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It's my understanding that PFT's have to be below 30 at their best before you can get listed. Someone with PFTs of 40 or 50 would not be eligible for tx even if their quality of life is poor. I currently have a friend who is trying to get listed with FEV 24%, but because she moved from a high...

I used to do TOBI/Colistin alternating months until I started Cayston. From what I know Coli has been used to treat Pseudomonas for a long time. I've never had any side effects from it, but I also didn't notice it made much of a difference for me. I might as well have been taking a month off...

I used to do TOBI/Colistin alternating months until I started Cayston. From what I know Coli has been used to treat Pseudomonas for a long time. I've never had any side effects from it, but I also didn't notice it made much of a difference for me. I might as well have been taking a month off...

I used to do TOBI/Colistin alternating months until I started Cayston. From what I know Coli has been used to treat Pseudomonas for a long time. I've never had any side effects from it, but I also didn't notice it made much of a difference for me. I might as well have been taking a month off...

The baby is totally healthy. I think she'd be fine too. My cousin said "when she gets a little older, I'm sure it'll be better"...until they have more kids. So I just have to stay away for the first year of all their kids lives? that's b.s. What bothers me the most is that I was the only one...

The baby is totally healthy. I think she'd be fine too. My cousin said "when she gets a little older, I'm sure it'll be better"...until they have more kids. So I just have to stay away for the first year of all their kids lives? that's b.s. What bothers me the most is that I was the only one...

The baby is totally healthy. I think she'd be fine too. My cousin said "when she gets a little older, I'm sure it'll be better"...until they have more kids. So I just have to stay away for the first year of all their kids lives? that's b.s. What bothers me the most is that I was the only one...

I have been culturing MRSA for a couple years now. I used to only culture Pseudamonas and Staph. Then it was PA and MRSA. Did my regular Staph change to MRSA? Also, and this is my important question: Can CFers spread MRSA to the general population? My cousin has a 7 month old baby and told...

I have been culturing MRSA for a couple years now. I used to only culture Pseudamonas and Staph. Then it was PA and MRSA. Did my regular Staph change to MRSA? Also, and this is my important question: Can CFers spread MRSA to the general population? My cousin has a 7 month old baby and told...

I have been culturing MRSA for a couple years now. I used to only culture Pseudamonas and Staph. Then it was PA and MRSA. Did my regular Staph change to MRSA? Also, and this is my important question: Can CFers spread MRSA to the general population? My cousin has a 7 month old baby and told...

I am so glad someone asked this! Currently, I live with my grandmother so all my stuff is in my room. I have my machines sitting on the floor in front of a night stand. I use the IPV machine which is heavy and ugly with lots of tubing, just like the vest, but not very common on this site. I...

I am so glad someone asked this! Currently, I live with my grandmother so all my stuff is in my room. I have my machines sitting on the floor in front of a night stand. I use the IPV machine which is heavy and ugly with lots of tubing, just like the vest, but not very common on this site. I...

I am so glad someone asked this! Currently, I live with my grandmother so all my stuff is in my room. I have my machines sitting on the floor in front of a night stand. I use the IPV machine which is heavy and ugly with lots of tubing, just like the vest, but not very common on this site. I...

I've never wanted to bring this up in clinic for fear I'm the only sufferer, but hopefully someone here will be able to help. I have a fairly bad issue with incontinence. I'm not preg and that was the only time I could find this topic discussed before when I searched. When I do treatments I...

I've never wanted to bring this up in clinic for fear I'm the only sufferer, but hopefully someone here will be able to help. I have a fairly bad issue with incontinence. I'm not preg and that was the only time I could find this topic discussed before when I searched. When I do treatments I...

I've never wanted to bring this up in clinic for fear I'm the only sufferer, but hopefully someone here will be able to help. I have a fairly bad issue with incontinence. I'm not preg and that was the only time I could find this topic discussed before when I searched. When I do treatments I...

Hey Anthony, I'd love to use you as a referral- this is a great idea. Right now I'm taking some sample Zenpep I got from my clinic, but they're about to run out, so I'll have to get a script filled. I didn't know this program was out there. Thanks for the link! What kind of info do I need to say...

Hey Anthony, I'd love to use you as a referral- this is a great idea. Right now I'm taking some sample Zenpep I got from my clinic, but they're about to run out, so I'll have to get a script filled. I didn't know this program was out there. Thanks for the link! What kind of info do I need to say...

Hey Anthony, I'd love to use you as a referral- this is a great idea. Right now I'm taking some sample Zenpep I got from my clinic, but they're about to run out, so I'll have to get a script filled. I didn't know this program was out there. Thanks for the link! What kind of info do I need to say...

Hey Anthony, I'd love to use you as a referral- this is a great idea. Right now I'm taking some sample Zenpep I got from my clinic, but they're about to run out, so I'll have to get a script filled. I didn't know this program was out there. Thanks for the link! What kind of info do I need to say...