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While we have no plans to remove the g-tube, we'd like to get LO to a point where he's eating most of his food orally. <br><br>Has anyone here had issues with g-tube dependency & a successful weaning story?<br>

While we have no plans to remove the g-tube, we'd like to get LO to a point where he's eating most of his food orally. <br><br>Has anyone here had issues with g-tube dependency & a successful weaning story?<br>

Sorry to not respond sooner - been crazy busy at work!<br><br>We're Tubies as well. Your stats are almost the same as our little one was at the same age. We had a g-tube inserted when he was 7 months old. We got to almost 15 pounds and then he started losing weight, so we didn't have many...

Sorry to not respond sooner - been crazy busy at work!<br><br>We're Tubies as well. Your stats are almost the same as our little one was at the same age. We had a g-tube inserted when he was 7 months old. We got to almost 15 pounds and then he started losing weight, so we didn't have many...

I'm a tubie Mom, so I'll offer some thoughts based on our experience.<br><br>Our LO has had problems gaining weight since day 1. By the time he was 6 months, he was still just over 14 pounds and our clinic recommended a feeding tube. We decided not to go with the ng tube (through the nose)...

I'm a tubie Mom, so I'll offer some thoughts based on our experience.<br><br>Our LO has had problems gaining weight since day 1. By the time he was 6 months, he was still just over 14 pounds and our clinic recommended a feeding tube. We decided not to go with the ng tube (through the nose)...

I'm a tubie Mom, so I'll offer some thoughts based on our experience.<br><br>Our LO has had problems gaining weight since day 1. By the time he was 6 months, he was still just over 14 pounds and our clinic recommended a feeding tube. We decided not to go with the ng tube (through the nose)...

While I don't know anything about the mutations, I do know that you should completely throw out the sweat test information as it's basically useless.<br><br>I've been communicating with another CF mom who thought she was in the clear because of the negative sweat test...came back as a double...

While I don't know anything about the mutations, I do know that you should completely throw out the sweat test information as it's basically useless.<br><br>I've been communicating with another CF mom who thought she was in the clear because of the negative sweat test...came back as a double...

While I don't know anything about the mutations, I do know that you should completely throw out the sweat test information as it's basically useless.<br><br>I've been communicating with another CF mom who thought she was in the clear because of the negative sweat test...came back as a double...

Keep us posted on your fundraising for her lungs.  We'll definitely send a little bit to help.  I'm sure it's only a drop in the bucket, but as a professional fundraiser I know that every penny counts.<br><br>Praying for Julie's new lungs and for you & your family!<br>

Keep us posted on your fundraising for her lungs. We'll definitely send a little bit to help. I'm sure it's only a drop in the bucket, but as a professional fundraiser I know that every penny counts.<br><br>Praying for Julie's new lungs and for you & your family!<br>

Keep us posted on your fundraising for her lungs. We'll definitely send a little bit to help. I'm sure it's only a drop in the bucket, but as a professional fundraiser I know that every penny counts.<br><br>Praying for Julie's new lungs and for you & your family!<br>

Even though I work in a field where we see victims whose stories all share common elements, I am always amazed that this diagnosis creates the same construct.<br><br>I sit here in tears as I've read through your article and it's our lives - just like yours and every other parent here.  The minor...

Even though I work in a field where we see victims whose stories all share common elements, I am always amazed that this diagnosis creates the same construct.<br><br>I sit here in tears as I've read through your article and it's our lives - just like yours and every other parent here. The minor...

Even though I work in a field where we see victims whose stories all share common elements, I am always amazed that this diagnosis creates the same construct.<br><br>I sit here in tears as I've read through your article and it's our lives - just like yours and every other parent here. The minor...

Thanks for the info! We didn't have to go through that, so I wasn't sure if it was a definite diagnosis or if I should encourage her to get additional testing. I'd just hate for the little guy to have CF and not be appropriately treated.

Thanks for the info! We didn't have to go through that, so I wasn't sure if it was a definite diagnosis or if I should encourage her to get additional testing. I'd just hate for the little guy to have CF and not be appropriately treated.

Thanks for the info! We didn't have to go through that, so I wasn't sure if it was a definite diagnosis or if I should encourage her to get additional testing. I'd just hate for the little guy to have CF and not be appropriately treated.

I have been corresponding with a mom of a 16 month old who is presenting classic CF symptoms - respiratory problems, mucous in stomach & stool, FTT, vitamin ADEK deficiency.  They had a sweat test yesterday that was normal.<br><br>She seems very relieved that it's not CF based on this test.  She...