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I've not been able to connect to the Great Strides site for a few days now, from my laptop computer. Here's the weird thing. I was a school for a bit today and tried from there just out of curiousity, and I got on, just fine. I got the e-mail notification that someone donated to Isabelle...

We are gearing up for our biggest CF fundraiser on April 26th. Visit www.tomatododgeball.com for details. Last year we showed Emily's montage between acts in the improv comedy show. This year, we are thinking about having Emily's montage and 3 -4 others running on a continuous loop during...

I have spent two very frustrating evenings trying to post a link to Emily's montage to various places. Finally asked my husband to help out and he just stormed off, mad that he can't get certain things to work, either. Has anyone been able to post a link to a One True Media montage on the...

This has happened three times in the last week. Emily will start to shiver uncontrollably, then vomit profusely. I am stumped. Each occurance has been in the morning, about an hour to an hour and a half after stopping her overnight feed. The shivering doesn't seem to be related to being...

This is the only TV show that I watch on a regular basis. (well, other than the WIggles, anyway...). We Tivo it and watch it after the girls go to bed on Tuesdays. So, tonight my husband turned it on, I"m in the kitchen cleaning up and all of a sudden I hear the words "Cystic Fibrosis."...

Emily's tube will be replaced by a MicKey button on Thursday. My husband took her to her last GI appt. and was given the appointment date for the switch. We didn't get any more information about it though, and I suddenly realized that I have no idea what to expect! Here are my questions. 1...

So, I can' t seem to bring myself to blog about this, much less discuss it with family and friends, but I thought this might be a good way to start coming to terms with the fact that Emily needs a g-tube. Our consult with the GI guy is on Thursday. I need to know what I should be asking...

Here's a link to my Thank You montage <a target=_blank class=ftalternatingbarlinklarge href="http://Great Strides Thank You">Great Strides Thank You</a> I had started out making it just to thank my team, but it kind of grew. I hope you will be able to copy the link and share it with any of...

I started out making a montage to thank my team members and it grew into this: Great Strides Thank You. I had hoped to have it done a whle ago, but just couldn't get to it. But, as my mother always said, "It's never too late to say thank you." So, if you walked in a Great Strides event...

Please say a prayer for the families of everyone involved in this tragedy. Today at about 4:00, a plane leaving Milwaukee, headed back to the University of Michigan crashed into Lake Michigan. It was transporting several organs, including a set of lungs. I am so upset about this. We have...

As "chairperson" for one the walks we did, I am making a video montage to send to team leaders who can send it to their walkers, who can, in turn, send it to their donors. It's just one more way to keep people thinking about CF and hopefully encourage participation in next year's walk. I have...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.tomatododgeball.com">www.tomatododgeball.com</a> Visit www.tomatododgeball.com to read about the fundraiser that our theater group is doing for CFF. Any ideas for silent auction items are welcome! PM me if you know someone who...

I am having a Pampered Chef Open House to benefit CFF and our Great Strides Team. Anyone in SE Wisconsin is welcome to attend on March 24 (PM me for details) but for anyone else wanting to place an order, we have set up a website for purchasing. It is www.pamperedchef.biz/lyndamctrusty...

I am having a Pampered Chef Open House to benefit CFF and our Great Strides Team. Anyone in SE Wisconsin is welcome to attend on March 24 (PM me for details) but for anyone else wanting to place an order, we have set up a website for purchasing. It is www.pamperedchef.biz/lyndamctrusty...

Here's a link to the montage I created for fundraising this year. Let me know what you think! <a target=_blank class=ftalternatingbarlinklarge href="http://www.onetruemedia.com/my_shared?z=14886f35e0a083852ee034 ">http://www.onetruemedia.com/my...4886f35e0a083852ee034 </a> Does anyone know...

I had the pleasure of meeting Christina (point) at the CF Education night at Children's Hospital in Milwaukee tonight. She and her parents were members of a panel discussing "Living with CF." Christina is beautiful, funny, well spoken...it was a treat to hear her, and see the obvious pride her...

It is -15 here with a wind chill of -31. (Wisconsin - Milwaukee area) We are home today because my school is closed due to the temps. Most of the schools around here are. I am drinking hot coffee and playing with the girls! What a nice surprise to be home! (Of course, I have to deal with a...

Like many others here, I am deeply saddened by the passing of Troy, dear husband to our good friend Karen. Karen was one of the first people that I felt connected to here. She hasn't been around for several months, so many of you do not know her. I don't remember if she told us she was...

Has anyone else here ever expereinced severe bloating/fluid retention after being given an IV for dehydration? Emily was (In my opinion) given too much IV fluid on Monday in the hospital and she is still very bloated in ther tummy, legs and feet. She was given two doses of Lasics in the...

Emily always,, always always has dark circles under her eyes as well as a bruise-like looking mark at the top of her nose/corner of her eye that has been there since birth. I never really thought much of either until i noticed that people kept commenting on both things. Several people have...