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After having four or five double ear infections since the middle of September, Emily will be getting tubes in her ears tomorrow. I know that it's a routine thing... Isabelle had it done when she was just a few months older than Emily is now. But, anytime anesthesia is involved I get a little...

Emily will go for her first PFT on Oct. 9th, three weeks shy of her first birthday. I know this is a pretty run-of-the mill thing and will be at least an annual occurance from here on in, but I'm pretty nervous about it. I'm not sure why I'm so worked up about it, but I'm already losing sleep...

Can some moms and dads of tell me your experiences with your cf kids not having bowel movements for 24 hr. or longer stretches of time? Here's what's up with us right now...Emily has been doing just great! Yesterday, all of a sudden, she vomited right after having a bottle. She hasn't done...

Threre has been a lot of talk lately about the class of mutations. What website/resouces do you use to find this out? Also, is any one Delta F508 and R553x? Thanks!

For the last week or so, Emily has been refusing bottles. She used to take 4-5 eight ounce bottles in a day, no problem, but now we are fighting to get 4 ounces in three or four times a day. She will take her solids a bit better, but even that is not like it was last week. She may be teething...

Yesterday Emily was particularly fussy. She refused her enzyme/solids - which is not like her, at all. I got a few spoonfuls of the applesauce in her when she started to just scream. She was visibly uncomfortable, arching her back, arms flailing, kicking and squirming. She looked to me like...

Something has happened twice now, and I didn't think too much of it until reading Melissa's blog tonight. I'm hoping someone can clue me in a little before I call the dr. Emily has had a little bit of blood inside her nose during the Albuterol/Pulmo/CPT/Tobi cycle. I think both times were...

Anyone else having trouble with the size 2 infant mask staying on the "Stem" for the Pari LC Plus neb cup? The size 1 fit nice and snug. The size two falls off constantly. Which seems minor until the screaming, flailing, really really strong 5 month old you're giving TOBI to has just managed...

We'll be starting solid foods with Emily in a few weeks. She actually gets rice cereal once a day with some applesauce mixed in, but we are eager to branch out. Both our family ped. and our cf nutritionist are ok with it, so why not? I know we want to start with the highest calorie stuff, so...

anyone else have the urge to create a post containing every four-letter word you can think of just to see how it looks with all the *****'s edited in? Really, there should be a way to not do the *****'s when ***** is part of a word!

We will be starting Emily on pulmozyme next week. She's developed a cough over the past few weeks and her latest chest x-ray showed some cloudiness on the left side. I'm curious if anyone had any trouble with pulmozyme in an infant. I know the TOBI tastes terrible, anyone know about...

I'm just curious how long various enzymes are "good" from the time they are given. We've been told that we have about 45 minutes to finish a feeding after we give emily her "beads and applesauce." Is 45 minutes standard? We use Pancrecarb MS-4's. Tami mom to Isabelle 3 yr. no cf and Emily...

Any one have any creative ways that they thank great strides donors or walkers? I'm looking for something beyond a note or e-mail that will not A. cost me a fortune or B. require me to make a huge effort to get the thank you's out in a timely manner. How are fundraising campaigns foing for...

Am I losing my mind? Yesterday I read the story about wanting to go to Italy but landing in Holland. I wanted to print it but didn't, and now I can't find it! Anyone know what I'm talking about!

Hi everyone. I'm pretty new here and haven't posted much, but I just need a little morale booster and this seems like the best place to get it. I have a 5 week ole daughter, Emily, with cf and a three year old with out. Maybe I'm just tired from the every three hour feedings, or the constant...