Cystic Fibrosis Forum (EXP)

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  1. L

    Military Move

    <p>text removed by me.
  2. L

    CountryGirl passed away

    This is the first time I've been able to come on here. I want to thank you all so very much for your kind words about Anna' aka CountryGirl. I want to let anyone know who is considering a transplant that Anna' always said, this journey was worth it. After her first transplant when she had a...
  3. L

    CountryGirl passed away

    This is the first time I've been able to come on here. I want to thank you all so very much for your kind words about Anna' aka CountryGirl. I want to let anyone know who is considering a transplant that Anna' always said, this journey was worth it. After her first transplant when she had a...
  4. L

    CountryGirl passed away

    <p>This is the first time I've been able to come on here. I want to thank you all so very much for your kind words about Anna' aka CountryGirl. <p>I want to let anyone know who is considering a transplant that Anna' always said, this journey was worth it. After her first transplant when she had...
  5. L

    Inspiration Books

    It's not new but definantly worth mentioning just in case you haven't read it. <u><b>The Power of Two</b></u>! Soon to be a movie.
  6. L

    Inspiration Books

    It's not new but definantly worth mentioning just in case you haven't read it. <u><b>The Power of Two</b></u>! Soon to be a movie.
  7. L

    Inspiration Books

    It's not new but definantly worth mentioning just in case you haven't read it. <u><b>The Power of Two</b></u>! Soon to be a movie.
  8. L

    ABPA and flare ups are they alot

    Itraconazole is a antifungal not an antibiotic. This is how my daughter was treated. She was given an oral dose of Prednisone (I can't recall the dose as it was back in 2002) and Sporonox (Itraconazole). The Prednisone was semi-long term, about 4 months, the Sporonox was about 6 months. That...
  9. L

    ABPA and flare ups are they alot

    Itraconazole is a antifungal not an antibiotic. This is how my daughter was treated. She was given an oral dose of Prednisone (I can't recall the dose as it was back in 2002) and Sporonox (Itraconazole). The Prednisone was semi-long term, about 4 months, the Sporonox was about 6 months. That...
  10. L

    ABPA and flare ups are they alot

    Itraconazole is a antifungal not an antibiotic. <br /> <br />This is how my daughter was treated. She was given an oral dose of Prednisone (I can't recall the dose as it was back in 2002) and Sporonox (Itraconazole). The Prednisone was semi-long term, about 4 months, the Sporonox was about 6...
  11. L

    Something unusual happened today

    I'll start by saying, I am majorly anti-smoking. I'll complain about it out loud if I have to walk through it. I'll point it out if someone is standing in front of a doorway. I'll bring it to their attention if they are illiterate or blind and can't see or read the giant no smoking sign they are...
  12. L

    Something unusual happened today

    I'll start by saying, I am majorly anti-smoking. I'll complain about it out loud if I have to walk through it. I'll point it out if someone is standing in front of a doorway. I'll bring it to their attention if they are illiterate or blind and can't see or read the giant no smoking sign they are...
  13. L

    Something unusual happened today

    I'll start by saying, I am majorly anti-smoking. I'll complain about it out loud if I have to walk through it. I'll point it out if someone is standing in front of a doorway. I'll bring it to their attention if they are illiterate or blind and can't see or read the giant no smoking sign they are...
  14. L

    uncomfortable with decision

    Just a quick FYI on the hypertonic saline. If he already has a scratchy throat, it might aggrivate it. Both my girls complained of scratchy throats and couldn't tolerate it long enough to get through an entire cycle. They used 7% hypersal. That's not to say your son will have the same reaction...
  15. L

    uncomfortable with decision

    Just a quick FYI on the hypertonic saline. If he already has a scratchy throat, it might aggrivate it. Both my girls complained of scratchy throats and couldn't tolerate it long enough to get through an entire cycle. They used 7% hypersal. That's not to say your son will have the same reaction...
  16. L

    uncomfortable with decision

    Just a quick FYI on the hypertonic saline. If he already has a scratchy throat, it might aggrivate it. Both my girls complained of scratchy throats and couldn't tolerate it long enough to get through an entire cycle. They used 7% hypersal. That's not to say your son will have the same reaction...
  17. L

    How...?!? This is really overwhelming.

    Hi Harriett, The first time is kinda scary too. 2 hrs. is a long time for an antibiotic to run. First I want to ask if she's on a syrnge pump or the little balls? If you are using the little balls, which at this moment I can not remember the name, be sure to take them out of the refridgerator...
  18. L

    How...?!? This is really overwhelming.

    Hi Harriett, The first time is kinda scary too. 2 hrs. is a long time for an antibiotic to run. First I want to ask if she's on a syrnge pump or the little balls? If you are using the little balls, which at this moment I can not remember the name, be sure to take them out of the refridgerator...
  19. L

    How...?!? This is really overwhelming.

    Hi Harriett, The first time is kinda scary too. 2 hrs. is a long time for an antibiotic to run. First I want to ask if she's on a syrnge pump or the little balls? If you are using the little balls, which at this moment I can not remember the name, be sure to take them out of the refridgerator...
  20. L

    Mucus in baby's stool

    It's been many years since I've changed a CF diaper and I can only tell you what I experienced. Our oldest was not diagnosed until one week before our second was born. Our youngest was started on enzymes within the first 2 weeks. They started her on enzymes after her test results came back from...
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