I have ask my dr. about it but that was before i found out she has asthma. And the dr. that she went to had to look it up he didn't know anything about it. I read a couple of different articles on this also and 2 said asthma patients could get cepacia and 1 said no. Maybe now my husband and...
  18. R

    Anyone else dreading the upcoming months?

    I always dread it too . To the point now where I cant really catch anything . My lung function is too low and the bacteria is resistant to all the antibitics. So it is very stressful. Mostly because people don't want to understand in my husband's family.
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