Cystic Fibrosis Forum (EXP)

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  1. J

    always low lung function

    I went through and was making a list of ALL my pft's. Like I went back all the way to my very first one at 10. To view it go here - <a target=_blank class=ftalternatingbarlinklarge href="http://insidecf.blogspot.com/2010/07/my-pft-history.html...
  2. J

    always low lung function

    I went through and was making a list of ALL my pft's. Like I went back all the way to my very first one at 10. To view it go here - <a target=_blank class=ftalternatingbarlinklarge href="http://insidecf.blogspot.com/2010/07/my-pft-history.html...
  3. J

    always low lung function

    I went through and was making a list of ALL my pft's. Like I went back all the way to my very first one at 10. To view it go here - <a target=_blank class=ftalternatingbarlinklarge href="http://insidecf.blogspot.com/2010/07/my-pft-history.html...
  4. J

    Eflow

    so the neb cub that you use for the cayston is the same neb cup you use for the rest? There isn't a different kind of neb cup for the machine? So if I have an extra altera cup and I just use my meds in it and use the eflow??? Is there a way to clean it that prevents the clogging? Like if I...
  5. J

    Eflow

    so the neb cub that you use for the cayston is the same neb cup you use for the rest? There isn't a different kind of neb cup for the machine? So if I have an extra altera cup and I just use my meds in it and use the eflow??? Is there a way to clean it that prevents the clogging? Like if I...
  6. J

    Eflow

    so the neb cub that you use for the cayston is the same neb cup you use for the rest? There isn't a different kind of neb cup for the machine? <br /> <br />So if I have an extra altera cup and I just use my meds in it and use the eflow??? <br /> <br />Is there a way to clean it that prevents...
  7. J

    CONFUSED ABOUT CAYSTON

    I use the NUK sterilizer that came from CFservices. I only sterilize once a day. I rinse each piece off in hot water for about 15 seconds. I then lay it in the top of the serilizer to air dry. At night after the final use, I ALL wash with soapy water hot water and then place them in the...
  8. J

    CONFUSED ABOUT CAYSTON

    I use the NUK sterilizer that came from CFservices. I only sterilize once a day. I rinse each piece off in hot water for about 15 seconds. I then lay it in the top of the serilizer to air dry. At night after the final use, I ALL wash with soapy water hot water and then place them in the...
  9. J

    CONFUSED ABOUT CAYSTON

    I use the NUK sterilizer that came from CFservices. <br /> <br />I only sterilize once a day. I rinse each piece off in hot water for about 15 seconds. I then lay it in the top of the serilizer to air dry. At night after the final use, I ALL wash with soapy water hot water and then place them...
  10. J

    can we talk poop?

    Well my daughter was strictly breast fed, and she always had what I thought was breastfed poop. I mean they seemed a little less "seedy" then I thought they should have been but no biggie. And when she started eating food they were still very breastfed like. She was breastfed until 2 so they...
  11. J

    can we talk poop?

    Well my daughter was strictly breast fed, and she always had what I thought was breastfed poop. I mean they seemed a little less "seedy" then I thought they should have been but no biggie. And when she started eating food they were still very breastfed like. She was breastfed until 2 so they...
  12. J

    can we talk poop?

    Well my daughter was strictly breast fed, and she always had what I thought was breastfed poop. I mean they seemed a little less "seedy" then I thought they should have been but no biggie. And when she started eating food they were still very breastfed like. She was breastfed until 2 so they...
  13. J

    lung function rate of decline

    Anyone know the general rate of decline of lung function per year? For those closer to the "average age of survivial" what was your lung function in your early 20's. I am just thinking about the fact that if my lung function is 60% now, what will it be when I am 38. Will I live to 38? Would...
  14. J

    lung function rate of decline

    Anyone know the general rate of decline of lung function per year? For those closer to the "average age of survivial" what was your lung function in your early 20's. I am just thinking about the fact that if my lung function is 60% now, what will it be when I am 38. Will I live to 38? Would...
  15. J

    lung function rate of decline

    Anyone know the general rate of decline of lung function per year? <br /> <br />For those closer to the "average age of survivial" what was your lung function in your early 20's. <br /> <br />I am just thinking about the fact that if my lung function is 60% now, what will it be when I am 38...
  16. J

    WTH am I going to do?

    The thing is that I don't have any money. Literally. So my insurance has to pay for it.
  17. J

    WTH am I going to do?

    The thing is that I don't have any money. Literally. So my insurance has to pay for it.
  18. J

    WTH am I going to do?

    The thing is that I don't have any money. Literally. So my insurance has to pay for it.
  19. J

    WTH am I going to do?

    My kids spilt koolaide on my compressor. I have been on the phone since 10 this morning trying to find a stupid PARI compressor. I finally found WALGREENS, only to discover that through my insurance company they aren't authorized med equipment dealers -really? So I have no idea what to do. My...
  20. J

    WTH am I going to do?

    My kids spilt koolaide on my compressor. I have been on the phone since 10 this morning trying to find a stupid PARI compressor. I finally found WALGREENS, only to discover that through my insurance company they aren't authorized med equipment dealers -really? So I have no idea what to do. My...
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