Cystic Fibrosis Forum (EXP)

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  1. D

    Working/Marriage

    Your health is the most important so keeping those medical benefits is key. getting married might may cause you to loose those benefits then Amber's suggestion makes a lot of sense. Dave 37 w/cf
  2. D

    Could one have done differently...

    Hello Vejling, even though you didn't exercise before transplant I hope that you will after as someone will make the ultimate sacrifice for you and me as I am on the list as well. I have an identical twin brother who was transplanted 4 years ago and as soon as he was able got back in the gym...
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    is being in really good shape bad for a double lung transplant?

    Hello Enzo, If your lung function has declined to the point where you need a transplant you won't have big pecs and cut abs because you will be so sick that you can barely do anything never mind thinking about lifting weights and doing crunches. Dave,
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    Visiting in the hospital

    If you are worried you can always wear a mask and gloves, but I always went to the hospital to visit close relatives. My mother just passed in the middle of May she had cancer and was having complications from the Chemo treatments. When she first went in we thought she would be home in a few...
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    Siblings with CF too

    Hello mrsjenmac, I was diagnosed when I was 22 and have an identical twin brother having a sibling going through the same thing you are kind of makes it a little easier because you have somebody with you who really knows what it is like especially now that he had transplant surgery 4 years ago...
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    new, pls help

    getting to a CF centre is key like everyone has stated, but if you have to take him back to the ER you have to demand that a lung specialist looks at him. My CF doctor told me the same thing that if I had to go to my local ER for CF related issue that I had to demand to the lung specialist. The...
  7. D

    Everybody watch this video this kid is awesome.

    <a href="http://www.youtube.com/watch?v=NSLx89Wx8MY">http://www.youtube.com/watch?v=NSLx89Wx8MY</a> Dave 37 w/cf
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    Everybody watch this video this kid is awesome.

    <a href="http://www.youtube.com/watch?v=NSLx89Wx8MY">http://www.youtube.com/watch?v=NSLx89Wx8MY</a> Dave 37 w/cf
  9. D

    How big are your lungs?

    I just went through the tests for transplant and I was told that I have big lungs. I don't know the measurement in inches but I was told that I have 7.5 litre lungs and that the average size of people on the waiting list have 4.5 - 5.0 litre lungs. Dave 37 w/cf
  10. D

    How big are your lungs?

    I just went through the tests for transplant and I was told that I have big lungs. I don't know the measurement in inches but I was told that I have 7.5 litre lungs and that the average size of people on the waiting list have 4.5 - 5.0 litre lungs. Dave 37 w/cf
  11. D

    Pfts's and weight changes

    my doctors has always told me that if you can gain weight your lung function will improve. Dave 37 w/cf
  12. D

    Pfts's and weight changes

    my doctors has always told me that if you can gain weight your lung function will improve. Dave 37 w/cf
  13. D

    I need a change ...

    Hello Julie, I am in a similar situation. I caught a cold back in December and My lung dropped from 29% to 24% and now everday is struggle that is why I am going on the transplant list. If you feel that your CF is to the point where you can't function and doing simple things are a struggle than...
  14. D

    I need a change ...

    Hello Julie, I am in a similar situation. I caught a cold back in December and My lung dropped from 29% to 24% and now everday is struggle that is why I am going on the transplant list. If you feel that your CF is to the point where you can't function and doing simple things are a struggle than...
  15. D

    Can't quit coughing

    If you are coughing so hard that you are having back pain or if you were coughing all night and couldn't get wny sleep then maybe you should try something to get a little relief just remember that coughing is the only way to clear mucus.
  16. D

    Can't quit coughing

    If you are coughing so hard that you are having back pain or if you were coughing all night and couldn't get wny sleep then maybe you should try something to get a little relief just remember that coughing is the only way to clear mucus.
  17. D

    Diagnosed at 23

    My story is the same, I was diagnosed at 22 after years of misdiagnoses, and I too had to ask to see a specialist. Dave, 37 w/cf
  18. D

    Diagnosed at 23

    My story is the same, I was diagnosed at 22 after years of misdiagnoses, and I too had to ask to see a specialist. Dave, 37 w/cf
  19. D

    When to go on the transplant list

    Hello everybody, I had a video conference with my doctor today, and because it has been over 4 years since I was first screened for transplant I will have take some of the tests over again and then I will be able to go on the list. Dave 37 w/cf
  20. D

    When to go on the transplant list

    Hello everybody, I had a video conference with my doctor today, and because it has been over 4 years since I was first screened for transplant I will have take some of the tests over again and then I will be able to go on the list. Dave 37 w/cf
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