Cystic Fibrosis Forum (EXP)

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  1. I

    Off Label Kalydeco-My follow up Appt.

    This is fantastic news keep at it! Are you exercising at all?
  2. I

    Off Label Kalydeco-My follow up Appt.

    This is fantastic news keep at it! Are you exercising at all?
  3. I

    Long Term Antibiotics

    The long term effects of ANZ likely outweigh possible liver disease. Is it possible to get liver diseases from it yes sure, however far less likely than doing long term anti-fungal or Myco treatments. You may look into taking a Milkthistle or other liver supporting supplement if you're worried...
  4. I

    Long Term Antibiotics

    The long term effects of ANZ likely outweigh possible liver disease. Is it possible to get liver diseases from it yes sure, however far less likely than doing long term anti-fungal or Myco treatments. You may look into taking a Milkthistle or other liver supporting supplement if you're worried...
  5. I

    E-Flow (sp) with Hypertonic Saline

    Back before the eFlow was popular I was using it. I did try using HTS in it but it will clog the heads and destroy them very quickly. Even using an ultra-sonic jewelry cleaner it could get clogged with salt and become slow. That being said, a side from that the eFlow makes HTS RIDICULOUSLY...
  6. I

    E-Flow (sp) with Hypertonic Saline

    Back before the eFlow was popular I was using it. I did try using HTS in it but it will clog the heads and destroy them very quickly. Even using an ultra-sonic jewelry cleaner it could get clogged with salt and become slow. That being said, a side from that the eFlow makes HTS RIDICULOUSLY...
  7. I

    PFT Goal's thread. Trying to achieve 60% FEV1.

    Hey everyone, Just an update here, I seem to have an increased cough which is no doubtly from increased pollen count this time of year. Luckily it hasn't seeded extra bacterial growth in my lungs (yet). However I am far from what my baseline cough was a year ago, so that is a plus.My mucus...
  8. I

    Denied by Social Security

    dont worry <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kutzalina</b></i> protocal you will be turned down 3 times keeep trying, you will get it good luck its not right you shouldnt have to try so hard but you will get it</end quote> I highly doubt this is true. There are many...
  9. I

    Denied by Social Security

    dont worry <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kutzalina</b></i> protocal you will be turned down 3 times keeep trying, you will get it good luck its not right you shouldnt have to try so hard but you will get it</end quote> I highly doubt this is true. There are many...
  10. I

    Does my daughter's nebulizer suck?

    The Pari ProNeb Ultra COMPRESSORS are HORRIBLE. I have a Philips Respironics Inspiration Elite COMPRESSOR, I use the sidestream when I do Pulmozyme, Inhaled Glutathione, or HTS. For HTS the sidestream make its A LOT less harsh. Tobi I do in the PariLC+ and Cayston in the Altera.
  11. I

    Does my daughter's nebulizer suck?

    The Pari ProNeb Ultra COMPRESSORS are HORRIBLE. I have a Philips Respironics Inspiration Elite COMPRESSOR, I use the sidestream when I do Pulmozyme, Inhaled Glutathione, or HTS. For HTS the sidestream make its A LOT less harsh. Tobi I do in the PariLC+ and Cayston in the Altera.
  12. I

    Denied by Social Security

    I used Beth the first time and was approved in 6 weeks.
  13. I

    Denied by Social Security

    I used Beth the first time and was approved in 6 weeks.
  14. I

    Anyone on Fortaz

    Is your clinic Pitt UPMC? or is it A.I. DuPont in Wilmington? or CHOP in Philly? IF you don't want to publicly say can you PLEASE PM I am very curious to know. When I went to UPMC (U of Pitt) Weinberg put me on inhaled Fortaz and it is without a doubt the BEST STUFF ON EARTH! That being said, I...
  15. I

    Anyone on Fortaz

    Is your clinic Pitt UPMC? or is it A.I. DuPont in Wilmington? or CHOP in Philly? IF you don't want to publicly say can you PLEASE PM I am very curious to know. When I went to UPMC (U of Pitt) Weinberg put me on inhaled Fortaz and it is without a doubt the BEST STUFF ON EARTH! That being said, I...
  16. I

    I've got a cold - Can I still work out?

    ^^^^ that's exactly what I was going for.
  17. I

    I've got a cold - Can I still work out?

    ^^^^ that's exactly what I was going for.
  18. I

    I've got a cold - Can I still work out?

    What antibiotics are you on?
  19. I

    I've got a cold - Can I still work out?

    What antibiotics are you on?
  20. I

    what exactly is deltaf508

    Bill and Hannah, there is a thread on CFRD.org a few posts below here as well.
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