Cystic Fibrosis Forum (EXP)

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  1. E

    St Johns Wort

    Could this natural herb interfere with Creon, Pulmozyme and Albuterol? Is this safe for CFers?
  2. E

    How can lung transplants change in 10, 20 years?

    The idea of having to get a transplant one day freaks me out, like when people say the success rate is 90% it doesn't seem all that great, cause what if I were that 10% and I die in the hospital?! is there any way of knowing what the future holds for lung transplants, like 5, 10, 15, or even...
  3. E

    Is any other CFer jealous of other diseases?

    Alright. I feel horrible for saying this, but I wanna see if other people like me think like this. I feel jealous of other diseases and conditions like cancer and diabetes and asthma, because they get so much attention, for me, when someone says they have asthma or cancer it's an automatic "Oh...
  4. E

    Can Mucinex help a CFer?

    I don't see why it couldn't personally, being sick for a normal person is kinda like a day in the life of a CFer (when it comes to mucous), right?
  5. E

    Does water really help loosen mucous? Other ways to get rid of it?

    So I never drink water, well, rarely. I hate water, I hate the taste of it. I do drink a lot of liquids in general like Hawaiin Punch or milk, but rarely do I drink just water. If I were to drink, like, 2 bottles of water a day would I notice a difference in being able to get the mucous out (I...
  6. E

    Would this be a good weight gainer?

    Would this be a good supplement for me to use? I cannot call my doctor and ask so I thought asking on here would be second best. This product is also highly reviewed too.
  7. E

    I used an E Cig today, I'm a bit worried

    AlLight, so my friend is trying to quit normal cigs, so to help him his parents got him some e cigs with different flavors. He said I should try it, and I thought why not. It's just nicotine and water vapor with some flavoring. And I kinda liked it, throughout the day, I was using it here and...
  8. E

    If my stools are good, does that mean I'm digesting all of my food?

    So my stools have been incredibly good lately (hope I'm not grossing Anyone out lol) but the weird part is, is I haven't really been taking my pill all that much. Like yesterday I had a bunch of cereal and milk with no pills, and the only time I did take them was for dinner, where I had an 10...
  9. E

    My pills taste and smell horrible

    I take Creon, and this bottle of pills in particular taste horrible. It's like they went bad or something, even when I take it out of the capsule and put it in yogurt I still taste them. The bottle of pills taste and smell different from the other bottles I've had too. Whats wrong with these...
  10. E

    My pills seem to not be working? Or is it my Metamucil I'm taking?

    So I've been taking them very good for the past week and my digestive tract seems to not be working so good. The drs prescribed 3 for meals and 2 for snacks. Ive also been eating very healthy. could it also be the Metamucil I've been taking? I took it earlier this week, like on Monday, and...
  11. E

    How do I fix bloating and looking like I'm a pregnant guy?

    So here's a recent pic of what I look like after an intense workout and exhaling all the air in my lungs and not eating for 3 hours. What can I do to look like that everytime? Like, everyday after not eating for a few hours. Most typically, my gut hangs out yet when I lay down my rib cage is...
  12. E

    I'm a little confused with what happens when I don't take my pills

    Alright. So say I eat 2,000 calories today and had my enzyme each time I ate, yet I don't want to go over that 2000 calorie limit, if I were to have a big bowl of 900 cal pudding WITHOUT my enzymes. Would I still have eaten 2000 calories? Or would I still have had/absorbed those calories from...
  13. E

    If I were to do a high protein/fat crash diet, would that be ok?

    So I wanted to know. Would it be ok if I did the Rapid Fat Loss diet by Lyle McDonald? It's a high protein diet that burns a lot of fat while burns as little muscle as possible (it burns very little, if any muscle). It's a diet where I'm supposed to eat around 1200 calories, but considering I...
  14. E

    How long do you have to eat after taking pills? Do you have to eat within 5 mins?

    Do you have to have something in your stomach at least within 5 mins of taking them? I'm not talking about you only have 5 minutes, but I mean you should have something in your stomach within 5 mins? Also, what happens if you take your pills yet you don't eat enough? So if I took 3 pills and my...
  15. E

    Do I need to take a pill (enzyme) to have a protein drink?

    This is not a shake, but drink. It is the G Series Post Game Protein Recovery Beverage (3) Mixed Berry. To me, it tastes like any other Gatorade drink except with 16 grams of protein per drink. The ingredients are: Water, sucrose, hydrolyzed whey protein (milk), hydrolyzed collagen, dextrose...
  16. E

    How do YOU clean your nebulizer?

    The drs told me just hot water (really hot). I'm kinda confused, cause I always thought that vinegar would be stronger. But they said to stop using vinegar cause it has gotten stronger (the cf virus or whatever). Do I have to clean my nebulizer after every use or can I just let it dry after I...
  17. E

    I'm always tired!

    So when I went to the docs, they said I was low in vitamins A,D,E, and K (wonder why :rolleyes:). Do those vitamins support energy? If I start taking my special CF vitamins (specifically with high amounts of A,D,E,K ) what difference will I feel and how soon?
  18. E

    Well, Monday is the day I'm going to start eating really healthy and working out hard

    Any advice or tips? I'm planning on eating 200-300 calories below my maintenance to help with the stomach fat. But I have a question, does anyone know any way I can calculate how many calories I burn a day? With CF, approx. how many more calories would I burn compared to someone else like me...
  19. E

    Is it just me or does Creon taste nasty?

    Like at school when I go to the nurses to take them with water, they taste really gross for some reason. Anyone else find this the same problem?
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