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Just stubbled across this while searching for CF and exercise and thought you may like to read: <a target=_blank class=ftalternatingbarlinklarge href="http://www.wecare4lungs.com/cfe.htm">http://www.wecare4lungs.com/cfe.htm</a>

Hello! So, I know there is often some question as to the order in which to do inhaled meds. Well, I recently got a laminated copy of the correct order to do them in from my accredited CF center. I had actually been doing it wrong, so this was very educational to me! Here it is: <b>1...

Well, now for over the weekend I've been given a script for Lortab (Hydrocodone) for the TMJ pain. It seems to really help... mostly cause I'm feeling really really tired and dizzy, so not at all focused on my jaw! (and, I only took 1/4 of a pill!!!) So, has anyone taken this for pain? Is it...

Hi, Has anyone heard from Laura (aka Catboogie)? Maybe I've missed her posts, but I haven't seen her on the boards for awhile. Hope everything is alright. <img src="i/expressions/face-icon-small-smile.gif" border="0">

OK, so some of you know about my ongoing jaw craking,pressue and pain. Well, they just made a nightguard for me at the dentist and said if that doesn't work, they'll refer me to a TMJ specialist. So, my question is does anyone else have this? Does a nightguard help? What else do you do to...

OK, so I've not been on for awhile cause of vacations and getting a fever when on vacation and ending up in the ER and ...... long story..... Anyway, my question has to do with a post Amy posted regarding what CFF accredited centers do in order to become or continuing being accredited in terms...

I'm curious if anyone knows if cars can get worse gas mileage in 100+ temps when used to driving in 70-80 degrees? Both our cars are getting 4-5 miles less per gallon since the temps have been 110 or so every day. Is this "normal"? Thanks-

Hi... Melissa posted this in "prayer requests", but I think more people will see it in "adults" and I deffinately find it relevant as he is a fellow CF friend dealing with some very unfortunate stuff right now. Here's the link: <a target=_blank class=ftalternatingbarlinklarge...

Hi, Is it a serious risk when you skip or miss an occasional colistyn treatment? I wonder if its the same as an IV with an antibiotic where when you miss, you're actually building up a resistance to the effects of the drug, so its pretty serious to do every single treatment on time with IV...

Hello. I have been on HS for a couple months now. I notice I really don't cough very much at all when I do it. I used to cough a lot when starting it, and during the first 5 minutes of my treatment... it was quite amazing. Well, now I can get through almost the whole thing without a cough...

OK, so I have it set up to have my new PARI-Ultra Proneb delivered tomorrow! YAY!!! I've had this one for 10+ years, so its time to get a newer version. lol! I wanted to give a heads up for those considering a new compressor AND to anyone who has also experienced this, please share... I...

Hi. I know this has been asked before, but I thought maybe some new members may have some insight, and those of you who have answered can feel free to "refresh" my memory. I'm wondering which one of these CFers should take for pain (NOT fever)? I often have pain after running or soreness the...

So, I've been feeling a bit more short of breath lately, and also seem to be coughing up a lot more. I should mention I'm also on my 2nd month of H.S., so maybe that has something to do with the more persistant daily cough... I notice I cough up a lot throughout the day. So, would you go in...

Hi! OK, so in a few hours I have to get some cavities filled AND am going to have impressions taken of my teeth for a nighttime whitening kit from my dentist and also for a night guard for my teeth. I'm terrified! I have a pretty touchy gag reflex, and all I remember about doing this when I...

Well, I recently went to the PARI website since I'm in the process of having a new compressor Rx'ed. Well, when clicking on "Local Distributors" to find someone around me that carries PARI, only about 3 of the 15 or so phone numbers was actually working! Some had recorded messages giving me...

OK, so my jaw has been cracking since I was like 10. I used to wear a dentist-made night guard for grinding my teeth at night. It seemed to work ok. Then, about 4 years ago, my dog got it and chewed it up. So, since then, I've been using either the ones from the drugstore that you boil and...

Well, here it is.... a place to rant about a crummy experience with ANY <b>accredited</b> CF center you've ever visited. Please only give really poor treatment (Please share SPECIFIC incidences (by ANY of your care team) when that posed a threat to your health or care). Basically, share...

Hi! OK, so I have a question before I start a post... Would it be a bad idea to start a thread on the board that states our unhappiness with particular CF centers??? I know the CFF is apprehensive about a "rating" system for patients to make their own educated decision about their care and...

Hi... So, what do other CFers do when it comes to cleaning (dusting, cleaning bathrooms, etc.)? I find that I can barely handle the fumes from cleaning sprays, yet want to use them since they're antibacterial. I also feel like crap when I dust or sweep cause all the dust and "stuff" gets...

Hi! So, I got a little "beaker-looking" plastic thing to mix my HS in from CF Services. Well, I mix it in that and it works GREAT, but I am not sure how to clean it??? If I use tap water, won't I just be introducing bacteria? If I don't clean it, the HS builds up and forms a crust on the...