Cystic Fibrosis Forum (EXP)

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  1. J

    Jessica Brandon

    Hey Its me, I was googling my name today to see what all was out there about me and ran across this. I hope to be around more. My life has been CRAZY the last 2 years but I have plans to bring my blog back (i didn't realize so many people looked at it). To check it out its...
  2. J

    Kalydeco

    I started kalydeco in march and I culture MRSA. It was gone the last time I had cultures done a month after starting. I dont think its bc of kalydeco though, i believe its from taking garlic.
  3. J

    Kalydeco

    I started kalydeco in march and I culture MRSA. It was gone the last time I had cultures done a month after starting. I dont think its bc of kalydeco though, i believe its from taking garlic.
  4. J

    Interesting info about VX770

    How do you know if your mutation is a gating mutation?
  5. J

    Interesting info about VX770

    How do you know if your mutation is a gating mutation?
  6. J

    To those on kalydeco---Lauren (your thoughts, please)

    I started taking the meds one week ago and I have had amazing results in a week. I feel horrible though, but a different kind of horrible. 2 weeks ago I had just finished 2 weeks of bactrium adm cipro and 1 week of levequin and I called my dr and asked for antibiotics and thought I might to be...
  7. J

    To those on kalydeco---Lauren (your thoughts, please)

    I started taking the meds one week ago and I have had amazing results in a week. I feel horrible though, but a different kind of horrible. 2 weeks ago I had just finished 2 weeks of bactrium adm cipro and 1 week of levequin and I called my dr and asked for antibiotics and thought I might to be...
  8. J

    Finally getting SSI!

    I applied on June 23. I had help from Beth Sufian as well. I was told on the 19th of July they had made a decision, but it had to go through a random review. I found out yesterday that I was approved for SSI!!! I am sooo happy. I should be getting my first check possibly next week. I swear...
  9. J

    Finally getting SSI!

    I applied on June 23. I had help from Beth Sufian as well. I was told on the 19th of July they had made a decision, but it had to go through a random review. I found out yesterday that I was approved for SSI!!! I am sooo happy. I should be getting my first check possibly next week. I swear...
  10. J

    Finally getting SSI!

    I applied on June 23. I had help from Beth Sufian as well. I was told on the 19th of July they had made a decision, but it had to go through a random review. <br /> <br />I found out yesterday that I was approved for SSI!!! I am sooo happy. I should be getting my first check possibly next week...
  11. J

    A1c, fasting glucose...help?

    So I have a history of diabetes associated with steriods. We found it one night as a fluke. I was having night sweats and a lady had came to get and amicasin level. I mentioned it to here and she had someone come in and check my blood sugar -It was 344. I was on metformin for a while, but once...
  12. J

    A1c, fasting glucose...help?

    So I have a history of diabetes associated with steriods. We found it one night as a fluke. I was having night sweats and a lady had came to get and amicasin level. I mentioned it to here and she had someone come in and check my blood sugar -It was 344. I was on metformin for a while, but once...
  13. J

    A1c, fasting glucose...help?

    So I have a history of diabetes associated with steriods. We found it one night as a fluke. I was having night sweats and a lady had came to get and amicasin level. I mentioned it to here and she had someone come in and check my blood sugar -It was 344. <br /> <br />I was on metformin for a...
  14. J

    Military and CF!!!!

    My husband is army, I have CF. We are stationed at fort polk la...
  15. J

    Military and CF!!!!

    My husband is army, I have CF. We are stationed at fort polk la...
  16. J

    Military and CF!!!!

    My husband is army, I have CF. We are stationed at fort polk la...
  17. J

    SSI & Beth Sufian!

    Well the paper I signed said that there is NO FEE. Nothing, not even a %. Maybe she only takes a % if you have to appeal? I don't know, but I signed a contract that said there was no fee. Also I live in Louisiana and she practices in texas, so I would assume she takes all states.
  18. J

    SSI & Beth Sufian!

    Well the paper I signed said that there is NO FEE. Nothing, not even a %. Maybe she only takes a % if you have to appeal? I don't know, but I signed a contract that said there was no fee. Also I live in Louisiana and she practices in texas, so I would assume she takes all states.
  19. J

    SSI & Beth Sufian!

    Well the paper I signed said that there is NO FEE. Nothing, not even a %. Maybe she only takes a % if you have to appeal? I don't know, but I signed a contract that said there was no fee. <br /> <br />Also I live in Louisiana and she practices in texas, so I would assume she takes all states.
  20. J

    SSI & Beth Sufian!

    Teri - I believe she does all states, not sure though. Go to the CFF website and find the legal hotline...
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