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I was recently approved for Social Security Disability (thanks to julie's help). I did not qualify for SSI because my husband makes too much money, so I'm only on SSDI. I vaguely remember reading something about people on SSI not being able to participate in research studies. I think it has...

Hi ladies......and gentlemen <img src="i/expressions/face-icon-small-smile.gif" border="0">. I know I've seen threads about whether or not your insurance covered your spouse/significant other's carrier screening, but I have a slightly more specific question. For those of you whom's insurance...

Sorry, MORE port questions. This time they are post-port surgery questions. I finally got my port two weeks ago today. It was really sore for the first four days or so and then started to get better. The problem is that now when I do certain things it still hurts pretty bad. It is placed very...

I know there have been tons of threads about ports so sorry to be redundant, but I searched the port threads and found mostly older posts that included anything about double lumen ports and wondered if anyone had more recent experiences with them. I'm asking because I am on my 3rd PICC in 4...

I just signed up for a blog, but it says it will be ready in 1-2 days so I'm going to put this here but it might be pretty long, SORRY! Anyway, I am 26 and my FEV1 usually sits right at 70% (has been for years). In clinic in August just two months ago it was 69%. I caught a cold almost a month...

Honestly, I don't know what I'm doing. I finally just opened a photobucket account and used the forum or message board link, but it still doesn't seem to be working.

Hello all! I have visited the forums before, but this is my first post. I am a 26 year old in Lincoln, Nebraska with CF. I have a question that someone out there may be able to help me with. I am going to Palm Springs, California to visit my sister on Wednesday (7/11). At home I use the vest...