Cystic Fibrosis Forum (EXP)

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  1. T

    Need some good vibes

    I just found out that my uncle was in a motor cycle accident and smashed his face breaking almost every bone. He will require some extensive surgery when the swelling goes down. To top it off when they did an MRI they found a tumor or anyuerism (I know I destroyed that spelling) on his brain...
  2. T

    Not CF related but a chance to do some good!

    Check this out! It is totally free, don't even pay for shipping! Please order a kit today. For every bracelet kit ordered "Merck" will donate one dollar to Cancer Research. The kits are totally free and are very cute. Please help spread the word about this worthwhile cause...
  3. T

    AAAAAH!!!!

    Brian asked me to marry him today!! I had no clue, it was a total surprise! We went over to our friend's house (I was like "What's going on at Kenny's?"). WHen we got there he said he had a surprise for me. I kept bugging him about it then he was down on one knee!!! He said "Marry me babe."...
  4. T

    Hospital Humor

    The post about passing the time in the hospital made me think of some of the jokes I've played on the nurses. When my brother was in the hospital getting his g-tube we would smear vasaline on the door handle then page the nurse. It was funnier when your'e 10. My favorite though is if you know...
  5. T

    New Neb cups...

    Ok, so I haven't done regular nebs for almost 20 years. Now I'm doing HS and I only have the 1 cup they gave me. I want extra just in case I manage to break it (I would) but all I have are the ancient ones from when I was a kid. How do I get more? Do I need a perscription? I'm clueless here.
  6. T

    For anyone who is ever a customer.

    Take it from someone who works in customer service. IT IS NEVER OK TO YELL OR SWEAR AT SOMEONE WHO IS TRYING TO PROVIDE YOU WITH GOODS OR SERVICES!!! At the very least you will not get what you want, at worst you'll get the cops called on you. I had a customer today (I work at a check cashing...
  7. T

    Good Doc appointment

    So I've been having a terrible time trying to find a general practitioner to deal with all my girly stuff. The last one hardly even took my history! Today though I had an appointment with a good doc I think. She took a thorough history and family history, she asked how I'm doing with my CF and...
  8. T

    Migraine

    Anyone ever have this happen? THis past Wednesday I had a migraine, complete with mild dizziness, nausea (sp??), sensitivity to light, and of course lets not forget the splitting headache and wishing I would just die! Anyway, the seasick feeling is still going on! By that I mean the dizziness...
  9. T

    Those with one lung....

    I had never heard of someone have one lung removed until a few people mentioned it on here. I am not anywhere near needing a procedure like this, I'm jsut curious about how it effects your day to day life. Do you have to limit activities...do you feel a big difference?
  10. T

    Ups and Downs

    I never, NEVER though I would be seriously considering antidepressants but I don't know what else to do other than get really drunk every night. I can't even be happy that today my PFTs held steady at 58%. The last two times I went to clinic I had to do a course of oral antibiotics and TOBI. I...
  11. T

    Need advice

    So many of you know that Brian had his left kidney removed on MArch 9th due to a huge cancerous tumor on it. You may also know that this is the only treatment the doctors feel he will ever need. He has to have annual CT scans but that's it. I understand (probably better than most) how scary...
  12. T

    Woohoo!

    I got word today. We have exceeded our goal by a minimum of $700. That is probably a low estimate since I don't have totals for everone yet. THere are still 2 weeks to go for the Seattle walk so it can only get better!
  13. T

    Ever heard of something this rediculous?

    So the cat got a urinary blockage. I guess when a cat gets a UTI their pee litterally turns to crystals and can block the urethra. So I take him to the vet. Of course this was at midnight on Saturday so its the emergency vet. I know its going to be expensive, but I figure I'll deal with it...
  14. T

    Julie! Easter?

    Hey Julie, just wondering if you have plans for Easter. If not you and Mark are invited over to our place for dinner. I was gonna send you a regular email but for some reason I can't get my address book to open. So email me at thefrogprincess@mail.com and let me know!
  15. T

    Brian is feeling better

    No fever today and no puking!! Yay, I talked to my mom today and she said that her and my dad had a stomach bug this week. I think that's what it was. I'm glad we went to the ER though, if nothing else they got his pain under control and got him hydrated through the IV. I took the day off work...
  16. T

    Just when you think everything is going great....

    It's five in the morning. I've spent all night in the ER with Brian because he's been puking and had a fever all day. Wonderful. It took 6 hours for them to say, it could just be the stomach flu with really bad timing, or it could be the early stages of an infection related to the surgery. I...
  17. T

    Its official.

    Yep, we finally got the pathology results today. The tumor on his kidney was cancerous. But the good news is that it was not an aggressive cancer, it was contained in the kidney, and they got all of it. He will go for a CT scan in 6 months, then again 6 months after that, then if those are good...
  18. T

    So proud of my man!

    Brian continues to do better every day. I'm going crazy waiting for the pathology results on the tumor, even though we already know that we probably have nothing more to worry about except a CT scan once or twice a year. It has been 2 weeks since surgery, and 2 weeks since he had a...
  19. T

    Brian still doing well!

    Yay to my man! He got all 24 staples taken out yesterday. 24!! Can you believe that?! His scar is about 12 inches long. He is doing great, very energetic, good appetite. He is still taking pain meds, but has cut back. He should go back to work in about 2 weeks or so. They didn't have the...
  20. T

    Home home HOME!!!!

    Yay!!! We're home!!!!!! Brian will do so much better at home, as you all know a lot about! He over did it a little yesterday, but you have to find the limit to know what it is. He felt it this morning. The staples come out on Monday, and we should have the pathology back that day as well. He's...
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