Cystic Fibrosis Forum (EXP)

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  1. T

    Spoke to Julie.

    I thought Mark might be too wiped out to post an update tonight and I just spoke to Julie for a minute so I thought I would post a little something. I remember I was exhausted after Brian's kidney surgery. I spoke to her for just a minute. I didn't want to keep her long because she needs her...
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    Would have blogged, but its down.

    Soooooo, I had my clinic visit today! First one post abx, and it went well! There was really no change in my PFTs which I was disappointed about, but the doc was encouraged that I am feeling so much better. I was not SUPER suprised by not seeing a change because my brother doesn't usually see...
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    Anyone else going to be at UW this Monday?

    I have my clinic appointment is Seattle this Monday at 9:30. I was wondering if anyone else is going to be there? I will be a little early so if you want to stop by the coffee shop with me let me know!
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    Am I crazy?!

    For the first week of my IVs I could barely stay awake thanks to cefipime. I was mostly fine with this since I slept great! Then I started to tolerate it better and wasn't so groggy. But for 2 nights in a row now I haven't slept!!! I will lay down and get into a pretty deep relaxed state...
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    HEEEEELP MEEEEE!

    My PICC has been hurting all day. I called my nurse at the home infusion company and she said to go to the ER. So I did. They did a chest xray to check the placement. That was fine. There are no signs of infection, no clotting. They said my chewt xray showed that I have an upper...
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    What does your screen name mean?

    So, there are some screen names that make sense, married2cfer, blodelawyer, 65rosessamurai.....but some I have always wondered about! So enlighten us! What does your screen name mean? Mine is pretty self explanatory. I collect frog thingys!
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    AHAHAHA!

    Body: This is an actual letter from an Austin woman sent to American company Proctor and Gamble regarding their feminine products. She really gets rolling after the first paragraph... PC Magazine's 2007 editors' choice for best webmail-award-winning letter.... Dear Mr. Thatcher, I have been a...
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    Are you a Martha....

    Are you a Martha or Maxine ? > * Martha's Way* Stuff a miniature marshmallow in the bottom of a sugar cone to prevent ice cream drips. *Maxine's Way * Just suck the ice cream out of the bottom of the cone, for Pete's sake! You are probably lying on the couch with your feet up eating...
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    Best holiday memories...

    What are some of your best holiday memories? No matter if it was from when you were a kid or not, let's hear it. Mine are: When I was little we would spend Christmas Eve with my mom's side of the family and Christmas Day with dad's. One year on Christmas Eve (I must have been 5) my dad and...
  10. T

    Ovarian cysts

    So I have a 4 1/2 cm cyst on my right ovary. It was found in the ER the same time that my inflamed appendix was. The thing is pretty painful, especially today. I am not on birth control because we were going to try to get pregnant but that is no longer the case (long story). I have an...
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    If anyone is in the flood zones, WA & OR

    Is anyone in the flooded areas of Oregon and Washington? How are you? PM me if there is anything I can do for you! Here's hoping that you are all well and I don't get any responses!
  12. T

    Tickly thoat!

    I keep waking up coughing because I my throat tickles! Its so annoying! I am not coughing up much mucus so I don't think an infection is brewing. But being that I am trying to recover from my appendectomy this hurts and I need my sleep! What do you guys do for a tickly throat? Taking few...
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    How to make a woman happy vs making a man happy.

    It's not difficult to make a woman happy. A man only needs to be: 1. A friend 2. A companion 3. A lover 4. A brother 5. A father 6. A master 7. A chef 8. An electrician 9. A carpenter 10. A plumber 11. A mechanic 12. A decorator 13. A stylist 14. A sexologist 15. A gynecologist 16. A...
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    Home now!

    I am going to blog about my whole fiasco this weekend as soon as I post this message. I just wanted to let everyone know that I a home now and doing well. And I wanted to thank everyone for their kind wishes and prayers!
  15. T

    CF thing or not?

    I'm just wondering if anyone else out there has a ton of earwax! All my life doctors have commented on the insane amount of ear wax I produce. I swear I clean my ears everyday and there is all this stupid wax!
  16. T

    Who has Facebook?

    So someone forced me by gun point to join facebook! LOL. So now I need friends, PM and I will give you my last name to add me!
  17. T

    HOW TO HANDLE IRRITATING SEATMATES

    HOW TO HANDLE IRRITATING SEATMATES ON AN AIRPLANE If you are sitting next to someone who irritates you follow these instructions: 1. Quietly and calmly open up your laptop case. 2. Remove your laptop. 3. Start up 4. Make sure the guy who is annoying you, can see the screen. 5. Close...
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    Something funny came up in chat.

    So we got to talking about how we all have past skin and Jazzysmom said that we should have our own color in the crayola box. But we couldn't come up with a name for it. What do you all think?
  19. T

    Thank a Veteran.

    They did their job so that we could be free. Just a friendly reminder for everyone to show your appreciation and take the time to remember those who made the ultimate sacrifice. ~Proud wife of Brian, active duty in the US Navy ~Proud daughter of John, veteran of the US Navy and US Army...
  20. T

    Thank a Veteran.

    They did their job so that we could be free. Just a friendly reminder for everyone to show your appreciation and take the time to remember those who made the ultimate sacrifice.
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