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Okay guys, I know it is going to seem like I am nothing but problem after problem here the past few days, but I have to get advice from you all. I went out to eat last night at IHOP - I had eggs, pancakes, bacon and has browns. Well I ate the eggs against my better judgement (they just didn't...

Okay guys, I was just started on Nexium for acid reflux. I am on IVs and had gone to my doc for a follow up and was complaining about increased cough, sore throat, hoarseness, shortness of breath, tightness/discomfort in my chest not to mention that I had felt acid coming up my esophagus at...

Hey guys, I know this is off topic but I just have to ask because it is driving me insane. I went into chat on Tuesday evening for a little while. Well normally when I go to chat .. and leave the next time I enter it is refreshed so to speak ... there is a new list of people in the room ...

Okay I don't know how useful this will be for you all. I saw this today on my homepage and then saw the link at the end of the article about today being a National Depression Screening Day. I am including both the link to the article and the link to the site that give the location of places to...

Okay I have been thinking alot about this in recent months. The first thoughts popped into my head when I read several posts (to me a surprising number) from people with CF with adhesive allergies. I myself have adhesive allergies and find the white adhesive tape to be the worst. I have issues...

Hey guys, I was wondering what helpful tips you guys had for dealing with acid reflux caused by meds. Normally I do not have a problem with acid reflux - if I do it is nothing that is every noticeable to me. I am currently on IV med, a strong oral and aerosolized TOBI. I think the IV med and...

Hey there guys For those of you that don't know I was admitted to the hospital on Friday of last week. I am now home with my PICC (like it is a toy lol) and taking home IVs and doing all the nebs and therapies. Well I am using the vest this time at home instead of having manual CPT which I...

I am sure that you guys deal with this issue as well, but still wanted to ask to confirm in my mind that I am not wacky. I can sometimes feel/hear mucus in certain areas of my lungs when I breathe. NOT like "I get pain where there is a plug" feeling. More like I can feel the resistance as if...

The past few weeks to a month I have been losing more hair than usual. I have naturally curly hair, so I comb my hair very little. I tend to comb it when I get out of the shower - but do not mess with it the rest of the day unless I am attempting to pull it back in a ponytail. I would maybe lose...

Okay guys, I have posted a handful of times on here about anxiety. I have had in the past (meaning years ago anxiety issues, but they haven't been as prevalent in recent years). Well I have been having difficulty as of late when I am trying to sleep. I will start to obsses about the smallest...

I got this article sent to me by the local CFF Chapter today. I tried to see if anyone had posted it, but didn't see it. Sorry if this is a repeat though. The article isa copy from a word document that the local chapter sent me, also not showing on the copy is the Forbes.com emblem/logo that was...

Sorry ... problem solved. Edited to delete. Thanks Lindsey

Okay I know alot of you buy nebulizer/medicine cups for your inhaled meds online. I was wondering some of the sites that you guys go through. I take albuterol, HS, Pulmozyme and TOBI. I do not know where to look as I usually just get neb cups from the docs office or extras from the hospital...

Okay I give I thought I could maybe figure out a way to solve the problem myself, but have had no luck. I need some tips or some ideas to help me when I cough. I usually cough hard when I do cough. My upper stomach muscles get a good work out. The problem I ALWAYS get the urge to vomit. I know...

Anyone wanna chat I am just hanging out finishing with my vest. Stop in if you are interested in talking. Linds

Hey guys, Terri (kayleesgrandma) and Seana has already heard a bit of this cause I was up and talking to her a bit last night. I was just wondering what you guys thought. Last night I did my meds and went to bed at around 1 am or 1:30 am. I slept for a few hours then woke up to hange...

Hi there guys, I was wondering if anyone went to this center. If so I was also wondering what you guys thought of Dr. Malanga when he was at this center. If any of you read my post a few days ago about my going to a new Adult CF Center in town, the doctor I saw was Dr. Malanga. I am almost...

TO: GOD FROM: THE DOG Dear God: Why do humans smell the flowers, but seldom, if ever, smell one another? Dear God: When we get to heaven, can we sit on your couch? Or is it still the same old story? Dear God: Why are there cars named after the jaguar, the cougar, the mustang, the colt, the...

I was wondering if everyone here was seen at a CF Accredited Center or if anyone just saw a pulmonologist for their CF care. I currently see a pulmonologist because there isn't an Adult CF Care center in our town and the nearest one (about 1 1/3 - 2 hours away) I did not much care for them. I am...

Well for those of you that may remember about a month ago I made a trip to the ER because my heart was racing, I was short of breath, gasping for air, pain in my neck, shoulder and chest. I went was checked out had an EKG, CTScan, Xrays, Bloodwork, and sat on O2 for about 6 hours. Everything...