Cystic Fibrosis Forum (EXP)

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  1. J

    WTH am I going to do?

    My kids spilt koolaide on my compressor. I have been on the phone since 10 this morning trying to find a stupid PARI compressor. I finally found WALGREENS, only to discover that through my insurance company they aren't authorized med equipment dealers -really? <br /> <br />So I have no idea...
  2. J

    can we talk poop?

    Ok so in the midst of trying to figure out if my daughter has CF I am left to wonder what is normal poop? I know what normal is to me. And what its like when I take too many or not enough enzymes. My daughter seems to suffer more of a constipation issue with BRIGHT green poop. She has a...
  3. J

    can we talk poop?

    Ok so in the midst of trying to figure out if my daughter has CF I am left to wonder what is normal poop? I know what normal is to me. And what its like when I take too many or not enough enzymes. My daughter seems to suffer more of a constipation issue with BRIGHT green poop. She has a...
  4. J

    can we talk poop?

    Ok so in the midst of trying to figure out if my daughter has CF I am left to wonder what is normal poop? <br /> <br />I know what normal is to me. And what its like when I take too many or not enough enzymes. <br /> <br />My daughter seems to suffer more of a constipation issue with BRIGHT...
  5. J

    Feeding tube...

    The way they "look" as nothing to do with it. CFers need a higher BMI b/c when they are sick they use the extra fat stores. When your BMI is low you don't have that. So its really important to have that weight in numbers and not in looks. I am skinny -even when at a great BMI...so looks arent...
  6. J

    Feeding tube...

    The way they "look" as nothing to do with it. CFers need a higher BMI b/c when they are sick they use the extra fat stores. When your BMI is low you don't have that. So its really important to have that weight in numbers and not in looks. I am skinny -even when at a great BMI...so looks arent...
  7. J

    Feeding tube...

    The way they "look" as nothing to do with it. CFers need a higher BMI b/c when they are sick they use the extra fat stores. When your BMI is low you don't have that. So its really important to have that weight in numbers and not in looks. I am skinny -even when at a great BMI...so looks arent...
  8. J

    Preschool?

    I saw DO IT! OMG I would love that chance. (for my daughter) HOWEVER I would start her on probiotics and high dose vit C to boost her immune system.
  9. J

    Preschool?

    I saw DO IT! OMG I would love that chance. (for my daughter) HOWEVER I would start her on probiotics and high dose vit C to boost her immune system.
  10. J

    Preschool?

    I saw DO IT! OMG I would love that chance. (for my daughter) <br /> <br />HOWEVER I would start her on probiotics and high dose vit C to boost her immune system.
  11. J

    Feeding tube...

    I wanted to add 2 things - 1: The medication thing is the BEST. I take miralax (gag) BUT NOW I just push it through the tube. I have also had to do several xrays/scans that included dye and I didn't have to drink them either, just push it in. It really does make things easier -and Im a big girl...
  12. J

    Feeding tube...

    I wanted to add 2 things - 1: The medication thing is the BEST. I take miralax (gag) BUT NOW I just push it through the tube. I have also had to do several xrays/scans that included dye and I didn't have to drink them either, just push it in. It really does make things easier -and Im a big girl...
  13. J

    Feeding tube...

    I wanted to add 2 things - <br /> <br />1: The medication thing is the BEST. I take miralax (gag) BUT NOW I just push it through the tube. I have also had to do several xrays/scans that included dye and I didn't have to drink them either, just push it in. It really does make things easier -and...
  14. J

    STARTING CAYSTON

    Yea mine doesn't take that long. I think about 5 for the pulmo and 20 for the hypertonic (its the longest). I have a pari proneb ultra. Adding this cayston is gonna be like nothing... seriously.
  15. J

    STARTING CAYSTON

    Yea mine doesn't take that long. I think about 5 for the pulmo and 20 for the hypertonic (its the longest). I have a pari proneb ultra. Adding this cayston is gonna be like nothing... seriously.
  16. J

    STARTING CAYSTON

    Yea mine doesn't take that long. I think about 5 for the pulmo and 20 for the hypertonic (its the longest). I have a pari proneb ultra. <br /> <br />Adding this cayston is gonna be like nothing... seriously.
  17. J

    Eflow

    The EFLOW is amazing. Its soo quiet I didn't even realize it was on! And it felt like just as soon as I turned it on it was done. I opened the thing to make sure there was no med left b/c I was in shock and it was totally gone. SOOO question -what other meds can be done in an eflow???
  18. J

    Eflow

    The EFLOW is amazing. Its soo quiet I didn't even realize it was on! And it felt like just as soon as I turned it on it was done. I opened the thing to make sure there was no med left b/c I was in shock and it was totally gone. SOOO question -what other meds can be done in an eflow???
  19. J

    Eflow

    The EFLOW is amazing. Its soo quiet I didn't even realize it was on! And it felt like just as soon as I turned it on it was done. I opened the thing to make sure there was no med left b/c I was in shock and it was totally gone. <br /> <br /> <br />SOOO question -what other meds can be done in...
  20. J

    Feeding tube...

    I have a g-tube. When my doctors mentioned it before I immediately rejected the idea. It seemed almost like a death sentence. Like getting the tube meant I was getting closer to the end or something. However since getting the tube (minus some minor UNCOMMON set backs) I feel better than ever AND...
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