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I was wondering if I could ask for some help from fellow CFers that suffer from staph. Basically, these past 8 months I have been having quite a bit of problems with it (I also culture MAC, and haemophilous Influenzae. Both intermittently. The Staph has cultured every single time I give a...

Yes, thanks for the tip!

I wanted to know if any of you know an excellent asthma specialist in the new york city area. The cf clinics can only do so much with severe asthma issues. Need to have someone who really understands asthma and all it's complications. Any suggestions would be appreciated. thanks

I would go to a urologist and they will be able to assist you.

MamaScarlett, I heard u ran your first half-marathon today! That is wonderful. You are an inspiration to us all. Your hard work and determination has payed off. Keep up the good work!

I had problems with voice loss with advair and had to get off of it after a few weeks

thanks Imogene

Anyone else out there have the L206w mutation?

See Yourself When All Is New

I am prone to bleeding so my doctor told me never to take ibuprofen again. The last time I took advil it contributed to a bad case of hemoptysis.

MamaScarlett, I agree with you. Monday I was not feeling too great. Went running and it cleared out a lot of stuff. I improved since then, I think in part to the run. If you can exercise while not feeling great, it helps.

I do my albuterol, vest with hypertonic saline and after I finish vesting I do my Pulmozyme. Works for me.

Kelliemarie, what makes you think that the bleeding was caused by the running? Did it happen just once or is it everytime after running? The bleeding could have been from something unrelated perhaps. It is great that you have the initiative to run.

Thank you all for your comments. I appreciate it. Thanks for your well wishes.

I had a bout of hemoptysis this past Sunday which was straight blood, bright red. It got under control that evening after about 30 minutes and has been dissipating since. However, I'm still coughing up a little bit of blood 4 days later and the color is more of a brownish hue. Is this just...

I cultured MAC about 6 months ago once. Not since. I don't do the MWF maintenance Zithromax. But they have used Zithromax with me to treat flare-ups. They had done a CT scan and it showed that MAC was not causing me problems at the time. That info was used in my treatment course.

GG1995: I'm 42 years old. Like I said, slight clubbing.

I have slight clubbing and it became a little more noticeable as the years went by.

Here's a link that will be helpful to you http://www.cff.org/UploadedFiles/treatments/CFCareGuidelines/Diagnosis/An-Introduction-to-CF-for-Patients-and-Families.pdf

How many of you have been told never to take Advil especially if there is a tendency for you to bleed?