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I'd just get the acapella choice

Mamascarlett you, my sister and wife inspired me to run 5 miles today! Keep up the good work!

Did you try this link http://www.cftr2.org/

Have you tried http://www.cftr2.org/

Go get em' mamascarlett.

I have two sisters with cf and they are both runners now. One has run for a number of years and it has helped her physically and mentally. My younger sister was inspired by her and now they are both training for a half-marathon in February. My wife (non-cf) was inspired by them and is also now...

I do my hypertonic saline while I vest. After my vest I do my Pulmozyme. I was doing the Pulmozyme after the saline while vesting, but my sister who has cf said she did it after her vesting and coughing was done since Pulmozyme needs to 'sit' there in the lungs to do its' thing. This made sense...

All the coughing with cf throws a lot of stuff off in our body. I find chiropractic adjustments necessary to put things back in place. I don't worry about the chiropractor "breaking" something.

I think this link will be very helpful to you http://www.cff.org/UploadedFiles/treatments/CFCareGuidelines/Diagnosis/An-Introduction-to-CF-for-Patients-and-Families.pdf

As the years have gone by I find myself more and more tired and my PFTs are good. CF takes a lot out of you. Just the treatments alone can be exhausting. Though tired, I still exercise which helps. Without exercise I would be a real mess.

I take it once a day. Pulmozyme can be very expensive without insurance. Without insurance it costs roughly $2500 per month. With insurance, $25 per month for me.

He can absolutely play tennis. This will help his overall health. Encourage exercise. Running, swimming are also good.

Exercise is good for anyone with cf. encourage him to start a good program ASAP.

Thanks for sharing. Very motivating!

I use a portable generator that I bought this past winter, so no need for anything battery operated

You have to make sure the magnetic pieces are kept clean. Dry them immediately with a clean napkin gently. Also, you have to make sure you blow with the right air pressure. If you blow to hard you get the effect you mention that it doesn't flutter. Takes a little getting used to.

I know cf comes in different colors and shades, but I'm 42 and still going. I don't think about dying, just how best to care for myself each and every day. Inch by inch, life's a cinch, yard by yard, life is hard! One day at a time.

2 advil before going to bed

I cultured MAC about 6 months ago. I had a CT scan therafter and my lungs did not show any MAC related damage. The last several cultures have shown no MAC. I've been on antibiotics twice since then (Zithromax) for staph. Can MAC just have gone away?

I culture staph pretty much all the time. Generally, if I am feeling ok they will not treat it. But, if my sputum increases, if I have any pains (plugs), or if my FEV1 drops a certain amount they will prescribe some antibiotics for me. I hope this helps some.