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I think I just having a really bad day but I need somewhere to write all this out so I hope it's ok to do that here. I've posted before about my failing marriage...there is definately no hope for it. For the 10th or so time in the last 11 months, he's turned down my request/offer to try...

After a stressful afternoon this past friday, I had a fantastic experience give to me/us by one man I had never before met, and he reminded me of all that is good in this world!!!! I wrote about it on our blog: www.our3.blogspot.com

I am working on writing a letter about Disability Advocates For Cystic Fibrosis that I am mailing to all the accredited CF centers in the US. The main purpose of this letter is to let them know that assistance is available for their patiens who are starting the Social Security Disability...

I'm trying to track down a document with all the MAILING addresses for all the accredited CF centers. I've contacted the CFF but they tell me their copy is only for CFF and that they can not distribute it . I've complied a word document of the names of all the care centers (taken from the...

I'm trying to track down a document with all the MAILING addresses for all the accredited CF centers. I've contacted the CFF but they tell me their copy is only for CFF and that they can not distribute it <img src="i/expressions/face-icon-small-sad.gif" border="0">. I've complied a word...

Mark is doing IV tobra at 4pm every day. How often should he be gonig in for blood draw for peak/trough? They don't want to see him until the 24th......I would figure it would be every day or every other day???? Thanks

I have another mortgage question on behalf of Mark. He bought a house in December with an FHA mortgage. Now that he's missed about 2 weeks of work, and it looks like he'll miss next week too, he won't be able to pay his mortgage. He's a contractor for boeing and has no leave/sick/vacation...

Mark had his follow up from being admitted, and she recommended he have a picc placed so that he can get IV medications. However, she mentioned to him that he shouldn't work with it. I'm pretty sure this isn't the case and I relayed that to him, but he said that's what she told him. Is this...

Mark called me last night and told me he was going to the ER, that he just didn't feel good. He ended up being admitted, for last night and tonight, and then they'll go from there. This is his first time being admitted, and although he hasn't expressed it, I know he's kind of scared as this...

Last night when I picked the kids up from Marks, I was driving off and noticed him coughing really badly. As soon as I got the kids down to bed, I called him. He didn't answer, and called me back about 20 minutes later. He told me he had been coughing up blood, just pure bright red blood. I...

I got quite a few inquiries about the IRS letter I got for the 501(c)(3) status for Disability Advocates For Cystic Fibrosis. So I just wanted to share with those who were curious that there is now a PDF document of it available online. <a target=_blank class=ftalternatingbarlinklarge...

I am excited and just wanted to share!!!! I called the IRS today to check on the status of my application for 501(c)(3) federal non-profit status and the woman told me, "ma'am, it's 6:28 and we close at 6:30, I've never been able to tell someone this before, but your application has been...

I am excited and just wanted to share!!!! I called the IRS today to check on the status of my application for 501(c)(3) federal non-profit status and the woman told me, "ma'am, it's 6:28 and we close at 6:30, I've never been able to tell someone this before, but your application has been...

So Mark has a hillrom vest, but he doesn't really like it and doesn't feel it really does anything for him. Has anyone tried the hillrom and a different brand, and liked the other brand better? I know there are a few different ones out there by now. Thanks

Why do bad things always seem to happen at once... I just really need to complain/vent and I don't know where else to do it. I know I'm not a CFer and I don't even really have "CFer related issues" anymore because of what's going on so please forgive me if this is inappropriate, but it just...

It was recently suggested that I do a little write up about who I am, and what my connection to CF and Social security Disability cases is. I think this is a good idea, and I would like to do it. Especially for those who might stumble upon the site and not know me from any of the CF sites...

Since this is like my second family, I've really felt the need to share what is going on with us, and (for honest responses) if I still have a "home"/belong here in light of this information. Mark has been cheating on me, and this isn't the first time (stupid me, I know). I kicked him out in...

I know this exists, does anyone have any site recommendations? I need somewhere to keep some of my documents that I need access to at home and at work.

I am so excited, my website has gone live and I feel like a little kid all giddy about it! Basically, I established this foundation to help others with CF who are trying to navigate the Social Security Disability system. After fighting for 27 months for benefits for my husband, I know...

I am so excited, my website has gone live and I feel like a little kid all giddy about it! Basically, I established this foundation to help others with CF who are trying to navigate the Social Security Disability system. After fighting for 27 months for benefits for my husband, I know...