Cystic Fibrosis Forum (EXP)

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    Good Books to Read

    Hi all, Just wondering if anyone is part of a book club they like? Any books to recommend that you've read recently and just love? If so, what kind is it? I like hearing of new books to read if they're the type I'm interested in of course, so I though I'd ask. Has anyone read The Tipping...
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    G-Tube

    Okay, I have to say that this topic came up at my doctors appointment this past week and it frankly p!ssed me off that the nutritionist even mentioned it to me. It felt like she must have been high or something to have given me the G-Tube booklet to read and said it is an option if I'm...
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    Anyone for a new cup of tea?

    So.......... I like mint tea and speariment tea because they say that type helps to open your lungs up a little. Anyone else have a favorite that helps their breathing a little? ______________ Uggggh....referring to the bicker. The bickering will never stop, so let's have some tea instead.
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    Delta F508 and G542X

    I know that the mutations can't scientifically explain what kind of lung disease we have (only digestive) but I wanted to see who else has this combination. I looked through the old Mutations thread and only saw 2 people in there with this combo. Are there any more and how is it going for you...
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    Cutting Back On Hemoptasis

    For all those dealing with hemoptasis right now, I see it's effecting so many on this forum lately, do any of you take Lysine on a regular basis? I thought I heard that Lysine helps to control or reduce hemoptasis. So I was wondering if anyone can say that isn't so, or does it help you? Since...
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    Insurance coverage when traveling

    I just found out that my insurance does not cover me if I travel outside the US. Do most insurances cover people for travel anywhere, or is mine just retarded? Is there another small type of plan somewhere that I can sign up for just for a vacation? What do others do?
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    Spouses who stay vs. those who dont?

    I was wondering today about why some people can handle sticking around to be a spouse of a CFer and other significant others leave before the going gets tough. Do you think having past experience with health related issues and the person who stays in the relationship with a CFer go hand in hand...
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    Oxygen Levels at High Elevation

    Does anyone live at high elevation and check O2 levels? I'm wondering what the normal ranges are before and after exercise. I bought a puls-ox and I can't tell if it is incorrect, or if I'm really this low. The one I bought was about $200, so I'm thinking it should be correct and reliable, but...
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    Kayaking & River Rafting

    Curious... Recently I've been realizing that I have a retarded growing fear of drowning (I guess, I don't really know). This is all very new to me and is extremely annoying and sad for me to see happening. But....in the past couple of years I have started to realize that I can't exactly hold my...
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    Heroine & CF

    Aaaaahhhhhhh!! ............. just kidding. <img src="i/expressions/face-icon-small-happy.gif" border="0"> Just had to after still seeing those "Cigarettes" and "CF & Marijuana" threads. It's giving me giggles. Cheers <img src="i/expressions/beer.gif" border="0">
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    Stopping TOBI

    Hello, I'm going to be seeing my doctor April 3 with an annual so it'll be the full check up and tests. I am planning on taking all my notes with me on OO, GHS, Hypertonic Saline, etc. so that I can tell him these are the things I'm interested in trying. Here are my two questions and...
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    Power Huffing With The Vest

    I'm wondering what it is that some of you have mentioned doing while using the vest. I use albuterol and Pulmozyme during the vest, and once those are finished sometimes I wonder if anything is really happening. Some of you do a 'power huffing' thing? What is that? What else should I be doing...
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    I Posted Some Artwork

    I just wanted to share, I posted some of my graphic work on my blog today. When I get the chance, I will try and post some of my other stuff, paintings and jewlery. I'd love to see other people's work too.  <img src="i/expressions/face-icon-small-smile.gif" border="0"><br> <br> <a href=...
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    Controversial: HBO & Polygamy

    So, did anyone see the new HBO show called Big Love? It's about a polygamous family and I guess whatever daily issues they face. HBO seems notorious for creating controversial shows that almost all end up doing very well. For example, 6 Feet Under was one and it happened to be one of my...
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    Sinus Trouble, Green Tea & Coffee

    I went to a massage therapist the other day and she tried to "open up" my sinuses, as well as my lungs through the massage. This was a gift certificate, and I have one more time left which is set up for this coming Friday when I will also have my first ever acupuncture treatment. First of all...
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    Soliciting: Come To My Blog!

    Hi All, Just wanted to be visited at my blog. I've never had one before, so this is new and kind of fun to have. <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?forumid=9 ">http://blogs.cysticfibrosis.com/index.cfm?forumid=9 </a> I've read some...
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    Charlotte, B&B in England?

    Hi Charlotte, you mentioned a while back that you knew of a haunted B&B in England, somewhere outside of Mold? Do you by chance have the details for that place? Our tip is getting closer, we're getting excited and starting to make plans. Thanks a bunch! <img...
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    Question for the Anonymous

    Just curious, why don't more of you get a user name? You don't have to use your real name, but that way everyone can get to know you a little bit. Otherwise all anonymouses get bunched up into one person almost. It'd be better if you all separated into individuals. FYI, you don't have to have...
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    HillRom - The Vest Company's Law Suit

    Just wondering if anyone out there received one of the "proposed settlement" papers regarding the law suit against The Vest Company? I got one in the mail yesterday. It's for anyone who bought or has rented The Vest from Hill-Rom during the period of January 1990 through February 2006. I didn't...
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