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Hi All, It's time for my annual teleclass (by phone) for parents of kids with cystic fibrosis. I hope you can join me this year. Best Wishes for a happy, healthy 2012! REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids™ Dear CF Parents and...

Hi All, It's time for my annual teleclass (by phone) for parents of kids with cystic fibrosis. I hope you can join me this year. Best Wishes for a happy, healthy 2012! REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids™ Dear CF Parents and...

<P>Hi All, </P> <P>I am writing a blog series about "Back to School Daze with Special Medical Needs" and have written one on 504s and IEPs- a subject that is very important and very confusing!!</P> <P>The blog is done but I need a couple of you here to review it for me before I post it...

<P>Hi All, </P> <P>It's that time of year again! My kids are getting excited about going back to school. Jake will be a middle schooler! They grow up so fast. </P> <P>Here are some resources I've put together over the years for getting our kids ready including a teacher letter, sample 504 plan...

<P>Hi All, </P> <P>It's that time of year again! My kids are getting excited about going back to school. Jake will be a middle schooler! They grow up so fast. </P> <P>Here are some resources I've put together over the years for getting our kids (and us!) ready including a teacher letter, sample...

<P>Do you have favorite tips, advice, or stories for kids with CF going to summer camp? Tips can be directed to a kid going to camp as well as ideas for parents. </P> <P>I am compiling a bunch of tips and would love your input. I would especially love your stories that would help other kids...

<P>Do you have favorite tips, advice, or stories for kids with CF going to summer camp? Tips can be directed to a kid going to camp as well as ideas for parents. I am compiling a bunch of tips and would love your input. </P> <P>Here is my webage that already has a good start with (free)...

<P>Do you, as an adult with CF or a parent, have some favorite tips for kids with CF going to summer camp? I am compiling a bunch of tips and would love your input. </P> <P>Here is my webage that already has a good start with (free) resources including a letter to share with camp counselors...

<P><FONT color=#000000>Hi All, </FONT></P> <P><FONT color=#000000>I have added a new section to my website (</FONT><A href="http://www.TiosForCFParents.com"><FONT color=#000000>www.TipsForCFParents.com</FONT></A><FONT color=#000000>) with articles, video clips, and other resources about how to...

<P>I am cautiously hopeful! :-) Hugs, Lisa</P> <P><A href="http://investors.vrtx.com/releasedetail.cfm?ReleaseID=583683"><U><FONT color=#800080>http://investors.vrtx.com/releasedetail.cfm?ReleaseID=583683</FONT></U></A></P>

<P>I am cautiously hopeful! :-) Hugs, Lisa</P> <P><A href="http://investors.vrtx.com/releasedetail.cfm?ReleaseID=583683">http://investors.vrtx.com/releasedetail.cfm?ReleaseID=583683</A></P>

Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...

Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...

I just posted a LONG email about picky eaters and it's GONE! I am so bummed. And when I post, it deletes all of the spaces so comes through as a solid block of text. Is anyone else having these problems?

Regenocyte Successfully Treats Cystic Fibrosis Using Patients' Own Adult Stem Cells Following Years of Severe Symptoms of this Chronic Disease, Patients See Dramatic Improvement in Quality of Life BONITA SPRINGS, Fla.--(BUSINESS WIRE)--Erida Kazmaj, 14, has never known a year where she had...

Regenocyte Successfully Treats Cystic Fibrosis Using Patients' Own Adult Stem Cells Following Years of Severe Symptoms of this Chronic Disease, Patients See Dramatic Improvement in Quality of Life BONITA SPRINGS, Fla.--(BUSINESS WIRE)--Erida Kazmaj, 14, has never known a year where she had...

<span style="font-family: arial,helvetica,sans-serif;"><span style="font-size: x-small;"><span style="color: #000000;"><span style="font-size: 16px;"><span style="font-family: comic sans ms;"><span style="font-family: arial,helvetica,sans-serif; font-size: x-small;">Hi All, I have posted some...

Hi All, Our CF clinic's parent advisory committee (PAC) created a great exercise DVD for people of all ages with CF. Here is a link with info: <a href="http://www.happyheartfamilies.citymax.com/exercise_and_cf.html">http://www.happyheartfamilies.citymax.com/exercise_and_cf.html</a> Enjoy!  

Hi All, I will update this post regularly as I schedule new Family Ed Day presentations and workshops. Following is a description of what I talk about. I would LOVE to meet you if you are attending one. It's so fun to put faces to the names I see here. Hope to see you soon! Hugs and Hope...

I am so excited to share my first TV interview with you all! (It was kind of scary...) I am hoping it creates awareness about CF and provides some insight for the challenges we parents face. Here's the link: <a target=_blank class=ftalternatingbarlinklarge...