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I think the only way this research will help is if they clone us a pair of our lungs. That way we all get a fresh start at breathing without transplant disease. From what I understand stem-cell research is way off from helping us, and when it will eventually help us, it will likely only be...

From what i have read, it breaks down the protein bonds in white blood cells found in mucus. Since CFers always have a bounty of mucus in their lungs it works well, at least in most individuals. It works most efficiently in a moist climate. I use to live at 5700 elevation and given that there...

I've been to the adult clinics at University of California at San Francisco Hospital, John's Hopkins Hospital, University of New Mexico Hospital, USC Hospital, and the UCSD Hospital, (I travel a lot.), and I found that each clinic does something a little different than the next, though they all...

Sounds like you have Candida Albicans. I think it is chronic to CFers because, and only because of all the antibiotics. When the Candida gets out of hand, all sorts of things can happen. Ultimately it too can tax you immune system. The only thing I recommend is supplements. I would...

I use to have a distended stomach. It went away once I became religious about taking my enzymes. My parents died when I was younger and I became responsible for taking my enzymes. There was a point where I didn't take enzymes for 2 years, with the occasional exception. I didn't know any...

As a cf adult, i strongly disagree that any calorie is a good calorie. I suspect a fair percentage of our general ailments are due to horrible dietary habits encouraged by the ignorant CF dieticians. Stuff like Scandishake is full of crappy calories from sugar and dairy fat. This is the...

Dear Parent, As a CF adult, and having obviously been a CF child, I can't imagine why your spouse chooses not to participate in his (?) child's care. If it was clear to me that, as a child, one of my parents didn't want to get involved it would devastate me. The disease is hard enough alone...

Ashley, I am sorry you are having a tough time. I am a 33/m and deal with depression on occasion too, more though as my PFTs drop. It is tough to see and accept the process when you are knee deep in it. The first thing to ask yourself is what are you depressed about? Obviously CF is a huge...

I also use to work about 50-60hrs/week, but my health was strong at that time (FEVs were between 70-85% depending on the week). But these days, I am working 30 hrs/week and that is on the verge of my capasities. My FEVs are now at 50% on a very good day. Best of luck.

I am in the process of moving out of state and having to pick up a new health insurer. I am finding that I will be likely paying out of pocket for quite a bit of my care, where as before in New Mexico using BC/BS, I payed nothing for perscriptions and about 15% of every hospitalization. My...

I lived in France for a little over a year and I did have some difficuties with my adaptor/nebulizer. Some nebs have electicity demads which cycle in a special way. In Europe this cycle is different and usually a converter can resolve the problem. Though in my case, using an adaptor, my neb...

I have had so much fun with my gas too. I am so glad that you seem to have embraced your "Superpower". I am just about 33 yrs. of age, and this never gets old. Perhaps its because I am a male, perhaps it is basically humorous to the human condition. Who is to say? But, boy do I have some...