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Hi, Anyone go to any CF center in South Carolina, if so could you tell me where and if you like it there? Thanks so Muchhhhhhhhhhhhhhhhhhhhhhhhhhh Jennifer

Come now if you want...

Hi, Sorry, I can't seem to PM you, I saw in your response to a blog that you have CF and Addison's disease... SO do I ... and I only met one other person who did.. I was wondering if you knew what gene type of CF you have, I am a mild case of CF so far... also are you Primary Addison's of...

Today, when we talked to HillRom Vest company and told them my problem about not being able to use the full vest, they were so great, they are overnighting to me the other version of the vest, the chest vest.. No questions asked, no trouble at all.. They said it will be here by tomorrow...

Hope your day was good, I found what I was looking for

Hi, I was just wondering how you guys do your insulin, do you count carbs? Right now, I don't do that because it is rare that I need coverage, usually can be controlled with diet. I was wondering what your scale was mine is usually 140-150 2 units 150-160 3 units etc... Also, I just...

I really feel strongly to say this because if you guys are like me, you have no idea how our website was created, or the amazing heart and dedication that goes into. If you are like me, you probably never thought about it to much, and just took for granted the fact that it was here, and didn't...

Hi Guys, Just talk to Mel.. AKA Jazzysmom At the moment she has a bad headache but the nurses have just given her some tylenol for it. She is also sore because she is not used to the manual CPT but other then that she is doing well. SHe is expecting to stay in for the whole two weeks just to...

Hi My CF nurse just emailed me. She really feels like I need to be doing some airway clearence of some sort since I can't use my vest. My incision is taking a longer time to heal because I am on steroids so it delays everything... I have tried the vest again but it rubs on my incision and makes...

Hi.. Sorry.. I can't seem to PM you and I just was wondering what CF center you go to in NJ.. I live in NJ... and in recent days, I have met many CFers from this site and another one that live here.. Two of which go to my CF center...

I just wanted to post this in case you guys didn't read Sarahs blog. Sarah is running for us today.. Ready below. I am watching Sarah... and Believing you can do it... From Sarah's Blog Thank you to all of my well wishers and staunch supporters! I will be thoughtful and prayerful as I...

JUST WANTED TO MAKE SURE EVERYONE KNEW ABOUT THIS.. I AM CATCHING UP ON EMAILS.. MY CF NURSE EMAILED ME THIS.. THIS COULD BE REALLY INTERESTING "Quality CF Care is More Than the Numbers" A Virtual Patient Education Day Live Web Cast! November 28, 2006 Presented by the Cystic Fibrosis...

Hi, I figured this might be an okay place to post because many ppl with CF have had bowel surgery as well as transplant patients ao they have had to deal with scars as well. I measured the scar on my belly today..It took me all this time to work up the courage to do it.. It is 13 1/4 inches...

I was wondering if you guys know if your CF clinic went to the conference in Denver? Is this a requirement for all CF centers? or do they just go willingly? I know my CF Team, or at least the Doctor and Nurse went. I think it is so great that they all get together to exchange information and...

One of the things that happen to me post operatively was that I coughed up blood... not a little but a lot of blood... between what got suctioned out of my stomach and what came out of my lungs I needed a blood transfussion. A day after the surgery I became really anxious.. l was grabbing at...

Hi Guys, Thanks so much for all your kind and loving words to me.. I will do my best to update some now and I will have to do the rest when I feel better... I feel really sick..... My surgery went well in and of itself.... It went longer then they thought it was going to go just under 6...

Hi I was wondering if anyone has heard from Jan.. She is the wife of Greg who had a double lung transplant about a year ago maybe... He had cepacia.. last I heard was several months ago and he was doing well.. Just had stomach problems. She used to have a website Standing in the Gap for Greg...

want to with me?

Michelle, I got your really, really, nice PM.. and I tried to PM you back... I wrote a long response to you but it wouldn't let me send it... Also, for some reason the message is not in my inbox.. I really wanted to reread what you wrote to me and I wanted to talk to one of my friends about it...