Cystic Fibrosis Forum (EXP)

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  1. R

    Dealing with dumb people that think CF is contagious

    I have had a lot of problems with my stepson and his daughter (she's 3) for a while . The stepson lives here and he gets her 2weeks at a time and every time he gets her she is either sick when she gets here or gets sick while she's here. I caught something from her right after memorial day. And...
  2. R

    Dealing with dumb people that think CF is contagious

    I have had a lot of problems with my stepson and his daughter (she's 3) for a while . The stepson lives here and he gets her 2weeks at a time and every time he gets her she is either sick when she gets here or gets sick while she's here. I caught something from her right after memorial day. And...
  3. R

    Dealing with dumb people that think CF is contagious

    I have had a lot of problems with my stepson and his daughter (she's 3) for a while . The stepson lives here and he gets her 2weeks at a time and every time he gets her she is either sick when she gets here or gets sick while she's here. I caught something from her right after memorial day. And...
  4. R

    lil bro got b.cepacia news today

    Sorry was thinking about the gene type
  5. R

    lil bro got b.cepacia news today

    Sorry was thinking about the gene type
  6. R

    lil bro got b.cepacia news today

    Sorry was thinking about the gene type
  7. R

    lil bro got b.cepacia news today

    Lou Lou which genomovars are considered worse and which are milder. I'm not really all that familiar with those. Don't know which I have. I asked my doctor to check for it and she said my insurance wont cover it
  8. R

    lil bro got b.cepacia news today

    Lou Lou which genomovars are considered worse and which are milder. I'm not really all that familiar with those. Don't know which I have. I asked my doctor to check for it and she said my insurance wont cover it
  9. R

    lil bro got b.cepacia news today

    Lou Lou which genomovars are considered worse and which are milder. I'm not really all that familiar with those. Don't know which I have. I asked my doctor to check for it and she said my insurance wont cover it
  10. R

    lil bro got b.cepacia news today

    I have 2 strands of B cepacia , cenocepacia and b cepacia complex. I have bad days and not so bad days . The biggest thing for me is not catching things (colds and such). I went for 2 years with no problems no hospital stays till I caught a virus and it gets rough then. As for the isolation the...
  11. R

    lil bro got b.cepacia news today

    I have 2 strands of B cepacia , cenocepacia and b cepacia complex. I have bad days and not so bad days . The biggest thing for me is not catching things (colds and such). I went for 2 years with no problems no hospital stays till I caught a virus and it gets rough then. As for the isolation the...
  12. R

    lil bro got b.cepacia news today

    I have 2 strands of B cepacia , cenocepacia and b cepacia complex. I have bad days and not so bad days . The biggest thing for me is not catching things (colds and such). I went for 2 years with no problems no hospital stays till I caught a virus and it gets rough then. As for the isolation the...
  13. R

    checking for cf on unborn fetus through blood test

    Yeah I don't know what mutation i have. I know she is a carrier . I didn't think they could test for that on a fetus.
  14. R

    checking for cf on unborn fetus through blood test

    Yeah I don't know what mutation i have. I know she is a carrier . I didn't think they could test for that on a fetus.
  15. R

    checking for cf on unborn fetus through blood test

    Yeah I don't know what mutation i have. I know she is a carrier . I didn't think they could test for that on a fetus.
  16. R

    your thoughts

    Can you get help from family till you get your disability? My lung function is in the mid 40's too and there is no way I could work. Of course I am 46 too but still , you are a better person than me to keep at it. I also don't have the CFRD yet. I know that makes a big difference.
  17. R

    your thoughts

    Can you get help from family till you get your disability? My lung function is in the mid 40's too and there is no way I could work. Of course I am 46 too but still , you are a better person than me to keep at it. I also don't have the CFRD yet. I know that makes a big difference.
  18. R

    your thoughts

    Can you get help from family till you get your disability? My lung function is in the mid 40's too and there is no way I could work. Of course I am 46 too but still , you are a better person than me to keep at it. I also don't have the CFRD yet. I know that makes a big difference.
  19. R

    Strep throat? vs viral

    The sore throat could be caused by drainage if there's no fever. My PCP told me that a sore throat or swollen tonsils can cause more mucus and congestion in the lung. I had tonsillitis about a month ago after getting a virus that started out with a sore throat and then went to my chest...
  20. R

    Strep throat? vs viral

    The sore throat could be caused by drainage if there's no fever. My PCP told me that a sore throat or swollen tonsils can cause more mucus and congestion in the lung. I had tonsillitis about a month ago after getting a virus that started out with a sore throat and then went to my chest...
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