Cystic Fibrosis Forum (EXP)

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  1. L

    Mucus in baby's stool

    It's been many years since I've changed a CF diaper and I can only tell you what I experienced. Our oldest was not diagnosed until one week before our second was born. Our youngest was started on enzymes within the first 2 weeks. They started her on enzymes after her test results came back from...
  2. L

    Mucus in baby's stool

    It's been many years since I've changed a CF diaper and I can only tell you what I experienced. Our oldest was not diagnosed until one week before our second was born. Our youngest was started on enzymes within the first 2 weeks. They started her on enzymes after her test results came back from...
  3. L

    Clarification about taking ADEK's or similar

    Yes. The ADEK's or Source CF are vitamins made especially for CF patients so that they are better absorbed. If you take OTC vitamins then it is advisable to take enzymes with them so that they will be absorbed easier. Without, then they are absorbed about the same as the vitamin found naturally...
  4. L

    Clarification about taking ADEK's or similar

    Yes. The ADEK's or Source CF are vitamins made especially for CF patients so that they are better absorbed. If you take OTC vitamins then it is advisable to take enzymes with them so that they will be absorbed easier. Without, then they are absorbed about the same as the vitamin found naturally...
  5. L

    Clarification about taking ADEK's or similar

    Yes. The ADEK's or Source CF are vitamins made especially for CF patients so that they are better absorbed. If you take OTC vitamins then it is advisable to take enzymes with them so that they will be absorbed easier. Without, then they are absorbed about the same as the vitamin found naturally...
  6. L

    Prograf Dose

    Hi, Anna's highest dose of Prograff has been 3mg twice a day. The tx team also had her adjust her enzymes she took with her Prograff to help maintain the levels. She started out at 1 w/Prograff and was moved up to 3 enzymes w/Prograff by the time she was released to return home at 2 months post...
  7. L

    CF on Army Wifes

    No problems. Spoilers don't bother me. I can read what the entire episodes are about or future episodes of my fav. General Hospital, and still watch it and enjoy it. You can tell me the ending of a movie and I'll still go see it. When Anna' told me, it actually kept me wondering throughout the...
  8. L

    CF on Army Wifes

    No problems. Spoilers don't bother me. I can read what the entire episodes are about or future episodes of my fav. General Hospital, and still watch it and enjoy it. You can tell me the ending of a movie and I'll still go see it. When Anna' told me, it actually kept me wondering throughout the...
  9. L

    CF on Army Wifes

    No problems. Spoilers don't bother me. I can read what the entire episodes are about or future episodes of my fav. General Hospital, and still watch it and enjoy it. You can tell me the ending of a movie and I'll still go see it. When Anna' told me, it actually kept me wondering throughout the...
  10. L

    home ownership

    Anna' was on Itraconozole (Sporonox) when she got Aspergillus about 7 mo. post tx in the dead of a NE winter! Better to wear the mask if your digging in dirt. Stanford strongly encourages masks for yard work, gardening and time spent in a barn, no cleaning stalls, and at the least a N95 like she...
  11. L

    home ownership

    Anna' was on Itraconozole (Sporonox) when she got Aspergillus about 7 mo. post tx in the dead of a NE winter! Better to wear the mask if your digging in dirt. Stanford strongly encourages masks for yard work, gardening and time spent in a barn, no cleaning stalls, and at the least a N95 like she...
  12. L

    home ownership

    Anna' was on Itraconozole (Sporonox) when she got Aspergillus about 7 mo. post tx in the dead of a NE winter! Better to wear the mask if your digging in dirt. Stanford strongly encourages masks for yard work, gardening and time spent in a barn, no cleaning stalls, and at the least a N95 like she...
  13. L

    Looking For OldTex

    I'm looking for OldTex, from the DFW area. Can't recall if the name has a space or not. I haven't seen him around for a while or I've just missed him. Update: I discovered it was OLD not Big, Tex I was looking for. Thank goodness we can search our old posts on here. It just takes for ever.
  14. L

    Looking For OldTex

    I'm looking for OldTex, from the DFW area. Can't recall if the name has a space or not. I haven't seen him around for a while or I've just missed him. Update: I discovered it was OLD not Big, Tex I was looking for. Thank goodness we can search our old posts on here. It just takes for ever.
  15. L

    Looking For OldTex

    I'm looking for OldTex, from the DFW area. Can't recall if the name has a space or not. <br /> <br />I haven't seen him around for a while or I've just missed him. <br /> <br /> <br />Update: I discovered it was OLD not Big, Tex I was looking for. Thank goodness we can search our old posts on...
  16. L

    Starting my life at 21!

    Hi Jordan, You have come to a good place. I have to say, I am surprised to hear that you don't know anyone else with CF. Even with the strictist rules in place at some hospitals, a person can meet a fellow CF'er while in hospital. I'm a mom of two w/CF, one that has had a double lung...
  17. L

    Starting my life at 21!

    Hi Jordan, You have come to a good place. I have to say, I am surprised to hear that you don't know anyone else with CF. Even with the strictist rules in place at some hospitals, a person can meet a fellow CF'er while in hospital. I'm a mom of two w/CF, one that has had a double lung...
  18. L

    Starting my life at 21!

    Hi Jordan, You have come to a good place. I have to say, I am surprised to hear that you don't know anyone else with CF. Even with the strictist rules in place at some hospitals, a person can meet a fellow CF'er while in hospital. <br /> <br />I'm a mom of two w/CF, one that has had a double...
  19. L

    Party City has picked Cystic Fibrosis for next month

    Do you know if this will be Party City nation wide or just your local Party City?
  20. L

    Party City has picked Cystic Fibrosis for next month

    Do you know if this will be Party City nation wide or just your local Party City?
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