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Hey everyone, Just thought this was kind of cool. Last week when my husband and I were watching the Ohio State vs. Iona game we noticed the Iona head coach and coaching staff were wearing warm ups, as opposed to a suit and tie. The announcers went on to say that the Iona basketball team and...

Ugh, just got my letter that my disability case is being reviewed. When I was initially approved four years ago my paperwork stated that I would be reviewed in 3 years. So this is a standard review but it still makes me nervous. Just a quick question, but I may have more as I start filling...

Hey everyone, I've recently had an exacerbation and am not bouncing back like I normally do. I am going to try to really step-up the exercise in hopes to gain the lung function back. The problem is that I have an old foot injury that really acts up after using the treadmill (walk/light jog)...

http://www.huffingtonpost.com/2012/09/05/carlos-bbq-sauce-makes-dy_n_1858511.html?icid=maing-grid7|main5|dl17|sec3_lnk3%26pLid%3D201903 If I lived in Indiana or Kentucky I'd go pick up a bottle or two! Darn.

Hello again everyone! Don't necessarily know that I'm looking for specific info or advice, more of just a venting of my anxieties! But if you have any advice/info/support I'd love to hear it! :) I had my monthly port flush last week and we could tell something was awry. Flushed slower and with...

Hello again everyone! Quick question. I have had a Pari Trek S for about 3 1/2 years. It actually quit nebulizing properly a year or so ago and I have been using a Pulmo-Aide I bought out of pocket since. After reading on here that Pari's have a 5 year manufacturer warranty I called the medical...

Hi everyone, I changed to United Healthcare through my husband's employer in January. Yesterday I got a letter from a Nurse Case Manager saying she had been assigned to my case and is available to help me "manage my disease". Ha. It also said she has been trying to reach me by phone, which she...

Hello again everyone, Our daughter failed the newborn hearing screening and we have been seen twice for more extensive testing. Yesterday they finally sedated her in order to be able to complete the test. Even with sedation she still woke up after only an hour, just as they were finishing the...

Hey everyone, I just got home from Walgreens and I'm bit perplexed. Instead of Hyper-Sal (brand name hypertonic saline), I was given Sodium Chloride Solution 7%. I had heard that CF Services Pharmacy had a generic for Hyper-Sal but didn't know it would be showing up in retail pharmacies...

Hey everyone! Just wanted to update that I had our baby girl on October 27th! Her name is Maya (pronounced like Maya Angelou). She was born at 39 weeks and weighed 6lbs 15oz. Since there are a couple questions about mutations and pregnancy on the forums, mine are DF508/S945L.The delivery went...

Hey ladies (and perhaps gentlemen),Is there any reason my husband should get the shot rather than the nasal mist? I'm 36 weeks pregnant right now and just wanting to make sure there is no danger with being exposed to the live virus, albeit second hand? For some reason I'm thinking of having him...

I'm a large busted gal and have become even larger busted during my pregnancy.  I'm having a hard time finding any nursing bras in my size and it has become clear that I'll have to order them.  <br><br>I'm wondering if any of you have found a good non-underwire nursing bra that provides a decent...

Hey everybody, please hang in here with me and help if you can. <img src="i/expressions/face-icon-small-smile.gif" border="0">  I apologize in advance, this is going to be long.<br><br>My husband recently left an employer with very good benefits and accepted a position with an employer with...

Hey everyone, Sorry if this has been posted before but I wanted to mention it. A couple days ago I happened to notice that my local Target had Preseed on the shelf. I was surprised to see it, I had always ordered it online. I didn't even look at the price or the size of the bottle so I can't...

Hey everyone. This is a little off topic but I just came across this article and found it pretty interesting. A death row inmate is lobbying to donate his organs upon his execution. He was denied for many reasons, among which UNOS does not accept organs from inmates who are put to death...

Hi everyone, I'm now 11 weeks pregnant. When we first found out I was pregnant at 4 weeks my CF doc told me to stop Zithromax (M-W-F), Cayston (which i was cycling), and Mucomyst. I'm one of the few people that neb Mucomyst because I insist it helps me move more than Hypertonic saline. My...

Hey everyone... I have BCBS and for a 30 day supply I pay $9 for generics, $28 brand, and $47 specialty drugs. My only meds that fall under the specialty category are Pulmozyme, Tobi, Cayston and Hypersal. Does anyone else's insurance put hyper-sal into their "specialty drug" or highest copay...

I remember reading that some of you use dry shampoo during hospitalizations. I've never tried it but the next time I go "in-house"(which may be soon) I'd like to try it. Does anyone have a recommendation of what brand works well? I'm wondering if any kind will work or if I should avoid the...

Hi Everyone, I know we have a few tax experts on here (Julie, Loulou) and I'm sure others who probably can help me on this one <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm currently in the mannitol study and in 2009 I earned a total of $150.00(excluding mileage) for...

I just stumbled across this story on the sports website rivals.com. I was only reading it because it looked like a "feel good" story and didn't realize it was about CF til about 1/2 way through. I think it's a great story and anything that brings more awareness to CF is awesome! <a...