Cystic Fibrosis Forum (EXP)

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  1. I

    Cayston users

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> I didn't know there was such a thing as inhaled Fortaz.</end quote> Officaially, there isn't.
  2. I

    Cayston users

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> I didn't know there was such a thing as inhaled Fortaz.</end quote> Officaially, there isn't.
  3. I

    Cayston users

    1. Yes. 2. Yes, however I am trying to get OFF of TOBI and get on Inhaled Fortaz (Ceftazidime). However my insurance is putting up a fight so, I will continue on TOBI in my Cayston off month. 3. Not really sure, its easy to do and doesn't consume much of my time so I do it like clock work. I...
  4. I

    Cayston users

    1. Yes. 2. Yes, however I am trying to get OFF of TOBI and get on Inhaled Fortaz (Ceftazidime). However my insurance is putting up a fight so, I will continue on TOBI in my Cayston off month. 3. Not really sure, its easy to do and doesn't consume much of my time so I do it like clock work. I...
  5. I

    Denied by Social Security

    How do you have 500 pages? They only look at medical records for the past year. NOTHING MORE.
  6. I

    Denied by Social Security

    How do you have 500 pages? They only look at medical records for the past year. NOTHING MORE.
  7. I

    E-Flow (sp) with Hypertonic Saline

    Hmmm I guess you guys showed me. Lol. I wonder if they reworked the hole sizes maybe I'll try it again.
  8. I

    E-Flow (sp) with Hypertonic Saline

    Hmmm I guess you guys showed me. Lol. I wonder if they reworked the hole sizes maybe I'll try it again.
  9. I

    Pre-mixed Colistin

    I few years ago I believe someone died from pre-mixed colistin that came from the CF services pharmacy.
  10. I

    Pre-mixed Colistin

    I few years ago I believe someone died from pre-mixed colistin that came from the CF services pharmacy.
  11. I

    Anyone Fly recently?

    Yeah I was trying to avoid actually bringing my Pulmozyme box but I suppose I can flat it out and put the Pulmozyme in a bag. Thanks for the quick answeer. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. I

    Anyone Fly recently?

    Yeah I was trying to avoid actually bringing my Pulmozyme box but I suppose I can flat it out and put the Pulmozyme in a bag. Thanks for the quick answeer. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. I

    Anyone Fly recently?

    I looked it up and I think I understand but I figured I'd ask here as well. To my understanding I can take liquid medication including saline to mix, with me on my trip with no restrictions? Do they need to see scripts? Some of my stuff doesn't have labels.... My flight is tomorrow morning. LOL.
  14. I

    Anyone Fly recently?

    I looked it up and I think I understand but I figured I'd ask here as well. To my understanding I can take liquid medication including saline to mix, with me on my trip with no restrictions? Do they need to see scripts? Some of my stuff doesn't have labels.... My flight is tomorrow morning. LOL.
  15. I

    Long Term Antibiotics

    The reason CFers take ANZ is because it inhibits PA's ability to use quorum sensing to determine the size of its population. Without knowing how big it is, it is less likely to get larger and spread as with quorum sensing knocked out by ANZ the bacteria are un-able to talk to each other. When...
  16. I

    Long Term Antibiotics

    The reason CFers take ANZ is because it inhibits PA's ability to use quorum sensing to determine the size of its population. Without knowing how big it is, it is less likely to get larger and spread as with quorum sensing knocked out by ANZ the bacteria are un-able to talk to each other. When...
  17. I

    Kalydeco

    Yes it will help.
  18. I

    Kalydeco

    Yes it will help.
  19. I

    Long Term Antibiotics

    @ Musclemania it shouldn't have any impart of the efficacy of the antibiotics you will be taking. Milkthistle for example as well as curcumin act as food to the liver to help the proliferation parenchymal cells which is a majority of what the liver is made up of. The liver doesn't treat them as...
  20. I

    Long Term Antibiotics

    @ Musclemania it shouldn't have any impart of the efficacy of the antibiotics you will be taking. Milkthistle for example as well as curcumin act as food to the liver to help the proliferation parenchymal cells which is a majority of what the liver is made up of. The liver doesn't treat them as...
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