Cystic Fibrosis Forum (EXP)

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  1. E

    Fat loss supplements

    So I'm wanting to use the following supplement to help with fat loss. I've tried asking my doctor (he says text him any question any time) but he hasn't responded and I feel he's getting annoyed of me constantly asking if I can take different supplements. So I'm asking here, can you just look it...
  2. E

    Why must we have high calories?

    I don't exactly understand why other than, our body burns more. Where does the extra 1000-2000 calories go? How many more calories on spent on our breathing vs a normal persons breathing?
  3. E

    Bloating

    So when I first wake up, I almost always (not always though) look like I'm in good shape, like when I flex my stomach I can see abs decently. But as the day goes on, my abs look worse and worse and (it pains me to say this) I eventually have a bloated looking stomach. I don't know if s is...
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    Do I have malnutrition since I have CF even though I'm at a good height/weight?

    So since I have CF does that mean I automatically have malnutrition? im almost 18 i weight 155 lb. i am 5 foot 8 inches
  5. E

    What does the different mutations affect?

    So from what I understand, different gene mutations of CF affect different functions? So what does the delta f508 affect? How serious is this mutation?
  6. E

    Is this true?

    While most people have to stay away from foods with large amounts of fat and high calorie counts, the exact opposite is true for patients with cystic fibrosis. When somebody has this disease, their pancreas does not work the way it should. The body does not absorb enough glucose from the blood...
  7. E

    What lung percentage do normal people my age have and how much does that...?

    And how much does that percentage drop for them every year? My last check up said that I have 113% lung capacity (or whatever it is). How much does that percentage drop a year for someone with cf and how much does that percentage drop a year with someone who doesn't have it? What's the average...
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    When will there be a cure for the Delta F508 mutation?

    Cause I have that. When will there be a cure for both the pancreas issue and the lung issue?
  9. E

    Pulmozyme question. What can I do to get my breathing to 125%?

    So I have a question pertaining to Pulmozyme. How long can it stay out of the fridge for? Also, I accidentally dropped a vial into hot water (while cleaning nebulizers) and it was in there for maybe 5-8 seconds (had to get a utensil to get it out), did the Pulmozyme basically deactivate...
  10. E

    Does people with CF process fats differently?

    My dad always says that we do, yet I've never read that. I just read that we can't absorb stuff like that.
  11. E

    How can I lose fat safely?

    So I want abs really bad. I sort of do, but there is a layer of fat covering them. What can I do? How can I calculate how many calories I burn? From what I understand, cf makes you burn a lot more calories. If I ate healthy and I was strict with my diet, and I ate a calorie deficit, will that...
  12. E

    Marijuana and CF

    http://www.mcsocal.com/blog/marijuana-cannabis-and-cystic-fibrosis-a-case-study marijuana culture is sweeping the nation it seems, and there are tons of my school mates who smoke it. Out of curiosity, I wanted to do some research on it and stumbled across the following. I want to ask the...
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