Cystic Fibrosis Forum (EXP)

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  1. J

    Zyvox

    Has anyone ever noticed a difference between IV Zyvox and Oral Zyvox as far as the effectiveness goes? also, what are some of the side effects you have experienced while you are on it?I have only ever been on IV form of it but I was wondering about the PO version of it... Thanks Jennife
  2. J

    Monthly Expense

    Hi Guys, As you know I am looking to venture out and buy a home soon. I was wondering if anyone would be willing to share what they spend on average a month for healthcare costs, food shopping, insurance etc... If you are getting state or government assistance I would be curious about that as...
  3. J

    Something from Hermits Blog

    Chris posted this in her blog, I read it eariler in the day and it has been stuck in my head every since....... "My mom always says that when you have CF and you're sick, you're no longer able to see what's going on properly. She says "when a Cfer's sick, she wouldn't know to get off the...
  4. J

    Lawsuite with Tobi and Eflow

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.cf-dk.org/CFwwwNEWS/cfwwwnews.htm ">http://www.cf-dk.org/CFwwwNEWS/cfwwwnews.htm </a> Click on the link if you are interested.. It really is frustrating...Here is an part of it " Despite these developments, however, Chiron has...
  5. J

    Lawsuite with TOBI and Eflow

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.cf-dk.org/CFwwwNEWS/cfwwwnews.htm">http://www.cf-dk.org/CFwwwNEWS/cfwwwnews.htm</a>
  6. J

    Question for Parents

    Hi, Just a quick question that came up in chat tonight.. I do not culture PA but I am on inhaled Tobi.. 28 days on 28 days off schedule... My doctor put me on it so that in the event I am exposed to PA I will be covered.. and to prevent me from getting it all together....I have been on it for a...
  7. J

    which neb cup for hypertonice saline

    Sorry I tried to search this but couldn't find it... I use the sidestream for my pulmozyme can I also use it for my HS?
  8. J

    Frozen Pulmozyme

    ... Does anyone know if that ruins them or not??? I don't want to waste my time nebulizing something that is not any good anyway..... I edited the rest because I didn't want it to sound like I RARELY have a good day because that isn't true at all, at least I don't think... anyway, Lindsey...
  9. J

    Question

    Do you think that a person has depression or would you classify it as just a natural feeling when someone with CF or a chronic progressive illness says that they wish they were not born because of how hard their life has been? Not when they say they wish they were dead, or that they are going...
  10. J

    Anyone Got an idea???

    Today I have had several asthma attacks, I know it is directly related to how windy it is outside..it started last night when I went outside at work to chase after a patient who decided they were going to walk home.... Duh I should have let her go but I felt bad for her... Anyway, Everytime I...
  11. J

    Computer question

    My computer is having some problems and the DEll company recommends that I erase my computer and start from fresh.. Obviously I don't want to do that becasue I have so many precious things on my computer including years of conversations with ppl who are no longer here. THey told me to save on...
  12. J

    Good Bye My Friend

    Good Bye my Friend... I hope you and John, and Dave and Kira are all together.. In Heaven... My heart is so broken, I can't believe you are gone.. We had plans.... What about meeting Mike in Cali??? I can't bear to lose you too... THe words below are from Kristal, RIch's wife.. Rich loved...
  13. J

    THe latest on Rich AKA Sleepwalk

    THis is a link taken from his caringbridge website.....RIch's wife Krystal, is keeping us updated.. What a rollercoaster ..Yesterday he was not even alert and now today.. I will keep you posted on the latest..... FRIDAY, FEBRUARY 02, 2007 11:12 AM, CST Big news this morning! The surgeon...
  14. J

    Thoughts, Prayers and Hope NEEDED

    I cut and pasted a blog from my friend RIch and Krystals caringbridge page. Rich is a good friend of mine, who I met when I met John. Rich is 34 years old and he is in need of a trasnplant.. He is at the top of the list and waiting,, The last few days have been real hard on him...and he has...
  15. J

    Insanley Dry Skin

    Anyone have any ideas what to do for really, really, dry skin. My hands and arms are the worst from washing them a million times a day.. I only wash with Aveeno severe skin relief body wash. After that I put Aveeno body oil over my entire body.. In between I use Aquafor or Eucerin hand...
  16. J

    Tobi in the inhaler form

    Today I had a CF clinic check up.. , I had no complaints, I feel good. everyone was helpful. I got loads of "gadgets to take home" New scripts...etc... I got a new... Acapella.. I love my RT and my acapella.. I got the scoop on the E-flow, which I have decided I am not going to get, but...
  17. J

    33,000 calories a day

    I am watching a TV show called. " I eat 33,000 calories a day" It is a show about morbid obese people. These people eat so much each day and are so overweight that they can't walk. Can you imagine if a CFer ate that much food? Holy Moly
  18. J

    Through the Eyes of a Patient

    I am writing a piece for our emergency newsletter. I was asked to write about "one of the diseases" I have the purpose of the newsletter is to educate the nurses and keep them abreast of some things Instead I asked if I could write to the staff about what it is like to be a patient.. since it...
  19. J

    CF Centers in South Carolina

    I was looking online at CF care centers in South Carolina.. I see there are two care centers, an adult and pediatric one in Charleston, and I See a Pediatric Care Center in Columbia..... Does anyone have any experience good, bad or indifferent with any three of these places? IF you live in SC...
  20. J

    CF on Touched by an Angel

    I just turned on the HallMark channel and TOuched by an Angel is just starting.. It is with a little boy with CF .. They showed him getting CPT, he has a feeding tube and he needs a lung tranplant.. COuld be interesting... or Could be stupid.. But I am watching... THought I would share
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