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I am on FB Tamylin Mason Dolan, mommy to Stephanie 25 CF passed, Rachel 28 CF Carrier, Darrell CF 30

I am on FB Tamylin Mason Dolan, mommy to Stephanie 25 CF passed, Rachel 28 CF Carrier, Darrell CF 30

For me once we were told our daughter was in final stage we had conversations going forward about her wishes. She did not write everything down such as cremation vs etc. Which though in a way I wish she would have cause you second guess your memory of the conversation. She did write down what...

For me once we were told our daughter was in final stage we had conversations going forward about her wishes. She did not write everything down such as cremation vs etc. Which though in a way I wish she would have cause you second guess your memory of the conversation. She did write down what...

For me once we were told our daughter was in final stage we had conversations going forward about her wishes. She did not write everything down such as cremation vs etc. Which though in a way I wish she would have cause you second guess your memory of the conversation. She did write down what...

Our daughter basically talked to family a year ago when she was told she was in final stage. Basically she signed DNR DNI and I was her health care proxy. Her basic instructions if she could not respond or paly with her 4 yr old son it was time to go. That day came 060410, we had her surprise...

Our daughter basically talked to family a year ago when she was told she was in final stage. Basically she signed DNR DNI and I was her health care proxy. Her basic instructions if she could not respond or paly with her 4 yr old son it was time to go. That day came 060410, we had her surprise...

Our daughter basically talked to family a year ago when she was told she was in final stage. Basically she signed DNR DNI and I was her health care proxy. Her basic instructions if she could not respond or paly with her 4 yr old son it was time to go. That day came 060410, we had her surprise...

Jessica my daughter as well was told on and off about a heart murmur. They seemed to mention it sporadically. The first time I think she was in about age 16 one doctor was out of the blue have you ever been told of heart murmur? And then no one mentioned it again until she was in like 6 mos of...

Jessica my daughter as well was told on and off about a heart murmur. They seemed to mention it sporadically. The first time I think she was in about age 16 one doctor was out of the blue have you ever been told of heart murmur? And then no one mentioned it again until she was in like 6 mos of...

Jessica my daughter as well was told on and off about a heart murmur. They seemed to mention it sporadically. The first time I think she was in about age 16 one doctor was out of the blue have you ever been told of heart murmur? And then no one mentioned it again until she was in like 6 mos of...

I had always heard that albuterol makes you jittery my kids backwards it always put them to sleep . Doctors thought I was crazy till one time my son did a treatment in front of them 5 mins later snoring away

I had always heard that albuterol makes you jittery my kids backwards it always put them to sleep . Doctors thought I was crazy till one time my son did a treatment in front of them 5 mins later snoring away

I had always heard that albuterol makes you jittery my kids backwards it always put them to sleep . Doctors thought I was crazy till one time my son did a treatment in front of them 5 mins later snoring away

Thank you am going to check with local pharmacy. I have also heard from a friend that a local Amish girl has CF and I know she may be in need of some meds so I am going to be checking with the family. These pharmacies sent way over the amount of what she would use so wasteful. I once asked...

Thank you am going to check with local pharmacy. I have also heard from a friend that a local Amish girl has CF and I know she may be in need of some meds so I am going to be checking with the family. These pharmacies sent way over the amount of what she would use so wasteful. I once asked...

Thank you am going to check with local pharmacy. I have also heard from a friend that a local Amish girl has CF and I know she may be in need of some meds so I am going to be checking with the family. These pharmacies sent way over the amount of what she would use so wasteful. I once asked...

Our 25 yr old daughter passed on 060410 we agreed to donate tissue/organs. We did receive a letter that they could use her cornea and now we got a denial letter. Just got a call from the doctor who wanted to express his condolences and express his admiration for our daughter, single mom of 4...

Our 25 yr old daughter passed on 060410 we agreed to donate tissue/organs. We did receive a letter that they could use her cornea and now we got a denial letter. Just got a call from the doctor who wanted to express his condolences and express his admiration for our daughter, single mom of 4...

Our 25 yr old daughter passed on 060410 we agreed to donate tissue/organs. We did receive a letter that they could use her cornea and now we got a denial letter. Just got a call from the doctor who wanted to express his condolences and express his admiration for our daughter, single mom of 4...