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Me again... Guess I"m full of questions today!
Anyway...
I've been wondering recently how exactly psuedo. arg. gets into our bodies to infect us? I mean, I KNOW its on almost any living organism and in soil, water, etc... but, my question is how it gets into our lungs to infect? Do we...
Hello...
So, I know many athletes have come down with MRSA over the years cause of picking it up in gym locker rooms and on gym equipment. I've also heard news stories about it showing up in "normal people gyms" on weights, treadmills, etc... Most people can fight it off or live with it in...
Hey...
Well, I've been feeling really crummy the last couple of days.... not like a cold, or tune-up time, but basically really really lethargic, absolutely NO appetite (and when I do eat, its like one or two crackers and I feel queasy), achy all over (even in the joints in my hands!), chills...
Hi,
So, I'm wondering what a bronchoscopy entails? Do you feel it? Do you gag when they go in? You're awake, right? I'm terrified of ever having this procedure done. I'd deffinately need Xanax for that one!!! lol
I'm also curious why they don't give routine bronchs to CFers just to open...
Hi,
So, I'm thinking of asking my doc for O2 to have on hand for times when I'm feeling short of breath and especially for when I know I'm going to be somewhere around smoke (to take before and after).... living in Vegas, even the grocery stores have smoking, so I would hook up to the O2 for...
Hi,
I'm just taking a little "poll" to see what ya'll use for "opening up" your lungs in the form of a bronchodialator before you nebulize your medications. Do you use albuterol, atrovent, xopenex, or another one? Do you use one, more than one, or all of the above-mentioned?
Just curious...
Hi,
So my compressors (I have ProNeb and another one by PARI that is bigger but I can't remember it) are at least 15 years old each.... I'm curious if I can upgrade and have insurance cover it? Or, will they say I already have a compressor that works that THEY already paid for years ago? I...
OK, so I'm really confused and frustrated... I know many on this site cut out or lower carb intake cause of CFRD (candy, cookies, etc.).... Well, I'm afraid if I do this, even if I substitute nuts, etc. that are high in protein and fat, I will loose weight fast. I mean, even whole milk has lots...
I'm on 7% and find it takes sometimes 30 minutes to get toward the end of my treatment. They have me taking a total of 6 ccs (4 ccs 10% with 2 ccs 3%). Anyone else take this long? I often stop it early cause I just don't have time to sit and do this. Urgh.
Hi, ya'll....
So, I've been doing my HS in my Pari LC neb cups. Is this ok? I feel like I'm getting the med, though it does take a long time. I use the Pari LC for every treatment I do, cause I can get them free from my CF center. And, the other nebs you can't boil. So, do you think its...
Hey, gang!
OK, so I got an invite recently from the CF Services Pharmacy regarding a survery on why you do/do not participate in clinical trials. If you take the survey and are one of the first 200 to take it, you can donate your $25 to the CFF.
Here is the link:
<a target=_blank...
Just letting everyone know that as I've become increasingly addicted to these boards, it seems to be cutting into my work time. I can't resist once I start clicking to post and answer for hours, so I'm going to take a bit of a break so I can hopefully spend a bit more time working from home...
That's "Starbucks Anonymous" to the coffee-virgins out there <sips caramel macchiatto while dribbling a bit on the keyboard>
OK, so everyone always says that if you drink a latte from starbucks everyday, you WILL gain tons of weight (they use whole milk AND I take lotsa insulin for them), so my...
Hi,
What is your A1C? I'm curious cause I just got mine back and its 5.3. Not sure if that's "normal" for CFRD? What is the normal ranged for non-diabetics?
Also, I've been told in the past that A1C actually has no relevance whatsoever for CFRD and its not a necessary thing to check...
Hi,
I'm wondering if any moderators would consider adding a "recipe" section to the categories? I LOVE to cook, and am interested in a recipe sharing thread that I can look through if I need some ideas of what to make. They could directly relate to CF by being <b>high in fat/protein</b>...
OK, so I couldn't think of a better name for this post...
Here's my question:
I've noticed lately that if I go quite awhile without talking and then yell "yay!!!!" at my doggies to get them excited about something, it seems mucus gets trapped in my throat and I MUST clear my throat to breath...
Hello.
I've been noticing when I've posted about regular vs. diet soda, scandishakes (YUCK!), etc... that many people on here avoid things high in sugar cause they have CFRD. Now, I understand why you'd do that if you're NOT on insuling, but its my understanding that CFRD is different in that...
Urgh! So, I hadn't taken scandishakes in years, and now I know why... they're DISGUSTING! Now, I feel extremely nauseous. I usually have to guzzle them down very quickly, using water as a "chaser" and holding my breath. I'm sure this does not help my tummy feel well with all that sloshing...
Hi,
Can anyone find and bump the post HollyCathryn posted about sending your unused medical supplies overseas? I've looked and looked, and must just be overlooking it.
I cleaned out my supplies last night and have some to give.
Thanks,
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