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How often do you do HS a day? the script says 2 times a day for me, but I was just wondering if doing it 3 times on occasion - like if I feel really congested and want help getting stuff up - if 3 times would be too much. Just thought I would see if anyone knew anything about this. I figured...

For those of you on Oxygen or that have used oxygen in the past when did you start using it? What were your O2 Sats? How did using it start - meaning just at night, with exercise or activity, or did you just start immediately with using it all the time? Thanks a bunch - just my curious mind at...

So yeah I have been pondering this for the past few months. It seems that in September I started to feel and hear stuff moving around in my lungs. Not like crackles but like stuff was stuck to the walls in my lungs and the air is just blowing past it causing a funny noise and feeling. It is...

Well I posted this in the transplant forum and I only got one response - so I figured I would try posting it here and see if anyone else could offer input. What was your transplant centers survival rate - or if you are waiting what is you centers transplant survival rate .... 1 Month Out? 1...

Well I know Chris was not feeling well Tuesday and mentioned possible IVs starting on Thursday. I didn't know if anyone knew anything else. I haven't seen her on here the past few days. If you read this Chris I hope you are feeling okay and that you are starting to feel better. Thinking of...

I have started TOBI about 5 days ago. I have just in the past day started to develop a sore throat and a definite raspy voice. It is uncomfortable to swallow and I can tell it is only a matter of days before I lose my voice at this rate. I am wondering if there is anything that you all do that...

Okay guys, I have been wondering if there is any point in asking my doc about some type of maintenance treatment for the Staph I grow. Kind of like TOBI for Psuedo. I know in the past when I was younger my docs had me on Bactrim every other month and TOBI every other month. I have been...

Hey guys, I have been looking online and have read the inserts for some of my meds because I have been experiencing some things that I thought may be side effects to meds. I was just wondering if anyone else taking Nexium experiences these things. Acne - I am meaning an increase in acne if...

Okay I am posting this for another member who is having difficulties with their comp and can't post. The live in the midwest (Chicago area) and are seeking a second opinion about some things regarding their CF. They are wondering if anyone can recommend a CF Center or doctor that is familiar...

Okay well. I went to the ENT today basically to look into the nose bleeds I have been having. Well he changed my nose spray .. yet again and said just to keep using the saline spray until the nose bleeds stop. They have lessened quite a bit so that is a good thing. Well onto the sinus surgery...

Hey guys, Well I am a bit excited as I am ordered Glutathione today online to start taking as an oral supplement. I have talked it over with my doc and they are encouraging me to give it a try and see if I notice any benefits or see a difference in how I feel. Also they suggested Mucomyst to...

Hey there, I came across this link in an article on how to help prevent the flu and colds this season. The majority of the article said stuff we are all familiar with - i.e. hand washing, vitamins, rest, and some other miscellaneous things. Then the article gave this site. <a target=_blank...

Okay I wanted to post this because I can't remember where I saw the post or read about this on here, but I know I did. Also I think Jane posted about her sons having nose bleeds as well and I thought of her when my doc said this yesterday. I was at the allergist and mentioned that I had been...

Okay guys, I have been walking - I started about a week before I was admitted to the hospital this time, so I guess I have maybe stuck to a routine for about a month. With the exception of the past few days I have tried walking everyday - and the last few days I haven't due to doctor's orders...

I know I know .. I ask alot of these things. I am just curious when you guys have a few hard days - meaning tightness in your chest really short of breath and so on - do you find you have a more productive cough in the days afterwards - when you are recovering? As you may know by reading my...

Hey guys, I am doing my physio/vest and was wondering if anyone would want to chit chat. I am only able to access the young people chat area- so if you would like to talk that is where I will be for at least the next 30 minutes. Thanks have a good one, Lindsey

Okay guys, I have been on IVs for almost 3 weeks now. When I first started IVs - around the 23-24th of Sept. I started feeling good almost immediately. The stuff started loosening up - I was getting everything out and just yeah was able to breathe easier. The doc put me on Cefepime and Zyvox IV...

Okay I am just excited and need to share. I had a handheld percussor used on me for CPT for the first time when I was in the hospital at the beginning of this course of IV treatment. I fell in love with the thing -- okay not literally but it worked really well for me. I asked the doc about...

I have just recently been given the impression by my docs that I may have asthma along with CF .. or as one of my old docs has said .. an asthmatic component to my CF. I guess my question is for those with known asthma .... how do you tell the difference between an asthma attack or airway...

Well I have yet another question. I have had my vest for a little over a yr or so now. I have never been able to really bring much up with it. I have tried different settings - both frequency and pressure. I have tried different lengths of time thinking maybe longer would be better or what have...