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I am so excited to share my first TV interview with you all! (It was kind of scary...) I am hoping it creates awareness about CF and provides some insight for the challenges we parents face. Here's the link: <a target=_blank class=ftalternatingbarlinklarge...

Living with CF Series I am SO EXCITED to share this with you all. I've been working on it for about a year and it's really coming together. We have created a series of (free) pamphlets for parents of children with cystic fibrosis (and medical professionals). Right now, they are available as...

Living with CF Series I am SO EXCITED to share this with you all. I've been working on it for about a year and it's really coming together. We have created a series of (free) pamphlets for parents of children with cystic fibrosis (and medical professionals). Right now, they are available as...

<b>Living with CF Series</b> I am SO EXCITED to share this with you all. I've been working on it for about a year and it's really coming together. We have created a series of (free) pamphlets for parents of children with cystic fibrosis (and medical professionals). Right now, they are...

I just finished a new page on my website (www.TipsForCFParents.com) for "How to Teach Children About CF" and I've posted a bunch of wonderful video clips including Joshland, Oli and Nush and others. Do you know of any others that I can share? Thanks! Also, do you have any favorites for...

I just finished a new page on my website (www.TipsForCFParents.com) for "How to Teach Children About CF" and I've posted a bunch of wonderful video clips including Joshland, Oli and Nush and others. Do you know of any others that I can share? Thanks! Also, do you have any favorites for...

Hi All, I am starting a Connect Group for CF parents and grandparents in the Seattle area. If you are interested, or know someone else who might be, please have them contact me. You can send me a private message through this website or call me. Here's info from the flyer. Thanks. <b> Puget...

Hi All, I am starting a Connect Group for CF parents and grandparents in the Seattle area. If you are interested, or know someone else who might be, please have them contact me. You can send me a private message through this website or call me. Here's info from the flyer. Thanks. <b> Puget...

Hi All, Just got this today. Spead the news! I'm so hopeful... and am keeping my hope based in reality, too. It's just the beginning... They are also doing a trial of this drug along with another drug (VX-809) that targets the Delta F508 gene. Hugs, Lisa Dear Friend, I am writing today...

Hi All, Just got this today. Spead the news! I'm so hopeful... and am keeping my hope based in reality, too. It's just the beginning... They are also doing a trial of this drug along with another drug (VX-809) that targets the Delta F508 gene. Hugs, Lisa Dear Friend, I am writing today...

Hi All, Just got this today. Spead the news! I'm so hopeful... and am keeping my hope based in reality, too. It's just the beginning... They are also doing a trial of this drug along with another drug (VX-809) that targets the Delta F508 gene. Hugs, Lisa Dear Friend, I am writing today with...

This message is updated to reflect current info: Hi All, Dr. Cline and I have scheduled our 2012 teleclass for CF parents. I hope you can join us! It's a wonderful class. Here's the scoop: Wouldn't it be nice to know about the potholes in the road of life with cystic fibrosis so you can avoid...

From the flyer: The Cystic Fibrosis Foundation proudly presents AN EVENING OF LOVE & LOGIC with LISA GREENE Award-winning co-author of Parenting Children with Health Issues February 24, 2011 6 to 8:30 pm Location: The Skaggs Institute for Chemical Biology The Scripps Research Institute 10596...

Hi All, I need your opinions if you have a sec. :-) I am working on a dvd project with Dr. Cline and need to come up with interesting chapter titles. This is not my forte! Do you think they are interesting enough? If you read them, would you be inspired to watch the segment? Thanks so much...

Subject heading: New Resource to Help Parents Deal with False Positives in Newborn Screening Dear Colleagues, The Cystic Fibrosis Foundation is excited to announce a vital new resource for parents whose infants receive a positive newborn screen for cystic fibrosis (CF)...

Subject heading: New Resource to Help Parents Deal with False Positives in Newborn Screening Dear Colleagues, The Cystic Fibrosis Foundation is excited to announce a vital new resource for parents whose infants receive a positive newborn screen for cystic fibrosis (CF)...

Hi All, It's that time of year again when Dr. Cline and I do our teleclass for CF parents. I hope you can join us! It's a wonderful class. Here's the scoop: Wouldn't it be nice to know about the potholes in the road of life with cystic fibrosis so you can avoid them? A new teleclass starts on...

Hi All, It's that time of year again when Dr. Cline and I do our teleclass for CF parents. I hope you can join us! It's a wonderful class. Here's the scoop: Wouldn't it be nice to know about the potholes in the road of life with cystic fibrosis so you can avoid them? A new teleclass starts on...

Hi All, I am sad to be the bearer of bad news this morning but I wanted you to know this: There was very disappointing news regarding the Inspire clinical program for denufosol.The trial did not achieve its primary endpoint for lung function improvement. Press release: <a target=_blank...

Hi All, I am sad to be the bearer of bad news this morning but I wanted you to know this: There was very disappointing news regarding the Inspire clinical program for denufosol.The trial did not achieve its primary endpoint for lung function improvement. Press release: <a target=_blank...