Search results

I called my doc to get some meds b/c I'm sick again (Im sure I caught it back from Olivia). Well while on the phone she says that I am culturing a bacteria, gram-negative, she hasn't called b/c they don't have it isolated yet. Its could be nothing or it could be a bad bug and need like 18 months...

We havent gotten the CF test done yet, waiting on the hubs to get home on R&R in the next 2 weeks. Ok so today she had her 6 month well baby. Well her growth has really leveled out. They think its just b/c I was sick and my supply went down so I was told to feed her every 2 hours, and pump 30...

I was searching for a topic on this but I couldnt find one. I wasn't sure if those of you with G551D had even seen the so far promising effects of the VX-770 pill. Heres a link from cff.org <a target=_blank class=ftalternatingbarlinklarge...

OK so I am culturing MRSA. Well y doctor thinks that if I a, doing fine and getting better without treatment of the MRSA then we should just leave it alone. Well someone has brought up the transmission of MRSA through breastmilk. My question is for those CF momma thats breastfed and cultured...

Anyone done it? I need info. Like cost & insurance? Also can you have a doc send the blood to them? I dunnno really anything and everything I need to know about it would be awesome

So its been 4 years since I've cultured MRSA...and it decides to rear its ugly head now. UGH I'm totally bummed. The only treatment I know of is vancamycin...and as far as I know nursing momma's can't use it. (Have any mommas done vanc & nursed? Effect on baby?) Has anyone ever just left there...

So Im down one week of antibiotics, hopefully I only have 1 more to go. I did find out though that I am culturing staph that is resistant to azithormycin which really really sucks, but it does appear to be sensitive to one of the meds I am doing now. *FYI I like this new topic!

When I got pregnant my husband was tested and he was not a carrier for the 94 of mutations they tested for. However I was wondering everyones thoughts on, should I still get her tested? Also, I am currently in the hospital with IVs. Well I have cultured staph and psuedo. The sensitivities...

I asked this in another foruma but I wasn't sure who would see it so Im going to post it here too. I am curious as to how many mommas are breastfeeding there CF babies, or have breastfed them. Did you exclusivly breastfeed? How long? Do you think it has helped better there health? Did you...

I have a very curious question for the mothers of CFers. How many of you exclusivly breastfed? How many of you breastfed at all? If you stopped why? If you didn't breastfeed, do you wish you would have and think it would have helped? If you are/did breastfeed do you think it is helping in the...

Hi everyone. I just recently had a daughter. When it came time for her 2 month check up I started researching vaccinations. In my quest for knowledge on them, I found a whole lote of information on living naturally in general. We have since began to eat organically, my daughter doesn't get...

I've been coming to this site for a while now, but for some reason I stopped. There are a few names I remember but ALOT of new ones. I wanna get reaquainted with everyone. A little update: Well health wise I'm "alright". I'll be 30 weeks preggo on friday. Apart from my asthma going CRAZY...

So with all the mrsa stuff going around on the news I was curious as to what everyone else thought. Anyone worried about getting it? I've had it before but haven't cultured it in about 3 years. While I know that most of what on the news is talking about skin MRSA isn't it just as contagious to us?

So my reg ob (she has lots of experience delivering babies to CF mommys) said that at 36 weeks they will do an amnio and if the babies lungs are developed they will induce my labor. They don't want the baby restricting my air flow? Has anyones docs told them this? I don't mind I knwo that most...

So its time to be honest with everyone, and ourselves. Who on here really does EVERYTHING the doctors say and there meds and stuff EXACTLY the way it shouls be done? Now who is more lax with it... kind of hit and miss???? I'm a hit and misser. I'm good about doing them for a few days great...

So I've been out of "jail" for 11 days now. I noticed yesterday that I was feeling a bit tight in my chest. I've added in an extra albuteral treatment, but it still feels kind of tight. My cough is still dry, but I can't really take a deep breathe with out coughing. Anyone have this so close...

I could have posted this in the preggo board but I was afraid noone would see it. I am 12 weeks preggo, and the topic of breastfeeding is a VERY open topic when people find out you are preggo. I want to try it, however I was wondering the toll it takes on the CF body. Has anyone with CF...

Alright so yesterday I went to the doctor and WOW was I disappointed. My lung function went from 65% to 41% so I'm off to the hospital. I'll see ya'll In about 2 weeks!

I drink 1-2 boost everyday (they are like ensure). I was just wondering if I shoudl be taking pills with them? Does anyone else?

I am 19 and my husband is 25. He is in the army and will be deploying in late fall. We would really like to get preggo BEFORE he leaves. I have had a miscarriage before at 12 weeks. He has two kids from a previous marriage and no CF gene. My lung function was 56% at the last visit but I'm...