Cystic Fibrosis Forum (EXP)

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  1. T

    Oxygen question

    Not sure if this helps my daughter had same issue she had a long tube as compressor was downstairs and she wanted to be able to get around whole house. We first found that the compressor should not be plugged into a socket if you have something else plugged there(we were not informed of that in...
  2. T

    Did he really say that?

    Well the world is diverse just like there are people who suffer from illness there are people who suffer from lack of brain cells. Recentlly at ER with my son a gall bladder incident as opposed to CF related. The kid that was transporting us to the room was someone who reconized my son as going...
  3. T

    Did he really say that?

    Well the world is diverse just like there are people who suffer from illness there are people who suffer from lack of brain cells. Recentlly at ER with my son a gall bladder incident as opposed to CF related. The kid that was transporting us to the room was someone who reconized my son as going...
  4. T

    Did he really say that?

    Well the world is diverse just like there are people who suffer from illness there are people who suffer from lack of brain cells. Recentlly at ER with my son a gall bladder incident as opposed to CF related. The kid that was transporting us to the room was someone who reconized my son as going...
  5. T

    Question Gall Bladder

    anyone here with CF have theirs out?. My som is in and of course its not the hospital where CF doctor is. Anyway we thought surgery was today but surgeon saw from ultrasound taken sunday stone outside in duct so he knew he had to have scope done to remove. is that scheduled for today nope...
  6. T

    Question Gall Bladder

    anyone here with CF have theirs out?. My som is in and of course its not the hospital where CF doctor is. Anyway we thought surgery was today but surgeon saw from ultrasound taken sunday stone outside in duct so he knew he had to have scope done to remove. is that scheduled for today nope...
  7. T

    Question Gall Bladder

    anyone here with CF have theirs out?. My som is in and of course its not the hospital where CF doctor is. Anyway we thought surgery was today but surgeon saw from ultrasound taken sunday stone outside in duct so he knew he had to have scope done to remove. is that scheduled for today nope...
  8. T

    Problems Sleeping with Oxygen

    My daughter had trouble it kept clogging her nose, she ended up having to use nasal spray. Before bed she would do her nasal spray and most nights I did a massage with lavender oil and eucalyptus and that seemed to help her
  9. T

    Problems Sleeping with Oxygen

    My daughter had trouble it kept clogging her nose, she ended up having to use nasal spray. Before bed she would do her nasal spray and most nights I did a massage with lavender oil and eucalyptus and that seemed to help her
  10. T

    Problems Sleeping with Oxygen

    My daughter had trouble it kept clogging her nose, she ended up having to use nasal spray. Before bed she would do her nasal spray and most nights I did a massage with lavender oil and eucalyptus and that seemed to help her
  11. T

    History of Cystic Fibrosis

    my favorite is when they asked my kids how long have they had CF. These were some of the doctors on the floor. Sometimes my kids woud be smart and say oh since this morning. My sons favorite was when one of the nurses experienced ( sorry can not remember the term) when he asked what that was...
  12. T

    History of Cystic Fibrosis

    my favorite is when they asked my kids how long have they had CF. These were some of the doctors on the floor. Sometimes my kids woud be smart and say oh since this morning. My sons favorite was when one of the nurses experienced ( sorry can not remember the term) when he asked what that was...
  13. T

    History of Cystic Fibrosis

    my favorite is when they asked my kids how long have they had CF. These were some of the doctors on the floor. Sometimes my kids woud be smart and say oh since this morning. My sons favorite was when one of the nurses experienced ( sorry can not remember the term) when he asked what that was...
  14. T

    Questions

    Julie I also sent you a PM I hope it helps feel free to reach out to me if you want to know anything else. Tammy
  15. T

    Questions

    Julie I also sent you a PM I hope it helps feel free to reach out to me if you want to know anything else. Tammy
  16. T

    Questions

    Julie <br />I also sent you a PM I hope it helps feel free to reach out to me if you want to know anything else. <br />Tammy
  17. T

    techniques for PFTs

    Yep my son has his own set of tricks it has to do with mouthpiece and for him involves a way that he can hold breath and blow he has to do it a certain way. He's been doing it since about 13 and he will be 29. he tried teaching his sister how but she never could do it.
  18. T

    techniques for PFTs

    Yep my son has his own set of tricks it has to do with mouthpiece and for him involves a way that he can hold breath and blow he has to do it a certain way. He's been doing it since about 13 and he will be 29. he tried teaching his sister how but she never could do it.
  19. T

    techniques for PFTs

    Yep my son has his own set of tricks it has to do with mouthpiece and for him involves a way that he can hold breath and blow he has to do it a certain way. He's been doing it since about 13 and he will be 29. he tried teaching his sister how but she never could do it.
  20. T

    Anyone on FB?

    I am on FB Tamylin Mason Dolan, mommy to Stephanie 25 CF passed, Rachel 28 CF Carrier, Darrell CF 30
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