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My son has many special needs and something you said caught my eye. You said he seems to loose track of time. Do you notice if he seems to stare blankly at times, even for just very short periods of time.? I wonder if he has had a EEG before or more importantly lately? He may be having...

Thank you Triplet15. We appreciate it. If you or Justinsmama happen to be on here each day, voting is going on until the 26th. One vote per day is allowed. Yes Oscar is beautiful. We are so blessed. He is a super hero to us. He has transformed our son before our eyes. Thanks again for...

Justinsmama, thank you so much for taking the time to vote and for sharing this with your friends. We appreciate it. They are in the top 10 right now. The winner will be picked from the top 10. Thanks again

Hi everyone. My son has CF and autism. His service dog Oscar is in a contest to be a super pet for a local company. For some reason my son wants his dog to win so bad. He is so excited about this. Please take one minute to click on the link and vote for Oscar our super star. In my eyes we are...

Hi everyone. My son has CF and autism. His service dog Oscar is in a contest to be a super pet for a local company. For some reason my son wants his dog to win so bad. He is so excited about this. Please take one minute to click on the link and vote for Oscar our super star. In my eyes we are...

Hi everyone. My son has CF and autism. His service dog Oscar is in a contest to be a super pet for a local company. For some reason my son wants his dog to win so bad. He is so excited about this. Please take one minute to click on the link and vote for Oscar our super star. In my eyes...

Thank you Hammerpocket for your reply. You are right about the his tube feeds contributing to dehydration. Unfortunately we have no choice but to use a feeding tube. He is 17 and weighs 72 pounds. The formula is very concentrated. This is one thing I am going to discuss with hi gastro...

Hi, I was just wondering if you have looked into your neighboring YMCA? They do offer scholarships for families who meet their income guidelines. If you do qualify, this would be something your entire family could benefit from and they almost always offer gymnastics. good luck

You need to take enzymes with this formula. My son usually takes 5 with meals, 4 with snacks, and 6 with formula.

Last January my son was inpatient at a children's hospital for a gj tube placement. Unfortunately things went bad and he ended up bleeding internally and loosing over 40 percent of his blood. He required 3 transfusions. After receiving those and thinking things were going to head in the right...

Thank you so much for the great info. I know drinking a lot is very important. The one hurdle we have is my son also has autism and hates to drink. He has a feeding tube but a concern is that the type of formula he is on and because of allergies, it's the only one he can use can be...

My son just recently after a lot of pain and blood in his urine, passed 2 kidney stones. I emailed his urologist who said that people with cf are at risk for developing them. This is something I did not know. We we just did a 24 hour urine collection and he is scheduled to meet with a...

Where do you live? We are in PA and my son is on Medicade and our income is not considered. It I a special needs kids loop hole program. He receives full medical insurance. All we needed was a letter from our doctor asking he be included in the program and a denial from social security based...

We just returned from our sons Make ?A Wish trip and had the most wonderful time ever. Unfortunately we will not be returning to Disney because mu son also has autism and cannot do a trip without the old guest assistance card. It would be a miserable trip for all of us. i made observations on...

I know she won't swallow a pill, but I would think it would be a small pill or a pill you could cut up with a pill splitter. Try hiding it in chocolate pudding, applesauce, or something she will swallow without heeding to chew. This worked when my son was her age. We used chocolate pudding...

Wishing you the beat of luck also. Maybe look into having an advocate attend with you. I hope things go well for you. Take care!

Good luck TreasureGoddness, we received news that my so can attend 1/2 day with his service dog. I hope things go as easily for you as it did me. Janelle

I am meeting with my sons school tomorrow regarding a 1/2 day program. His situation is a little different. He also has autism and we are looking at the life skills class for him. We are trying to get his service dog to attend also. We are able to do 1/2 day because of treatments and he's on...

When speaking with my sons cf specialist, Dr. Oreinstein, he said that the big guru of Cf (forgot his name) is saying that cf is a clinical diagnoisis. Even though for most peopke it can be determined thru genetics it does not apply to everyone. There are many people that have the same...

Thanks Epona, I will be getting this book.