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Brian came home yesterday!! Yay! Its so nice to have him back. His staples come out in a week, and we should have the pathology back on the tumor then too. But he's doing great. What a relief!!

My Brian gets to escape!!!!! He got unkooked from his IV and catheter this morning. He got to have real food finally and tolerated it fine. He had already got up and walked, brushed his teeth, and shaved before we got there this morning. He just wanted to go go go this morning. We took him to...

He does better everyday. He did 5 laps around the nurses station, the doctor wanted a minum of 3 so that was great! Every time gets easier which is encouraging to him. He realizes now that he'll get better and get home faster if he moves. He finally got clear liquids today. He had jello, apple...

They started him on Toridol for pain, which he has had for migranes and says its working great. Its not a narcotic either which he's also happy about. He was able to sit on the edge of the bed for about 45 minutes this afternoon. He got a little dizzy but he hasn't eaten since Tuesday night and...

The docs were very happy with how everything went! Blood loss was minimal, his vitals were and are strong. He's in a lot of pain so they are trying to find something to manage his pain better. They opened up the kidney and tumor when they got it out and they said it looks like it was just...

until Brian's surgery to remove his kidney and the huge tumor that's taking it over. On the one hand I'm nervous, on the other I can't wait to get this behind us. His mom is coming on Tuesday. I'm so glad she is able to come and help. It was hard enough trying to get 4 days off for this, there...

.....if anyone on here was seen by doctor Lewiston (sp??) at Stanford University in California. He diagnosed me and my brother. He died sometime in the mid 80-s I think. My mom said he was a great doctor, despite the fact that he had 3 wives.

So my new insurance company wants a list of all doctors and meds I've seen/taken in the last 6 months so they know what is for pre-existing conditions (even though they have to cover it anyway...dumb). So I call the nurse who coordinates the CF CLinic I go to today to ask her to fax it to me...

I finished a 2 week course of levoquin (levoquil?? whatever) about a week ago and am 3 weeks into a 4 week course of Tobi. On Friday I got a sinus infection that hit me really fast. I felt fine until about 4:00 in the afternoon. I actually thought I was allergic to some lillies someone had at...

http://www.usatoday.com/news/health/2006-02-12-cystic-fibrosis_x.htm The CF Foundation emailed this article to me (I am a team leader for Great Strides so I get interesting stuff from time to time). Its probably not anything new to most of you, but its nice to know that CF is getting...

I'm enrolled in a study with Tobi, they want to see if the levels of it build up in the lungs over time. Anyway, I've only ever done a two week course before and honestly was not very good about doing all the doses that time...oops...This time I'm doing much better about that but now I have this...

Hey, I tried to find the information you were talking about but didn't have any luck. Do you remember a little more about where I can find it? THey are telling him it could be upwards of a month before they can get him in at Madigan, which I think is complete cr*p. THere has to be a wa around it.

Brian heard from the doctor today. They are now saying there is an 80% chance of this thing being cancer. I felt sick when he told me and I just wanted to come home, but we were short handed at work and I had come in 2 hours early to help cover. The doc is consulting with another doctor at...

Hmm Enough said in the topic I suppose. I hope all is well with the IVF, when can you do a preggie test? Brian is driving me up the wall about this thing on his kidney. I hope we get his surgery scheduled for next week. At least then we have something firm to look ahead to and we can get the...

Hmm Enough said in the topic I suppose. I hope all is well with the IVF, when can you do a preggie test?

Brian went to see the urologist/surgeon today about the mass on his kidney. Based on the CT scan from last week the doc said it looks like a type 3 complex cystic mass which in english means there is a 50/50 chance that its cancerous. The doc wanted a more specific CT focusing on the kidney...

My wonderful boyfriend Brian found out today that he has a 4 inch mass above his left kidney. THis coming on the tail of my friend passing away from cancer means I am not handling this news very well at all! I'm trying to be optimistic, we don't know what it is yet, it could be only a...

I'm so stoked to hear that you will be coming to Everett!! My boyfriend Brian is in Port Ops at Naval Station Everett!!! I hope they don't change it on you. He was curious to know if you are enlisted or an officer? Let me know....my email is thefrogprincess@mail.com if you don't want to post...

I found out this afternoon that one of my best friends in the world passed away this morning. He just found out he had cancer a few weeks ago. It was so bad that he really had no time left. I didn't even get a chance to say goodbye because he lived in another state and was in the hospital and...

So last spring I had an abnormal pap smear, first of all it took my doctors office 7 MONTHS to call me about it. So they refer to me another doc in the same office for the follow up, well it turns out that my regular doc didn't order the additional tests she should have on the original sample...